Browse Items (80 total)
- Tags: Diagnosis
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Starting out in haziness': Parental experiences surrounding the diagnosis of their child's non-malignant life-limiting condition in Ireland
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Rett's syndrome: Characterization of respiratory patterns and sleep
Tags: 1987, abnormal respiratory problems, abnormal sleep patterns, Annals Of Neurology, ataxia, Autism, breathing difficulties, Central Nervous System, characteristics, Child, Dementia, Diagnosis, etiology, Frost Jr J D, Glaze D G, heredity, Human, hyperpnea, Major Clinical Study, Percy A K, Priority Journal, Respiratory System, Rett syndrome, Seizure, Sleep, sleep disturbance, Trajectory, Zoghbi H Y
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Communication and the Appraisal of Uncertainty: Exploring Parents' Communication with Credible Authorities in the Context of Chronic Childhood Illness
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
End of life care experience at the peadiatic oncology unit at the uganda cancer institute: What role can oncology nurses play?
Tags: 2018, Adolescent, Adult, Advanced Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Cancer Survival, Child, Clinical Article, Clinician, conference abstract, Coordination, Developing World 2018 List, Diagnosis, Dying, Female, Human, Male, Mortality Rate, Multidisciplinary team, Mulyowa I, oncology nurse, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Quality Of Life, Terminal Care
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Bereavement follow-up: Listening and learning
Tags: 2018, Bereavement, Child, Clinical Article, conference abstract, Consterdine K, Consultation, Diagnosis, Female, Follow Up, genetic transcription, Human, Intensivist, Learning, Male, Memory, November 2018 List, Nurse, Pediatric Critical Care Medicine, Ryan C, Staff, Subramanian G, Terminal Care
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Changing landscape of paediatric palliative care
Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
"I don't want this to be in my biography": A qualitative study of the experiences of grandparents losing a grandchild due to a neurological or oncological disease
Tags: 2018, August 2018 List, Becker G, Bergstrasser E, Cause Of Death, Child, Clinical Article, Comfort, conference abstract, Diagnosis, Flury M, friend, grandchild, grandparent, Human, literature, Male, Memory, Oncology, Orellana-Rios C, Palliative Medicine, Palliative Therapy, Qualitative Research, Semi Structured Interview, son, Switzerland, Terminal Care
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team
Tags: 2018, Analysis of Variance, April 2018 List, Article, Attention, Bace S, Child, daily life activity, Darnall C, Diagnosis, Female, Human, Journal of Palliative Medicine, Longitudinal Studies, longitudinal study, Macfadyen A, Major Clinical Study, Male, Metronidazole, minimal clinically important difference, Only Child, Palliative Care, Palliative Therapy, physical model, Prospective Study, Quality Of Life, Statistical Significance, Vail C, Weaver M, Wichman C
Prevalence and management of dystonia in a paediatric palliative care cohort
Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T
The natural history of Unverricht-Lundborg disease: a report of eight genetically proven cases
Tags: 2008, Adolescent, Adult, Age Factors, Atrophy/complications/pathology, Auditory, Backlog, Bhatia KP, Brain Stem/physiology, Brain/pathology/physiopathology, Cerebellar Ataxia/complications/diagnosis, Cerebellum/pathology/physiopathology, Chew NK, Child, Chromosomes, Cordivari C, Dementia/complications/diagnosis, Diagnosis, Differential, Disease Progression, Dystonia/complications/diagnosis, Edwards MJ, Electroencephalography, Electromyography, Evoked Potentials, Evoked Potentials/physiology, Female, Human, Humans, Journal Article, Kim HT, Magnetic Resonance Imaging, Male, Martino D, Mir P, Movement Disorders: Official Journal Of The Movement Disorder Society, Myoclonus/complications/diagnosis, Neuropsychological Tests, Pair 21/genetics, Q3 Scoping Review Results, Quinn NP, Schneider SA, Seizures/complications/diagnosis, Severity Of Illness Index, Unverricht-Lundborg Syndrome/diagnosis/genetics/physiopathology
Lung disease in Niemann-Pick disease
Tags: 2007, Backlog, Biopsy, Bronchoalveolar Lavage, Bronchoalveolar Lavage Fluid/cytology, Child, Clement A, de Villemeur TB, Diagnosis, Differential, Fauroux B, Female, Guillemot N, Humans, Infant, Interstitial/diagnosis/etiology/physiopathology, Journal Article, Lung Diseases, Male, Niemann-Pick Diseases/complications, Pediatric Pulmonology, Preschool, Prognosis, Q3 Scoping Review Results, Radiography, Respiratory Function Tests, Severity Of Illness Index, Thoracic, Troadec C
Late consequences of chronic pediatric illness
Tags: 2007, Adolescent, Arthritis, Backlog, Child, Chronic Disease/psychology, Congenital/diagnosis/epidemiology/psychology, Cystic Fibrosis/diagnosis/epidemiology/psychology, Diagnosis, Differential, Heart Defects, Humans, Journal Article, Juvenile Rheumatoid/diagnosis/epidemiology/psychology, Mental Disorders/diagnosis/epidemiology/etiology, Pao M, The Psychiatric Clinics Of North America, Time Factors, Turkel S
Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
Tags: 2010, Backlog, Birnkrant DJ, Bushby K, Case LE, Clemens PR, Constantin C, Cripe L, Diagnosis, Differential, DMD Care Considerations Working Group, Duchenne/diagnosis/genetics/therapy, Female, Finkel R, Glucocorticoids/administration & dosage/adverse effects/therapeutic use, Humans, Journal Article, Kaul A, Kinnett K, Lancet Neurology, Male, McDonald C, Muscular Dystrophy, Pandya S, Poysky J, Shapiro F, Tomezsko J
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Lack of utility of abdominal x-rays in the evaluation of children with constipation: comparison of different scoring methods
Tags: 2010, Abdominal/methods, Backlog, Buonomo C, Child, Chitkara D, Colon/physiopathology/radiography, Colonic Diseases, Constipation/physiopathology/radiography, Diagnosis, Differential, Fecal Incontinence/physiopathology/radiography, Feces, Female, Fishman L, Functional/physiopathology/radiography, Gastrointestinal Transit, Humans, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Male, Nurko S, Observer Variation, Pensabene L, Radiography, Retrospective Studies, ROC Curve, X-Rays
Diagnostic yield of brain biopsies in children presenting to neurology
Tags: 2008, Backlog, Biopsy/statistics & numerical data, Brain Diseases/pathology, Brain/pathology, Child, Children W/SNI, Decision Trees, Diagnosis, Differential, Epilepsy/pathology, Female, Hawkins C, Humans, Infant, Journal Article, Journal of Child Neurology, Likelihood Functions, Male, Neurodegenerative Diseases/pathology, Odds Ratio, Outcome And Process Assessment (health Care), Predictive Value of Tests, Preschool, Retrospective Studies, Vasculitis/pathology, Venkateswaran S, Wassmer E
Gastroesophageal reflux
Tags: 2007, Adolescent, Backlog, Child, Diagnosis, Diagnostic Techniques, Differential, Digestive System, Enzyme Inhibitors/therapeutic use, Gastroesophageal Reflux/complications/diagnosis/physiopathology/therapy, Histamine H2 Antagonists/therapeutic use, Humans, Infant, Journal Article, Medical History Taking/methods, Michail S, Nervous System Diseases/complications, Nutritional Failure, Pediatrics In Review / American Academy Of Pediatrics, Pediatrics/methods, Preschool, Prognosis, Proton Pumps/antagonists & inhibitors, Respiratory Tract Diseases/etiology/prevention & control, Vomiting/diagnosis/etiology
An unusual clinical and biochemical presentation of ornithine transcarbamylase deficiency in a male patient
Tags: 2006, Amino Acid Metabolism, Amino Acids/blood, Backlog, Bellizzi A, Burlina AB, Burlina AP, Child, Di Palma A, Diagnosis, Differential, Fatal Outcome, Humans, Inborn Errors/diagnosis, Journal Article, Journal Of Inherited Metabolic Disease, Male, Morrone A, Ornithine Carbamoyltransferase Deficiency Disease/blood/diagnosis, Ornithine Carbamoyltransferase/deficiency, Orotic Acid/urine, Peduto A, Preschool, Q3 Scoping Review Results, Sperli D