Browse Items (8 total)
- Tags: daily life activity
Influence of the functional intervention on the development of essential social skills in children with life-limiting conditions
Palliative Care for Childhood Cancer
Tags: 2022, 2023 SE3 - Oncology, Advanced Cancer, Cancer Palliative Therapy, Cancer Patient, Cause Of Death, Child, Child Health Care, childhood cancer/th [Therapy], Children, collaborative care team, daily life activity, Disease Burden, Editorial, evidence based practice, Family, Health Care Access, health care need, Health Care Personnel, health care planning, Health Care Quality, Hematopoietic stem cell transplantation, Home Care, Hope, Hospital care, Human, illness trajectory, Medical Education, Michiels EM, Nausea, Netherlands, Nurse, Pain, Palliative Care, patient worry, personalized cancer therapy, Physician, Practice Guideline, Quality Of Life, Vomiting
Paediatric Palliative Care in a Reference Centre of Inherited Metabolic Diseases
Tags: 2023, Article, Child, Cohort Analysis, daily life activity, Demography, disorders of mitochondrial functions, disorders of peroxisomal functions, Endocrine, metabolic & immune disorders drug targets, Female, Ferreira AC, Gastrostomy, Home Visit, Hospital Admission, Human, lysosome, Major Clinical Study, Male, Metabolic Diseases, Metabolic Disorder, Neurologic Disease, Noninvasive Ventilation, November List 2028, Outpatient, Paiva M, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, peroxisome, Quality Of Life, Santos S, Saraiva BM, School Child, Surgery, systemic disease
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
Preliminary Study of Neurodevelopmental Outcomes and Parenting Stress in Pediatric Mitochondrial Disease
Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory
Care with love: Parents' experiences in caring their child with cancer under palliative care
Tags: 2018, Allenidekania A, Caregiver, Child, Clinical Article, conference abstract, daily life activity, Data Analysis, Fatigue, Fear, Female, Human, Interview, jealousy, Male, Malignant Neoplasm, Nafratilova M, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Phenomenology, primary medical care, Sibling, Uncertainty, Wanda D
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team
Tags: 2018, Analysis of Variance, April 2018 List, Article, Attention, Bace S, Child, daily life activity, Darnall C, Diagnosis, Female, Human, Journal of Palliative Medicine, Longitudinal Studies, longitudinal study, Macfadyen A, Major Clinical Study, Male, Metronidazole, minimal clinically important difference, Only Child, Palliative Care, Palliative Therapy, physical model, Prospective Study, Quality Of Life, Statistical Significance, Vail C, Weaver M, Wichman C