Browse Items (27 total)
- Tags: Disabled Persons
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Tags: 2024, Adolescent, Adult, Alvey J, Ames SG, Child, Delaney RK, Delgado-Corcoran C, Developmental Medicine and Child Neurology, Disabled Children, Disabled Persons, February List 2025, Female, Houtrow AJ, Humans, Male, Middle Aged, Murphy N, Parents, Parents/px [psychology], Poverty, Qualitative Research, racism, Social Discrimination, Trust, United States, Watt MH
Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
Tags: 2021, 2030 SE2 - Parent Perspectives, Adolescent, Bmj Open, Bootsma J, developmental neurology & neurodisability, Di Rezze B, Disabled Persons, education & training (see medical education & training), Gorter JW, Health Personnel, Humans, Jack S, Ketelaar M, Male, Nguyen L, Paediatrics, Review Literature as Topic, Siblings
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Recent trends in cerebral palsy survival. Part II: individual survival prognosis
Tags: 2014, Adolescent, Adult, Backlog, Brooks JC, California, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disabled Persons, Female, Humans, Infant, Journal Article, Kaplan-Meier Estimate, Life Expectancy, Male, Mortality, Preschool, Prognosis, Rosenbloom L, Shavelle RM, Strauss DJ, Tran Linh M, Wu YW, Young Adult
Access to health care for young adults with disabling chronic conditions
Tags: 2006, Adolescent Transitions, Adult, Archives Of Pediatrics & Adolescent Medicine, Backlog, Callahan ST, Chronic Disease/economics, Cooper WO, Disabled Persons, Female, Health, Health Services Accessibility/economics/statistics & numerical data, Humans, Insurance, Journal Article, Male, Medically Uninsured/statistics & numerical data, Needs Assessment, United States
Posttraumatic growth in mothers of children with acquired disabilities.
Course of disability and respiratory function in untreated late-onset Pompe disease
Tags: 2006, 80 And Over, Adolescent, Adult, Age of Onset, Aged, Backlog, Child, Disabled Persons, Disease Progression, Female, Follow-up Studies, Glycogen Storage Disease Type II/physiopathology, Hagemans ML, Hop WJ, Humans, Journal Article, Male, Middle Aged, Neurology, Preschool, Q3 Scoping Review Results, Questionnaires, Respiratory Function Tests, Reuser AJ, Time Factors, Van der Ploeg AT, Van Doorn PA
Health care transition: youth, family, and provider perspectives
Tags: 2005, Adolescent, Adolescent Health Services/organization & administration, Adolescent Medicine/organization & administration, Adolescent Transitions, Adult, Attitude Of Health Personnel, Attitude To Health, Backlog, CHIR Best Practices, Chronic Disease/therapy, Continuity Of Patient Care, Delivery of Health Care/organization & administration, Disabled Persons, Family, Family Practice, Female, Focus Groups, Gibson RW, Health, Health Services Research, Humans, Insurance, Insurance Coverage, Interdisciplinary Communication, Journal Article, Male, Patient Care Planning, Pediatrics, Pediatrics/organization & Administration, Physician-patient Relations, Reiss JG, Walker LR
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Tags: 2002, Adult, Aged, Archives Of Pediatrics & Adolescent Medicine, Back Pain/etiology, Backlog, Caregivers/psychology, Child, Chronic Disease, Cross-sectional Studies, Depression/etiology, Disabled Persons, Female, Haig AJ, Humans, Journal Article, Kandala G, Middle Aged, Mothers/psychology, Nelson VS, Physical Fitness, Regression Analysis, Shin KY, Tong HC, Yamakawa KS
Congenital malformations of the central nervous system in a 1-year birth cohort followed to the age of 14 years
Tags: 1986, Abnormalities, Adolescent, Backlog, Central Nervous System/abnormalities, Child, Child's Nervous System, Disabled Persons, Follow-up Studies, Humans, Hydrocephalus/congenital, Infant, Journal Article, Meningomyelocele/diagnosis, Multiple/diagnosis, Newborn, Preschool, Q3 Scoping Review Results, Rantakallio P, von Wendt L
Respiratory function in handicapped children
Tags: 1990, Adolescent, Anoxia/et [Etiology], Backlog, Brain & Development, Brain Damage, Child, Chronic/co [Complications], Chronic/pp [Physiopathology], Comparative Study, Disabled Persons, Female, Fujita M, Human, Hypercapnia/et [Etiology], Ishida C, Journal Article, Male, Motor Skills, Muscular Dystrophies/co [Complications], Muscular Dystrophies/pp [Physiopathology], Posture, Preschool, Recurrence, Respiration Disorders/et [Etiology], Respiratory Tract Infections/et [Etiology], Sanae N, Spinal Dysraphism/co [Complications], Spinal Dysraphism/pp [Physiopathology], Taneda M, Tasaki T, Tidal Volume, Umemoto H, Vital Capacity
Seeing the Same Doctor: Determinants of Satisfaction with Specialty Care for Disabled Children
Tags: 1981, Adolescent, Backlog, Breslau N, Child, Continuity Of Patient Care, Disabled Persons, Health Services Accessibility, Humans, Journal Article, Medical Care, Miller 2009 BMC HSR Refs, Mortimer EA, Ohio, Personal Satisfaction, Physician-patient Relations, Primary Health Care, Process Mapping, Regression Analysis, Socioeconomic Factors
Continuity Reexamined: Differential Impact on Satisfaction with Medical Care for Disabled and Normal Children
Tags: 1982, Adolescent, Backlog, Breslau N, Child, Consumer Satisfaction, Continuity Of Patient Care, Disabled Persons, Humans, Journal Article, Medical Care, Miller 2009 BMC HSR Refs, Ohio, Physician-patient Relations, Preschool, Primary Health Care/standards, Process Mapping, Questionnaires, Regression Analysis
Use of health services by chronically ill and disabled children
Tags: 1984, Adolescent, Backlog, Breslau N, Child, Child Health Services/utilization, Chronic Disease, Dental Health Services/utilization, Disabled Persons, Gortmaker S, Hospitalization, Humans, Journal Article, Medical Care, Mental Health Services/utilization, Occupational Therapy/utilization, Ohio, Physical Therapy Modalities/utilization, Physicians/utilization, Preschool, Process Mapping, School Nursing, Smyth-Staruch K, Social Work/utilization, Socioeconomic Factors, Speech Therapy/utilization, Statistics as Topic, Weitzman M
Informed dissent: the views of some mothers of severely mentally handicapped young adults
Tags: 1986, Abortion, Adult, Backlog, Congenital Abnormalities/therapy, Death and Euthanasia, Disabled Persons, Empirical Approach, Euthanasia, Female, Genetics and Reproduction, Humans, Induced, Infant, Informed Consent, Journal Article, Journal of Medical Ethics, Mental Health Therapies, Middle Aged, Mothers/psychology, Newborn, Passive, Patient Compliance, Simms M, Value of Life
Between two worlds: bridging the cultures of child health and adult medicine
Tags: 1995, Adolescent Transitions, Adult, Backlog, Child, Chronic Disease, Continuity Of Patient Care, Decision Making, Delivery of Health Care/organization & administration, Disabled Persons, Humans, Internal Medicine/organization & administration, Journal Article, Patient Care Team, Patient Participation, Pediatrics/organization & Administration, Physician-patient Relations, Rosen D, Survivors, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States
Interrater agreement and stability of the Functional Independence Measure for Children (WeeFIM): Use in children with developmental disabilities.
Tags: 1997, Activities of Daily Living, Archives Of Physical Medicine And Rehabilitation, Backlog, Braun S, Child, Disability Evaluation, Disabled Persons, Duffy LC, Granger CV, Health Status Indicators, Humans, Infant, Journal Article, Longitudinal Studies, Lyon NR, Msall ME, Observer Variation, Ottenbacher KJ, Preschool
Pediatric Functional Independence Measure: Clinical trials with disabled and nondisabled children.
Tags: 1996, Activities of Daily Living, Applied Nursing Research, Backlog, Case-Control Studies, Cerebral Palsy/nursing/physiopathology, Child, Clinical Nursing Research, Disabled Persons, Female, Humans, Infant, Journal Article, Longitudinal Studies, Male, McCabe MA, Neuromuscular Diseases/nursing/physiopathology, Nursing Assessment/methods, Pediatric Nursing, Preschool, Reproducibility of Results
Meaning in caregiving and its contribution to caregiver well-being.
Tags: 1997, 80 And Over, Adult, Aged, Backlog, Caregivers/psychology, Child, Comparative Study, Disabled Persons, Education, Emotions, Female, Frail Elderly, Gerontologist, Home Nursing, Humans, Income, Interviews, Journal Article, Longitudinal Studies, Male, Middle Aged, Noonan AE, P.H.S., Regression Analysis, Research, Research Support, Spouses, Tennstedt SL, Time Factors, U.S. Gov't
Diagnostic and therapeutic approach to vomiting and gastroparesis in children with neurological and neuromuscular handicap
Tags: 1997, Backlog, Child, Disabled Persons, Gastroparesis/complications/diagnosis/therapy, Humans, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Nervous System Diseases/complications, Neuromuscular Diseases/complications, Ravelli AM, Vomiting/complications/diagnosis/therapy
Chronic constipation and fecal incontinence in children with neurological and neuromuscular handicap
Tags: 1997, Backlog, Child, Chronic Disease, Constipation/complications/therapy, Di Lorenzo C, Disabled Persons, Fecal Incontinence/complications/therapy, Humans, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Nervous System Diseases/complications, Neuromuscular Diseases/complications, Q3 Scoping Review Results
Life expectancy among people with cerebral palsy in Western Australia
Tags: 2001, Adolescent, Adult, Backlog, Badawi N, Blair E, Cause Of Death, Cerebral Palsy/mortality/pathology, Child, Delivery of Health Care, Developmental Medicine and Child Neurology, Disabled Persons, Epidemiologic Studies, Female, Humans, Intelligence, Journal Article, Life Expectancy, Male, Middle Aged, Non-U.S. Gov't, Research Support, Stanley FJ, Survival Analysis, Watson L, Western Australia/epidemiology
Use of melatonin in the treatment of paediatric sleep disorders
Feeding and nutritional characteristics in children with moderate or severe cerebral palsy
Tags: 1996, Acta Paediatrica, Activities of Daily Living, Age Distribution, Anthropometry, Backlog, Case-Control Studies, Cerebral Palsy/complications, Child, Child Nutrition Disorders/etiology, Dahl M, Disabled Persons, Eating Disorders/etiology, Female, Humans, Journal Article, Male, Non-U.S. Gov't, Nutrition Assessment, Nutritional Status, Prevalence, Questionnaires, Rasmussen M, Research Support, Risk Factors, Selberg T, Thommessen M