Browse Items (17 total)
- Tags: Congenital Heart Disease
Pediatric palliative care in patients with cardiovascular disease: The basics of why, when, where, who and how
Tags: 2025, Batten LA, Cardiologist, Cardiovascular Disease, Child, community resource, Congenital Heart Disease, Consultation, Critical Illness, Drug Therapy, heart disease, Human, Jones M, Lund H, March List 2025, Medical Decision Making, Merritt B, Nix K, Palliative Therapy, Progress in Pediatric Cardiology, Review, Smith L, Sprague R, Terminal Care, Therapy
Utilization of a prenatal palliative care consultation pathway for congenital heart disease
Tags: 2024, Cardiology In The Young, conference abstract, congenital disorder, Congenital Heart Disease, Consultation, Diagnosis, Distress Syndrome, Emotional Stress, February List 2025, Fetus, Gandhi R, heart disease, Human, Infant, Mikal M, Newborn, Palliative Therapy, Patient Referral, Retrospective Study, Spiritual Care, Walsh S
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Tags: 2024, Adolescent, Adult, Advance Care Planning, anxiety, Bodhanwala M, Cardiology In The Young, Child, Clinical Article, Cognition, conference abstract, Congenital Heart Disease, Consultation, Controlled Study, Dinand V, Dixit P, February List 2025, Human, intervention study, Jain S, Khanna S, Male, Medical Decision Making, Mishra J, oxygen concentrator, Palliative Therapy, Panda B, Patient Referral, Pediatric Quality of Life Inventory, Prabhu SS, Prognosis, Quality Of Life, Reoperation, Sumitra V, Surgery, Terminal Care
THE WEST MIDLANDS PERINATAL PALLIATIVE CARE SERVICE AUDIT ON REFERRALS, DIAGNOSES AND PROGNOSES OF BABIES WITH SEVERE CONDITIONS
Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18
Managing CHD in Tertiary NICU in Collaboration with a Cardiothoracic Center
Tags: 2024, adenosine/pv [Special Situation for Pharmacovigilance], Article, Artificial Ventilation, Birth Weight, Cardiologist, Cardiomyopathy, cardioversion, Chee YH, Congenital Heart Disease, diuretic agent/dt [Drug Therapy], diuretic agent/pv [Special Situation for Pharmacovigilance], Drug Withdrawal, Dunning-Davies B, flecainide/pv [Special Situation for Pharmacovigilance], Gestational Age, heart arrhythmia, heart failure/dt [Drug Therapy], heart tumor, Human, isoprenaline/pv [Special Situation for Pharmacovigilance], Kelsall W, Low Birth Weight, Male, Neonatal Intensive Care Unit, Newborn, Observational Study, Oxygen Therapy, Pediatric Cardiology, Pregnancy, Prematurity, propranolol/pv [Special Situation for Pharmacovigilance], prostaglandin E2/pv [Special Situation for Pharmacovigilance], Psychological Well-being, Retrospective Study, September List 2024, Singh Y, supraventricular tachycardia, tertiary care center, Yates R
Development of Specialty-Based Pediatric Palliative Care Clinics
Tags: 2024, Adolescent, Adult, Brooks JV, Child, Clinician, conference abstract, Congenital Heart Disease, Diagnosis, Ellis KL, Gunya EK, Human, Jersak T, Journal of Pain and Symptom Management, June List 2024, Kansas, Medical Specialist, Needs Assessment, Neuromuscular Disease, Palliative Therapy, Patient Referral, Pediatric Hospital, pharmaceutics, Sinclair C, Steinfeldt L, Telehealth, Therapy, Velasquez AL, Young Adult
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative Study
Tags: 2023, Article, Brannon M, breast feeding, breast pump, Brito S, Cerebral Palsy, Chahin N, Children, clinical assessment, Cognitive Defect, Cohort Analysis, Comparative Study, Congenital Heart Disease, Controlled Study, do not resuscitate order, Donor Milk, extracorporeal oxygenation, Family Centered Care, February List 2024, Female, Fox J, gastrointestinal disease, Genetic Disorder, Gestational Age, health disparity, Hendricks-Munoz KD, Hospital Admission, hospital discharge, Human, hypoxic ischemic encephalopathy, incurable disease, Infant, kidney disease, lactation, learning disorder, Length Of Stay, Life limiting condition, Lung Disease, Major Clinical Study, Male, McCarthy K, Mohammed T, Mortality, Neonatal Intensive Care Unit, Neurologic Disease, Nubayaat L, Nunlist S, nutritional deficiency, Retrospective Study, Seizure, sensory dysfunction, Williams A, Xu J
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Pediatric Cardiac Critical Care Transport and Palliative Care: A Case Series
Use of Synchronous Digital Health Technologies for the Care of Children With Special Health Care Needs and Their Families: Scoping Review
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Tags: 2019, anxiety, Article, Brumarie L, Callahan K, Child Parent Relation, Cohort Analysis, Comfort, Congenital Heart Disease, Controlled Study, emotional attachment, Female, Health Care Quality, Human, Infant, Journal of perinatology : official journal of the California Perinatal Association., Male, Mental Stress, Newborn, November 2019 List, Palliative Therapy, Parravicini E, Prospective Study, Schechter S, Steinwurtzel R
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Hypoplastic left heart syndrome in US military family members: trends in intervention, survival, and prevalence.
The Role Of Pediatric Palliative Care In Complex Congenital Heart Disease: Three Illustrative Cases
Characterizing Mortality In Pediatric Tracheostomy Patients
To assess the longitudinal risk of death following tracheostomy in the pediatric age group.
STUDY DESIGN:
Retrospective cohort study.
METHODS:
Hospital records of 513 children (≤18 years) at a tertiary care children's hospital…