Browse Items (140 total)
- Tags: Advance Care Planning
Experiences with a national team-based learning program for advance care planning in pediatric palliative care
Tags: 2024, 2025 SE1 - Oncology, Adult, Advance Care Planning, Article, BMC Palliative Care, Brounen MJ, Childhood Cancer, Controlled Study, Conversation, de Groot M, De Weerd W, Dutchman, Education Program, Engel M, Fahner JC, Female, Health Care Personnel, Hennus MP, Hermans M, Hofman SC, Human, Joosen C, Kars MC, Lalbahadoersing-Jharap S, Learning, learning program, Maebe S, Male, Michiels EMC, Middle Aged, Miedema S, Netherlands, Palliative Therapy, Patient Care Team, Pediatrics, Personal Experience, professional knowledge, Questionnaire, Raphael MF, Schieving J, self-reflection, Skill, University Hospital, van Capelle C, Work, workload, Young Adult
Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advance Care Planning, Affinita MC, anxiety, Article, Artificial Ventilation, Avagnina I, Benini F, Brain Metastasis, Child, Childhood Cancer, Clinical Article, cognitive behavioral therapy, colonoscopy, community hospital, computed tomographic angiography, doctor patient relationship, Dysphagia, Dyspnea, facial nerve paralysis, Female, Follow Up, Frontiers in Oncology, Headache, Health Promotion, hearing impairment, hematothorax, hemoptysis, Hospitalization, Human, Intensive Care Unit, Life Expectancy, Morphine, nerve paralysis, neurofibromatosis type 1, nuclear magnetic resonance imaging, Oncology, oncology ward, Palliative Therapy, Patient Referral, Quality Of Life, Questionnaire, refugee, Rhabdomyosarcoma, Santini A, Terminal Care, thorax pain, tracheobronchial toilet, Verbal Communication, visual field, Zanin A
Taboo words in pediatric oncology: Communication experiences of nurses and physicians with dying children and their families
Tags: 2023, 2025 SE1 - Oncology, Advance Care Planning, Article, Aydin A, Bingol H, Child, Childhood Cancer, Clinical Article, Diagnosis, Dying, European Journal Of Oncology Nursing, Family, Female, Health Care Personnel, Human, Interpersonal Communication, Kebudi R, Male, Nurse, Oncology, Palliative Therapy, Physician, Qualitative Research, Savas EH, taboo, Terminal Care, Thematic Analysis
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Tags: 2023, 2025 SE1 - Oncology, Adolescent, Advance Care Planning, Article, Benchmarking, Bogetz JF, Child, Chromosome Disorder, Clinician, Consultation, Diagnosis, Distress Syndrome, Dyspnea, Fatigue, Friedrichsdorf SJ, Hospital Pediatrics, Hospitalization, Human, Length Of Stay, Male, O'Riordan DL, Pain, Palliative Therapy, Pantilat SZ, Patient Referral, Postier AC, psychosocial care, Purser L, Root MC, solid tumor, Total Quality Management, Treatment Outcome
Advancing Advance Care Planning: Evaluating a Revised Version of Voicing My CHOiCES
Tags: 2024, Adolescent, Adult, Advance Care Planning, Article, Bedoya S, Child, Ciampa D, Female, Frediani J, Gordon M, Human, identifiable information, Journal of Palliative Medicine, Kasper K, Male, March List 2025, Moynihan L, Pao M, Quality Of Life, Ruble K, Structured Interview, Wiener L, Young Adult, Zabokrtsky K
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Tags: 2024, Adolescent, Adult, Advance Care Planning, anxiety, Bodhanwala M, Cardiology In The Young, Child, Clinical Article, Cognition, conference abstract, Congenital Heart Disease, Consultation, Controlled Study, Dinand V, Dixit P, February List 2025, Human, intervention study, Jain S, Khanna S, Male, Medical Decision Making, Mishra J, oxygen concentrator, Palliative Therapy, Panda B, Patient Referral, Pediatric Quality of Life Inventory, Prabhu SS, Prognosis, Quality Of Life, Reoperation, Sumitra V, Surgery, Terminal Care
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study
Tags: 2024, Adult, Advance Care Planning, Aris-Meijer JL, Article, Caregiver Support, Child, Children, Clinical Article, Clinical Decision Making, Cross-sectional Study, Family Centered Care, Female, Follow Up, Health Care Personnel, health care planning, Hofman SC, Hospitalization, Human, illness trajectory, Interpersonal Communication, Joren CY, Kars MC, Kremer LCM, Likert scale, Male, mobile application, Mortality, November List 2024, Palliative Therapy, Perception, person centered care, Questionnaire, Rippen-Wagner H, Schuiling-Otten MA, Semi Structured Interview, shared decision making, Slingerland-Blom R, Terminal Care, Thematic Analysis, van der Velden C, Verhagen AAE
Context of death and end-of-life decision-making in paediatric patients with neurological conditions
Tags: 2023, Adolescent, Adult, Advance Care Planning, Age, Aguirre IA, Article, brain tumor/th [Therapy], Carmona-Nunez A, Cerebral Palsy/th [Therapy], Child, Controlled Study, Death, Demographics, Echaniz JS, Follow Up, Hospital Admission, Human, hypoxic ischemic encephalopathy/th [Therapy], Intensive Care Unit, Irazabal GM, Lopez-Bayon J, Major Clinical Study, Medical Decision Making, Medicina Paliativa, Murguiondo MI, neurologic disease/th [Therapy], October List 2024, Palliative Therapy, patient coding, pediatric patient, Pejenaute IS, Preschool Child, Retrospective Study, Sarriegui AZ, Terminal Care, Treatment Withdrawal, ward
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death
Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life
Tags: 2024, Advance Care Planning, Article, Casas J, Caucasian, Child, Cross-sectional Study, date of death, Ethnicity, Female, Hispanic, Human, Infant, Journal of Pain and Symptom Management, Kim E, Major Clinical Study, Makinde KW, Male, Medical Record Review, mode of death, Multicenter Study, Palliative Therapy, Peckham-Gregory E, Personal Experience, race, September List 2024, Silverstein A, Surgery, Terminal Care, Texas, Therapy
Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning
Tags: 2024, Adolescent, Adult, Advance Care Planning, Bernacki RE, Cohort Analysis, Critical Illness, DeCourcey DD, Feasibility Study, Female, Human, Human Relation, Interpersonal Communication, JAMA Network Open, Lach S, Male, Nava-Coulter B, Parent, Pediatrics, Pilot Study, Procedures, Psychology, September List 2024, Therapy, Wolfe J, Xiong N, Young Adult
Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis
Tags: 2024, Advance Care Planning, August List 2024, Bailey V, Child, Cinahl, Delgado-Corcoran C, heart disease, Human, Lipsitz S, meta analysis, Moynihan KM, outcome assessment, Palliative Therapy, Parental Stress, patient coding, Pediatric Cardiology, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, Quality Of Life, Resuscitation, Review, Rosenberg AR, Rotman C, Songer K, Systematic Review, Ting J, Web of Science
Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit
Tags: 2024, Advance Care Planning, American Journal of Perinatology, Article, August List 2024, Caregiver, Controlled Study, Cost Effectiveness Analysis, Cross-sectional Study, Cummings C, DeCourcey DD, Emotional Stress, Female, Follow Up, Health Care Cost, Hospital Anxiety and Depression Scale, Human, Infant, Intensive Care Unit, Lin M, Major Clinical Study, Neonatal Intensive Care Unit, Palliative Therapy, Patient Preference, psychiatrist, Quality Of Life, Questionnaire, Resuscitation, Sayeed S, Social Support, Terminal Care, Vitcov G, Williams D, Wolfe J
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2024, acquired immune deficiency syndrome, Adult, Advance Care Planning, American Journal of Perinatology, Article, August List 2024, bleeding, Brain Damage, Caregiver, Central Nervous System, cerebrospinal fluid drainage system, Child, climate change, Clinical Decision Making, Cross-sectional Study, Cummings C, Death, DeCourcey DD, End Of Life, Follow Up, Gestational Age, Health Care Personnel, Human, Human Immunodeficiency Virus, Infant, infection, Kidney Failure, Lin M, Medical Care, multiple organ failure, Neonatal Intensive Care Unit, Newborn, Quality Of Life, respiratory failure, Sayeed S, Social Support, Terminal Care, Tracheostomy, Vitcov G, Williams D, Wolfe J
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T
The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths
Tags: 2024, Adult, Advance Care Planning, Aged, Article, Artificial Ventilation, BMC Palliative Care, Child, Cohort Analysis, Controlled Study, data warehouse, Female, Health Care Cost, Health Care Delivery, Health Care Utilization, Human, Infant, July List 2024, Kim CH, Kim MS, Lee J, Lee JW, Major Clinical Study, Male, Medical Record, Medical Records, Neuromuscular Disease, Newborn, Opiate, Palliative Care, Palliative Therapy, Quality Of Life, Resuscitation, Retrospective Study, South Korea, Terminal Care, Young Adult
Factors associated with family decision-making after pediatric out-of-hospital cardiac arrest
Tags: 2024, Adolescent, Advance Care Planning, Article, Child, Clinical Feature, Consultation, Controlled Study, Decision Making, do not intubate order, do not resuscitate order, Family Decision Making, feeding tube, Female, Frelinger JM, Hospitalization, Hospitals Pediatric, Human, Intensive Care Unit, July List 2024, Klein MJ, living will, Major Clinical Study, Male, Medical Decision Making, Newth CJL, out of hospital cardiac arrest, Palliative Therapy, Pediatric Intensive Care Unit, Resuscitation, Ross PA, social determinants of health, Tan JM, tertiary health care, Tracheostomy, Winter MC
The ROAR Score: Quantifying Risk of Acute Return to the Hospital in Pediatric Hospice Patients
Tags: 2024, Adult, Advance Care Planning, Caregiver, Child, conference abstract, Family Stress, Female, Hospice, Hospice Care, hospice patient, Human, Journal of Pain and Symptom Management, June List 2024, Maddox K, Male, Medicaid, Newcomer K, Nurse, Palliative Therapy, professionalism, scoring system, shared decision making, Teamwork
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Has Pediatric Palliative Care Become Too Deferential? A Challenge To and For the Field
Tags: 2024, Advance Care Planning, Caregiver, Child, conference abstract, Controlled Study, Coping, Distress Syndrome, Drug Administration, Family Centered Care, Fatigue, Health Care Personnel, Human, Humphrey LH, Jacobowski N, Journal of Pain and Symptom Management, June List 2024, Medical Specialist, Palliative Therapy, professionalism, psychiatrist, psychological defense, Psychologist, Self Report, shared decision making, Teamwork, Truba NP, vignette
Psychiatry and interdisciplinary pediatric palliative care: a scoping review
Tags: 2024, Adolescent, adolescents and young adults (AYAs), Advance Care Planning, Annals Of Palliative Medicine, Child, Cress AE, Humans, Interdisciplinary palliative care (interdisciplinary PC), May List 2024, Medical Oncology, Neoplasmspsychology, Palliative Care, Palliative Caremethods, Pediatric Palliative Care (ppc), Psychiatry, Psychology, Young Adult
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Palliative care for infants with life-limiting conditions: Integrative review
Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy
Early Versus Late Outpatient Pediatric Palliative Care Consultation and Its Association With End-of-Life Outcomes in Children with Cancer
Parent experience of advance care planning: reconstructing meaning - grounded theory
A One Day Paediatric Palliative Care Study Day Improves Skills
Pediatric Advance Care Planning: A Scoping Review
Parental Ethical Decision Making and Implications for Advance Care Planning: A Systematic Review and Secondary Analysis of Qualitative Literature from England and Wales, Germany, and the Netherlands
Tags: 2023, Advance Care Planning, August List 2040, care behavior, Child, Decision Making, England, Ethical Decision Making, Ethics, Female, Germany, Human, Journal of Palliative Medicine, law suit, Male, Neefjes V, Netherlands, Qualitative Research, Review, Secondary Analysis, Systematic Review, Thematic Analysis, theoretical study, Wales
The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training
Tags: 2023, Advance Care Planning, Article, August List 2030, Awareness, Child, Comfort, Conversation, Doherty M, Frenette M, Gujral P, Hospice Care, Human, Lusney N, Medical Education, Neonatology, Nurse, Palliative And Supportive Care, Palliative Therapy, Physician, Skill, Social Worker, tertiary care center, Thematic Analysis, van Breemen C
Are we on the same page? Exploring pediatric patients' involvement with advance care planning
Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult
You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition
Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Tags: 2021, Advance Care Planning, Article, Bader P, Bereavement Counseling, Bereavement Support, Cause Of Death, Child, Children, Controlled Study, Corbacioglu S, Dalissier A, Descriptive Research, Ethics, Female, Galimard JE, Gjergji M, Hematopoietic stem cell transplantation, Hematopoietic Stem Cells, Home, Hospice, Hospital, Human, Hutt D, in-hospital mortality, July List 2023, Kenyon M, Kozijn A, Liptrott S, Major Clinical Study, Male, Mekelenkamp H, Mortality, Murray J, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Place Of Death, relapse, Retrospective Study, Schroder T, Spiritual Care, Stem Cell Transplantation, Trigoso E
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2023, Advance Care Planning, American Journal of Perinatology, Article, Child, Cummings C, Decision Making, DeCourcey DD, Expectation, Human, Infant, Infant Newborn, July List 2023, Lin M, Neonatal Intensive Care Unit, outcome assessment, rank sum test, Satisfaction, Sayeed S, shared decision making, Vitcov G, Williams D, Wolfe J
Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases
Tags: 2022, Adult, Advance Care Planning, Aoun SM, Article, attitude to illness, body movement, Caregiver, Child Care, Children, Cohort Analysis, collaborative care team, Content Analysis, Conversation, Disease Burden, Family Centered Care, Family Decision Making, Feasibility Study, Female, Fratantoni K, Human, Human Relation, July List 2023, Livingston J, Lyon ME, Palliative Therapy, Parent, Parental Attitude, pediatric patient, psychosocial care, Qualitative Analysis, Rare Disease, Schellinger SE, social connectedness, videorecording
Children's complex health: Maternal experiences of care and decision making
Tags: 2023, Advance Care Planning, Article, Child, Community Health Nursing, coronavirus disease 2019, Decision Making, Female, Godbold R, Human, Journal Of Child Health Care, Long Term Care, May List 2023, Mother, Only Child, Pandemic, Qualitative Research, Thematic Analysis, Voice, VULNERABILITY, Willis E
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Tags: 2023, Advance Care Planning, April List 2023, Article, Astigarraga I, Cardiovascular Disease, Carmona-Nunez A, Child, Childhood Mortality, Controlled Study, Decision Making, Demographics, Documentation, Drug Withdrawal, Female, Hospitalized Child, Human, Infant, Intensive Care Unit, Journal of Paediatrics and Child Health, Life Sustaining Treatment, Lopez-Bayon J, Major Clinical Study, Male, Martin-Irazabal G, Medical Record, Nervous System, Observational Study, Only Child, Palliative Therapy, pediatric patient, Respiratory Tract Disease, Resuscitation, Retrospective Study, Sanchez-Echaniz J, Serrano-Pejenaute I, Treatment Withdrawal, Zorrilla-Sarriegui A
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V