Browse Items (15 total)

Tags: 2024, Adolescent, Adult, Anticipatory Guidance, care behavior, Castro-Codesal M, Chest, Child, Clinical Article, conference abstract, Decision Making, Dyspnea, Female, Health Care Personnel, Human, Interview, Kingsley B, Male, Noninvasive Ventilation, November List 2024, Olmstead D, Parent, Personal Experience, Qualitative Research, special situation for pharmacovigilance, Therapy, Turnbull H

Tags: 2024, acute respiratory failure, apnea hypopnea index, Archives of Disease in Childhood, Article, Aubertin G, Barzic A, Bergougnioux J, Binoche A, Bokov P, Child, Chromosome Aberration, Clinical Article, Continuous Positive Airway Pressure, Controlled Study, Coutier L, Debelleix S, Denamur S, Diagnosis, Dudoignon B, Dyspnea, Essid A, Fauroux B, Female, Galode F, gas exchange, Hullo E, Human, Ioan I, Jokic M, Labouret G, Le Clainche L, Lubrano M, Male, Mbieleu B, Moreau J, Noninvasive Ventilation, Ollivier M, Palliative Therapy, Randomized Controlled Trial, Schweitzer C, September List 2024, Sigur E, Sleep Apnea Syndromes, Sleep Quality, sleep time, Taytard J, Therapy, Young Adult

Tags: 2024, Adult, Artificial Ventilation, Child, Clinical Outcome, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critical Illness, Critically Ill Patient, Female, Human, July List 2024, Krippendorff's alpha coefficient, Length Of Stay, Major Clinical Study, Male, Mortality, Noninvasive Ventilation, Only Child, oxygen, Parent, Pediatric Intensive Care Unit, Pennsylvania, Shannon M, Short Survey, ventilated patient, ventilator, Yehya N

Tags: 2021, Adolescent, Aged, Bereavement Support, BMJ Paediatrics Open, Child, Chromosome Aberration, Clinical Article, community support, conference abstract, congenital disorder, Congenital Malformation, do not resuscitate order, Drug Therapy, Emergency Ward, endocrinologist, Female, Follow Up, Gastrostomy, Hong Kong, Human, Intensive Care Unit, Intensivist, July List 2024, Kwong CH, Lee TYH, Li CH, limited mobility, Male, Man SS, Medical Record Review, Metabolic Disorder, Morbidity, Neonatal Intensive Care Unit, Neonatologist, Neurologic Disease, neurologist, Noninvasive Ventilation, nose feeding, Oncologist, Pain, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, pediatric ward, Pediatrician, perinatal morbidity, Quality Of Life, Therapy, Tracheostomy

Tags: 2023, Article, Bereavement Support, Cancelinha C, Child, Cohort Analysis, communication disorder, Diogo L, drug combination, Emergency Ward, emotional support, Endocrine, Metabolic and Immune Disorders - Drug Targets, enteric feeding, February List 2024, Female, Ferreira S, Follow Up, Grilo E, Home Care, Hospital Admission, Hospitalization, Human, Intensive Care, Male, medical device, Metabolic Disorder, motor dysfunction, Neurologic Disease, Nogueira A, Noninvasive Ventilation, Palliative Therapy, Patient Referral, Pereira MJ, Place Of Death, respiratory equipment, Retrospective Study, School Child, Symptom Assessment

Tags: 2023, Article, Child, Cohort Analysis, daily life activity, Demography, disorders of mitochondrial functions, disorders of peroxisomal functions, Endocrine, metabolic & immune disorders drug targets, Female, Ferreira AC, Gastrostomy, Home Visit, Hospital Admission, Human, lysosome, Major Clinical Study, Male, Metabolic Diseases, Metabolic Disorder, Neurologic Disease, Noninvasive Ventilation, November List 2028, Outpatient, Paiva M, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, peroxisome, Quality Of Life, Santos S, Saraiva BM, School Child, Surgery, systemic disease

Tags: 2021, Adolescent, Artificial Respiration, Caggiano S, Child, Chronic Disease, COVID-19, Cutrera R, De Santis S, home care services, Hospitalization, July 2021 List, Mechanical Ventilation, Noninvasive Ventilation, Onofri A, Pandemics, Pavone M, Pediatric Pulmonology, respiratory technology, SARS-CoV-2, Telemedicine, telemonitoring, Ullmann N, Verrillo E

Tags: 2020, Children, Cirrilla AM, decision making shared, Edwards JD, February 2021 List, George M, Grunstein E, Mechanical Ventilation, Miller RL, Nelson JE, Noninvasive Ventilation, Panitch HB, Pediatric Pulmonology, Respiration Artificial, Tracheostomy, Wolfe J

Tags: 2020, Caggiano S, Decision-making, Ethics, Frontiers in Pediatrics, Krivec U, Noninvasive Ventilation, November 2020 List, Palliative Care, Pediatric

Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy

Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K

Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease

Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B

Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease

Tags: 2016, Adolescent, Advance Care Planning, Advance Directives, Attitude To Health, Cystic Fibrosis/pp [physiopathology], Cystic Fibrosis/th [therapy], December 2017 List, Female, Forced Expiratory Volume, Humans, Kazmerski TM, Lerch W, Male, Matisko J, Maurer SH, May C, Noninvasive Ventilation, Oxygen Inhalation Therapy, Patient Care Planning, Pediatric Pulmonology, Proxy, Quality Improvement, Schachner D, Severity Of Illness Index, Surveys And Questionnaires, Terminal Care, Weiner DJ, Young Adult