Browse Items (137 total)
- Tags: Chronic Disease
Patients with chronic conditions and their complex care needs in a tertiary care hospital
Using Photo-Elicitation Interviews With Families of Children and Adolescents With Chronic Illness
Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic
Tags: 2021, Adolescent, Artificial Respiration, Caggiano S, Child, Chronic Disease, COVID-19, Cutrera R, De Santis S, home care services, Hospitalization, July 2021 List, Mechanical Ventilation, Noninvasive Ventilation, Onofri A, Pandemics, Pavone M, Pediatric Pulmonology, respiratory technology, SARS-CoV-2, Telemedicine, telemonitoring, Ullmann N, Verrillo E
Use of standardized body composition measurements and malnutrition screening tools to detect malnutrition risk and predict clinical outcomes in children with chronic conditions
Tags: 2020, Adolescent, American Journal of Clinical Nutrition, Anthropometry, Body Composition, Child, Child Preschool, Child Development, Child Nutrition Disorders/diagnosis, Chronic Disease, Clinical outcomes, Fawbert K, Female, Fewtrell M, Hill S, Humans, Kennedy K, Lara-Pompa NE, Macdonald S, Male, malnutrition, March 2021 List, nutritional risk, pediatric patients, Risk Factors, Screening, Shaw V, Valente J, Wells JC, Williams J
Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer
A confident parent breeds a confident child': Understanding the experience and needs of parents whose children will transition from paediatric to adult care
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, Chronic Disease/*psychology, difficult situation, Disabled Persons/psychology, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, November 2020 List, paediatric patient, Parental Attitudes, Parents, Parents/*psychology, Poland, Preschool, Psychological
"I Could Never Prepare for Something Like the Death of My Own Child": Parental Perspectives on Preparedness at End of Life for Children With Complex Chronic Conditions
How Do Children Die in PICUs Nowadays? A Multicenter Study From Spain
Evaluating the Cost-Effectiveness of Home-Based Palliative Care for Children with Special Health Care Needs: A Review Study
Symptoms and Suffering at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions (S756)
Tags: 2020, Adult, Central Nervous System, Child, Chromosome, Chronic Disease, conference abstract, Data Analysis, DeCourcey D, Dyspnea, Female, Human, Journal of Pain and Symptom Management, Kao P C, Ma C, Major Clinical Study, Male, March 2020 List, Marcus K, Medical Technology, Pain, Prospective Study, Wolfe J, Young Adult
Perceptible end-of-life signs in PICU, a prospective study
Tags: 2019, Annals of Intensive Care, Artificial Ventilation, bradycardia, Brain Death, Caregiver, Cause Of Death, Child, Chronic Disease, Clinical Article, conference abstract, cyanosis, Drug Withdrawal, edema, February 2020 List, Human, Hypotension, Le Bourgeois F, Male, Naudin J, Neurologic Disease, pallor, Pediatric Intensive Care Unit, petechia, Pierron C, Poncelet G, Prospective Study, respiratory failure, skin color, Sommet J, time of death
The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C
Gabapentin Successfully Manages Chronic Unexplained Irritability in Children With Severe Neurologic Impairment
Tags: 2007, Adolescent, Adult, Amines/therapeutic use, amitriptyline/dt [Drug Therapy], Analgesics/therapeutic use, Article, brain disease, brain ischemia, Charnas L, Child, Child Preschool, Chronic Disease, Clinical Article, Clinical Feature, Controlled Study, Cyclohexanecarboxylic Acids/therapeutic use, drug dose titration, Drug Withdrawal, Female, Gabapentin, gabapentin/ae [Adverse Drug Reaction], gabapentin/dt [Drug Therapy], gamma-Aminobutyric Acid/therapeutic use, gastritis, Hauer Julie M, Human, Humans, hyperalgesia/dt [Drug Therapy], Infant, infantile spasm, intestinal dysmotility, Irritability, Irritable Mood/drug effects, Male, Nervous System Diseases/complications, NET Files, neurologic disease/dt [Drug Therapy], neurological impairment, nystagmus/si [Side Effect], Pain, Pediatrics, Priority Journal, proton pump inhibitor, Remission Induction, Retrospective Studies, salazosulfapyridine, Severity Of Illness Index, steroid, symptomatology, tricyclic antidepressant agent/dt [Drug Therapy], visceral hyperalgesia, Wical B S
Melatonin treatment in individuals with intellectual disability and chronic insomnia: a randomized placebo-controlled study
Tags: 2008, Adolescent, Adult, Aged, Braam W, Central Nervous System Depressants/adverse effects/therapeutic use, Child, Child Preschool, chromosome 18q deletion, Chronic Disease, Comorbidity, Curfs L, Didden R, Double-Blind Method, Female, Humans, Journal Of Intellectual Disability Research, Male, melatonin, Melatonin/adverse effects/therapeutic use, Mental Retardation/epidemiology/psychology, Middle Aged, MPS III, pharmacologic intervention, Q3 Literature Search, Saliva, sleep disturbance/disorders, Sleep Initiation and Maintenance Disorders/drug therapy/epidemiology/psychology, Smits M, Time Factors, Treatment Outcome
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Socioeconomic Status and Health Services Utilization for Children With Complex Chronic Conditions Liable to Receive Nurse-Led Services: A Cross-Sectional Study
Tags: 2019, Case Management, Child Health Services, Chronic Disease, Garcia-Pinero JM, Healthcare Disparities, Hospice And Palliative Care Nursing, Journal Of Nursing Scholarship, Kaknani-Uttumchandani S, Lupianez-Perez I, Morales-Asencio JM, Morales-Gil IM, multimorbidity, Pediatric Nursing, Perez-Ardanaz B, September 2019 List, Socioeconomic Factors
Pediatric Complex Chronic Conditions: Does the Classification System Work for Infants?
Tags: 2019, African American, Article, Attention, Caucasian, Child, Chronic Disease, Comorbidity, Complex Chronic Conditions, Controlled Study, end-of-life, Fortney C A, hcup kid, Health Care Cost, Hospital Patient, Human, Infant, Infants, Insurance, June 2019 List, Lindley L C, Neonates, Palliative Therapy, Prevalence, Regression Analysis, Serious Illness, The American Journal of Hospice & Palliative Care
Pediatric intensivist end-of-life practices and attitudes in Vietnam
Tags: 2018, Child, Chronic Disease, Chronic Patient, Critical Care Medicine, Cultural Factor, Developing World 2018 List, doctor nurse relation, Education, Fadadu P, Female, Human, Intensivist, Kumbamu A, Life Sustaining Treatment, Liu J, Major Clinical Study, Male, Medical Technology, Ouellette Y, Palliative Therapy, Pediatric Hospital, Perception, Phan P, Qualitative Analysis, quantitative analysis, Resuscitation, Schiltz B, Semi Structured Interview, Terminal Care, tertiary health care, Tran X, Viet Nam, Vietnamese
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Low prevalence of palliative care and ethics consultations for children with chronic critical illness
Tags: 2018, Acta Paediatrica, International Journal of Paediatrics, Article, Artificial Ventilation, Boss RD, childhood disease th [Therapy], Chronic Disease, Consultation, Critical Illness, Donohue PK, Ethics, Falck A, Goloff N, Hospital Admission, Human, Hutton N, Intensive Care Unit, Length Of Stay, Miles A, November 2018 List, Palliative Therapy, Prevalence, Priority Journal, Shapiro M, Tracheostomy, Weiss EM
Pediatric Hospital Care for Children with Life-threatening Illness and the Role of Palliative Care
Functional electrical stimulation therapy for recovery of reaching and grasping in severe chronic pediatric stroke patients
Tags: 2014, Articular, Backlog, Bernstein J, Child, Chronic, Chronic Disease, Disability Evaluation, Electric Stimulation Therapy, Female, functional electrical stimulation therapy, grasping, Hand Strength, Humans, Journal Article, Journal of Child Neurology, Kapadia Naaz M, Male, Nagai MK, Pediatrics, Popovic MR, Psychomotor Performance, Range of Motion, Recovery of Function, Rumney P, severe, Severity Of Illness Index, Stroke, Treatment Outcome, Upper Extremity, Woodhouse J, Zivanovic V
Pediatric advance directives: parents' knowledge, experience, and preferences
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Directives, Advance Directives/px [Psychology], Attitude, Attitude To Health, Backlog, Child, Chronic Disease, Cross-sectional Studies, Decision Making, DNAR, End Of Life, Female, Health Services Needs And Demand, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Infant, Journal Article, Liberman DB, Logistic Models, Male, Nager AL, Palliative Care, Parents, Parents/px [psychology], Pediatrics, Pham PK, Preschool, Prospective Studies, Socioeconomic Factors, Special-needs Children
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Opioids
Tags: 2007, Amino Acid Sequence, Analgesics, Animals, Backlog, Biomarkers of Pain, Chronic Disease, Drug Tolerance, Handbook Of Experimental Pharmacology, Humans, Journal Article, Ligands, Molecular Sequence Data, Opioid/adverse effects/pharmacology/therapeutic use, Opioid/drug effects, Receptors, Stein C, Zollner C
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult
Should we be reluctant to prescribe opioids for chronic non-malignant pain?
Tags: 2007, Analgesics, Attitude Of Health Personnel, Backlog, Chronic Disease, Fields HL, Humans, Journal Article, Neoplasms/complications, Opioid-Related Disorders/etiology/prevention & control, Opioid/adverse effects/therapeutic use, Pain, Pain/drug therapy/etiology, Physician's Practice Patterns/trends
Opioid dependence and addiction during opioid treatment of chronic pain
Tags: 2007, Analgesics, Backlog, Ballantyne JC, Brain/drug effects/physiopathology, Chronic Disease, Humans, Journal Article, LaForge KS, Models, Neurological, Opioid-Related Disorders/etiology/physiopathology/prevention & control, Opioid/adverse effects/therapeutic use, Pain, Pain/drug therapy/physiopathology/psychology, Physician's Practice Patterns/trends
Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine
The management of pain in children with life-limiting illnesses
Tags: 2007, Analgesics, Backlog, Child, Chronic Disease, Codeine/therapeutic use, Fentanyl/therapeutic use, Friedrichsdorf SJ, Humans, Hydromorphone/therapeutic use, Journal Article, Kang T, Ketamine/therapeutic use, Methadone/therapeutic use, Morphine/therapeutic Use, Nociceptors/physiology, Opioid/therapeutic use, Oxycodone/therapeutic use, Pain Measurement, Pain/diagnosis/drug therapy/physiopathology, Pediatric Clinics of North America, Severity Of Illness Index
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Positive effects of a psycho-educational group intervention for children with a chronic disease: First results
Adjustment to chronic pain: the role of pain acceptance, coping strategies, and pain-related cognitions
Tags: 2007, Activities of Daily Living, Adaptation, Adult, Aged, Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine, anxiety, Backlog, Behavior Therapy, Chronic Disease, Culture, Depression, Esteve R, Female, Helplessness, Humans, Internal-External Control, Journal Article, López-Marínez AE, Learned, Male, Mathematical Computing, Middle Aged, Models, Pain, Personality Inventory, Psychological, Psychometrics, Ramírez-Maestre C, Sex Factors, Sick Role, Software, statistical
Is there any evidence to support the use of anti-depressants in painful rheumatological conditions? Systematic review of pharmacological and clinical studies
Tags: 2008, Antidepressive Agents/therapeutic use, Arthritis/complications/drug therapy, Backlog, CEDR (Cercle d'Etude de la Douleur en Rhumatologie France) Pain Study Section French Rheumatological Society, Chronic Disease, Evidence-based Medicine, Fibromyalgia/drug therapy, Humans, Javier RM, Journal Article, Laroche F, Le Jeunne C, Low Back Pain/drug therapy, Marty M, Pain/drug therapy/etiology, Perrot S, Randomized Controlled Trials as Topic, Rheumatic Diseases/complications/drug therapy, Rheumatology
Transition from pediatric to adult services: are we getting it right?
Tags: 2008, Adolescent, Adolescent Medicine/organization & administration, Adolescent Transitions, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Delivery of Health Care/organization & administration, Humans, Journal Article, Kennedy A, Models, Organizational, Patient Care Planning/organization & administration, Pediatrics, Sawyer S
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Tags: 2009, Adaptation, Adolescent, Backlog, Child, Child Development Disorders, Child: Care, Health and Development, Chronic Disease, Developmental Disabilities/psychology, Female, Humans, Infant, Journal Article, Kao B, Lobato D, Male, Parents/psychology, Pervasive/psychology, Plante W, Preschool, Psychological, Psychometrics, Sibling Relations, Siblings/psychology, Socioeconomic Factors