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Tags: Bernacki R

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Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness

Objectives: To develop a generalizable advance care planning (ACP) intervention for children, adolescents, and young adults with serious illness using a multistage, stakeholder-driven approach. Study design: We first convened an expert panel of…

Tags: 2021, Bernacki R, conversations guides decision making intervention development life-limiting illness life-threatening illness parents pediatric palliative care qualitative research stakeholder engagement, DeCourcey DD, Journal of Pediatrics, March 2021 List, Partin L, Revette A, Wolfe J

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