Pediatric Advance Care Planning: A Scoping Review
Title
Pediatric Advance Care Planning: A Scoping Review
Creator
Lusney N; van Breemen C; Lim E; Pawliuk C; Hussein Z
Identifier
Publisher
Children
Date
2023
Subject
pediatric palliative care; scoping review; Advance Care Planning; pediatric advance care planning
Description
To assess current practice and provide a basis for a provincial template, clinicians at a Canadian pediatric hospice reviewed the literature surrounding pediatric advance care planning (pACP) documentation, process, and implementation for children/youth. The scoping review protocol was developed in accordance with the Joanna Briggs Institute methodology for scoping reviews, and was prospectively registered on the Open Science Framework. MEDLINE, Embase, CINAHL, the Web of Science Core Collection, and Google Scholar, as well as sources of unpublished studies and grey literature, were reviewed. Sixty-four articles met the criteria. Fifteen pACP documentation forms/tools were also identified. Overall, the included articles highlighted that pACP should be a structured, collaborative and iterative process between the family and a trusted or relevant healthcare provider, encompassing medical and non-medical issues. Few articles provided insights into specific elements recommended for advance directive forms. Identified strategies for implementation included a structured, step-by-step pACP interventional tool along with ongoing training, mentorship, and defined organizational structures for the clinician. No single specific ACP tool was acknowledged as the gold standard. Use of a pACP tool, along with ongoing provider education and communication skill development, standardized/accessible documentation, and system-wide quality improvement support, were noted as integral components of pACP.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
September List 2023
URL Address
Collection
Citation
Lusney N; van Breemen C; Lim E; Pawliuk C; Hussein Z, “Pediatric Advance Care Planning: A Scoping Review,” Pediatric Palliative Care Library, accessed April 28, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19298.