Browse Items · Pediatric Palliative Care Library

End-of-Life Care for Hispanic Children: A Study of California Medicaid Beneficiaries

INTRODUCTION: More than 8,000 Hispanic children die annually in the United States; yet little is known about the end-of-life care utilized. The purpose of this study was to examine the children and family characteristics associated with end-of-life…

Because statistics don't tell the whole story: a call for comprehensive care for children with cancer

Integrating oncology and palliative home care in Italy: the experience of the "L'Aquila per la Vita" Home Care Unit

AIM: To evaluate the efficacy of a home care program, closely integrated with a medical oncology department. PATIENTS AND METHODS: The charts, prospectively recorded, of all the patients treated at home by the "L'Aquila per la Vita" Home Care Unit…

Care for patients in the last months of life: the Belgian Sentinel Network Monitoring End-of-Life Care study

BACKGROUND: Population-based studies monitoring end-of-life care are lacking. This study describes involvement of caregivers, access to specialist palliative care, treatment goals (cure, life-prolonging, or palliation), and content of end-of-life…

Coordinating care--a perilous journey through the health care system

2008

Tags: 2008, Backlog, Bodenheimer T, Computerized/organization & administration, Continuity Of Patient Care/organization & Administration, Delivery of Health Care, Delivery of Health Care/organization & administration, Family/organization & administration, Humans, Integrated, Journal Article, Medical Records Systems, Patient Care Management/organization & administration, Patient Care Team/organization & administration, Physicians, Referral And Consultation, The New England Journal Of Medicine, United States

Adolescents with renal disease in an adult world: meeting the challenge of transition of care

2007

Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Medicine, Adolescent Transitions, Age Factors, Backlog, Bell L, Continuity Of Patient Care, Delivery of Health Care, Humans, Journal Article, Kidney Diseases/psychology/therapy, Nephrology, Nephrology, Dialysis, Transplantation, Parent-child Relations, Patient Compliance, Pediatrics

Coordinating the norms and values of medical research, medical practice and patient worlds-the ethics of evidence based medicine in orphaned fields of medicine

Evidence based medicine is rightly at the core of current medicine. If patients and society put trust in medical professional competency, and on the basis of that competency delegate all kinds of responsibilities to the medical profession, medical…

Health care access and utilization among pregnant adolescents

PURPOSE: To assess access to and use of health care by adolescents prior to their becoming pregnant. METHODS: An interviewer-administered questionnaire was completed by all pregnant adolescents (n = 65) entering the Rochester Adolescent Maternity…

Health counseling in adolescent preventive visits: effectiveness, current practices, and quality measurement

Most morbidity and mortality among adolescents results from their participation in health-compromising behaviors. Recent guidelines for clinical adolescent preventive services recommend that primary care clinicians routinely screen for and counsel…

Life expectancy among people with cerebral palsy in Western Australia

This report describes trends, predictors, and causes of mortality in persons with cerebral palsy (CP) using individuals identified by the Western Australian Cerebral Palsy Register and born between 1958 and 1994. Two thousand and fourteen people were…

Integrating palliative care in pediatrics

An integrated palliative care plan with goals of therapy that change throughout a child's illness will reflect an individualized, child-centered, and family-centered approach to care. This care plan will act as a foundation to assist and guide all…

Tags: 2004, Adolescent, Child, Current Pain & Headache Reports, Delivery of Health Care, February 2018 List, Humans, Infant, Integrated/og [Organization & Administration], Only Child, Palliative Care, Pediatrics/og [Organization & Administration], Walton O, Weinstein SM

The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care

BACKGROUND: Wide variations exist among perinatal hospices, and barriers to perinatal palliative care exist at the healthcare level. Research in the area of culturally sensitive perinatal palliative care has been scarce, a gap which this study…

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