Browse Items · Pediatric Palliative Care Library

Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in Brazil

PURPOSEEarly integration of pediatric palliative care (PPC) for children with cancer is critical to improving the quality of life of both the patient and family. Understanding physician perceptions of palliative care and perceived barriers to early…

Tags: 2023, 2025 SE2 - LRS, Adult, Agulnik A, Antunes Geronutti Ayub D, Article, Baker JN, Beatriz Costa Neves Do Amaral A, Bereavement, Boldrini E, Brazil, Cancer Palliative Therapy, Child, Childhood Cancer, clinical assessment, Consultation, Cristina Cunha Ferreira EFonseca I, De Oliveira Junior A, Devidas M, emotional support, Esmeraldo Andrade De Almeida A, Female, Francisco Oliveira De Lima A, Friedrich P, Godfrey A, Grief, Health Care Access, health care need, Health Education, Health Survey, Home Care, Human, JCO Global Oncology, Job G, Loggetto P, Lopes Garcia J, Male, McNeil MJ, Medical Expert, Metzger ML, Pediatric Palliative Care, Pediatrics, physical activity, Physician, Physician Attitude, professional knowledge, Qualitative Analysis, Quality Of Life, Regina Costa Murra G, Spiritual Care, World Health Organization

Paediatric palliative care in Aotearoa New Zealand-current state and future direction

This paper seeks to explore the current state of paediatric palliative care in Aotearoa New Zealand. The low priority afforded to paediatric palliative care for more than two decades has had a significant impact on service provision, education and…

Tags: 2024, Aburn GE, Child, Child Health Care, Drake R, February List 2025, Gott M, Health Care Access, Human, Moeke-Maxwell T, New Zealand, Palliative Therapy, Pediatrics, The New Zealand Medical Journal

Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence

Background: Palliative care is an essential component of children's health services but is accessed by fewer children than could potentially benefit. Aim(s): Appraise the evidence to identify factors influencing referral and access to children's…

A quality improvement evaluation of a standardized intervention for children with medical complexity transitioning to adult care

Children with medical complexity have medical fragility, chronic disease, technology dependence, and high healthcare use. Their transition to adult health care at age 18 involves medical and social elements and follows no standardized process. Our…

Tags: 2024, Adams S, Adolescent, Adult, Article, assisted ventilation, Caregiver, Checklist, Child Psychiatry, Children With Medical Complexity, chronicity, Chung C, Conversation, decision support system, Demographics, dietitian, Disability, Esser K, Family physicians, feedback system, General Practitioner, Health Care Access, Health Care Personnel, Health care transition, Health Care Utilization, Hospital, Human, Information Processing, Lee S, Major Clinical Study, McKay T, Medical Record Review, Medical Technology, Moore C, Multidisciplinary team, Multiple Chronic Conditions, November List 2024, Nurse Practitioner, Orkin J, Paediatrics And Child Health, Patient Care, pediatric patient, Pediatrician, Pediatrics, pharmaceutical care, pharmacist, Quality Improvement, Rehabilitation, School, Social Worker, standardization, Total Quality Management, Transition To Adult Care, vascular access, Wagman H

The impact, perceptions and needs of parents of children with epidermolysis bullosa

Background: Epidermolysis bullosa (EB) is a rare, incurable genodermatosis that presents with blistering and skin fragility. Complications can be localised or generalised, limited to the skin or have systemic effects resulting in death. Caring for a…

The Special Delivery Unit: A Novel Concept for Mother-Baby Continuity for Major Fetal Abnormalities

Objective: This article describes the experience in the planning and development of a special delivery unit (SDU) at our free-standing children's hospital in Austin, Texas. Study design: Description of various aspects of the development of the SDU.…

Tags: 2024, American Journal of Perinatology, Anesthesiology, anxiety, Apgar score, Article, August List 2024, Bebbington MW, Birth Weight, Blood Transfusion, body mass, Cesarean Section, Clinical Outcome, colonoscopy, community hospital, Cost Effectiveness Analysis, diabetic ketoacidosis, electronic medical record, Female, Fetus, fetus disease, fetus echography, fetus surgery, Gestational Age, Health Care Access, Health Care Cost, Health Care Delivery, health Insurance, hospital discharge, Human, Intensive Care Unit, interatrial septum, Kosko A, Length Of Stay, Medical Education, Moise KJ, neuroprotection, newborn surgery, Nix M, obstetric delivery, obstetrical nursing, operating room, outcome assessment, oxygen consumption, Palliative Therapy, Parenteral Nutrition, patent ductus arteriosus, Patient Care, Patient Satisfaction, pharmacist, preeclampsia, Pregnancy, pregnant woman, Prenatal Care, Prenatal Diagnosis, puerperium, Resuscitation, Systematic Review, Teaching, telephone interview, Thomas H, wound infection

Social work practice in perinatal palliative care: an overview

Social workers in Perinatal Palliative Care (PPC) play an essential role in caring for birthing people carrying a baby with a life-limiting condition and their families. Perinatal palliative care is consistent with social work values concerning…

Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic

Background: Little is known about the impact of the COVID-19 pandemic on families of children with chronic life-limiting conditions who died during the COVID-19 pandemic. Methods: In this qualitative study, parents of a child (< 18 years) who died…

Effects of COVID-19 on Pediatric Cancer Care: A Multicenter Study of 11 Middle Eastern Countries

During the COVID-19 pandemic, major challenges are facing pediatric cancer centers regarding access to cancer centers, continuity of the anti-cancer therapy, hospital admission, and infection protection precautions. Pediatric oncologists actively…

Tags: 2023, 2023 SE5 - Low Resource Setting, Abdelmabood S, Ahmad S, Ahmed S, Al Daama SA, Al Mashaikhi N, Al Rawas A, Al-Hebshi A, Al-Mulla NA, Al-Sweedan S, Alhadi A, Alharbi I, Almajali RM, Alshamsi ET, Article, Bayoumy MS, Boudiaf H, cancer center, Cancer Chemotherapy, Cancer Palliative Therapy, cancer radiotherapy, cancer surgery, Cancer Therapy, Childhood Cancer, coronavirus disease 2019, Dammag E, drug shortage, Elzembely MM, emergency surgery, Fadel SH, Farah R, Gachi F, granulocyte colony stimulating factor/pv [Special Situation for Pharmacovigilance], Haddad H, Health Care Access, Health Care Availability, high income country, Human, Ibrahim AK, Journal Of Pediatric Hematology/oncology, Kaleem WK, low income country, Madney Y, Middle East, middle income country, Mohammad HS, Pandemic, pediatric oncologist, prophylaxis, Ragab I, Ragab SM, Salami KH, social distancing, social status, Sultan I, Telemedicine, therapy delay, Zain GH, Zein AA

Palliative Care for Childhood Cancer

Cure rates for children with cancer are improving, but often at the cost of quality of life during treatment [...].

Accessibility and challenges of perinatal palliative care in Poland

Background: This article examines the legal status and level of accessibility to perinatal palliative care (PPC) in Poland, with a focus on the number of services provided and the number of parents receiving PPC services. Material(s) and Method(s):…

Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium

BACKGROUND: Paediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these…

Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T

Tags: 2017, Baker JN, Cancer Diagnosis, Cancer Palliative Therapy, Child, Child Health Care, Childhood Cancer, Health Care Access, Health Care Delivery, Health Care Quality, Home Care, Human, Journal Of Clinical Oncology, Kaye EC, Note, Oncology 2017 List, Patient Care, Priority Journal, Snaman JM

Browse Items (17 total)