Browse Items (32 total)
- Tags: April List 2024
Gaining an Empathetic Insight into Parenting: Evaluating Infant Simulator Dolls for Professional Learning
When paediatricians and families can't agree
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J
Empathic Care of Neonates: A Critical Literature Review
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
Changing the Landscape of the Neighborhood: The Expanding Role of the Pediatric Palliative Advanced Practice Registered Nurse
Tags: 2024, Adolescent, April List 2024, Article, Bass AK, Child, Consensus, Emergency Care, evidence based practice, Human, Journal of Hospice and Palliative Nursing, Medical Society, neighborhood, Overstreet K, Palliative Therapy, pharmacology, registered nurse, Sartor N, special situation for pharmacovigilance
Perceived potentially inappropriate treatment in the PICU: frequency, contributing factors and the distress it triggers
Social work practice in perinatal palliative care: an overview
Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker
Exploring Parent Experiences With Early Palliative Care Practices in the NICU
End of life care for infants, children and young people with life-limiting conditions
Flourishing, religion, and burnout among caregivers working in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Article, Burnout, Caregiver, Child, Controlled Study, Convenience Sample, Coping, Cross-sectional Study, Doolittle BR, Dying, Female, Human, International Journal of Psychiatry in Medicine, Job Satisfaction, job stress, life satisfaction, Male, Multidisciplinary team, Oberholzer AE, Palliative Care, Palliative Therapy, Prevalence, Qualitative Analysis, Religion, South Africa, terminally Ill Patient, work environment
The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care
Tags: 2024, Adolescent, April List 2024, Article, Caregiver, Child, Clinical Article, clinical assessment tool, Clinical Practice, Clinics and Practice, Coping, Coping Strategy Questionnaire, Family, Female, grandchild, grandparent, Human, Male, Nogueira AJ, Palliative Care, Palliative Therapy, Portugal, psychologic assessment, Ribeiro MT, Semi Structured Interview, Sibling, Social Support
Psychometrics assessment of ethical decision-making around end-of-life care scale for adolescents in the final stage of life
Tags: 2023, Adolescent, April List 2024, Article, case control study, Child, confirmatory factor analysis, Cronbach alpha coefficient, Decision Making, Ethical Decision Making, exploratory factor analysis, Female, Frontiers in Pediatrics, Health Care Personnel, Hosseiny SMM, Human, Human Experiment, Internal Consistency, Iran, Khazaei S, Male, Masoumi SZ, Mohammadi F, nurse manager, Psychometrics, psychometry, Reliability, Terminal Care, Validity
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease
Consumer and provider perceptions of the specialist unit model of care: A qualitative study
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Collaboration: How does it work according to therapists and parents of young children? A systematic review
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Tags: 2024, Adaptation Psychological, April List 2024, Attention, Castor C, Child, Emotions, Hermeneutics, Humans, International Journal Of Qualitative Studies On Health And Well-being, Kittelsen TB, Kvarme LG, Lee A, Life-limiting Condition, Life-threatening Condition, lived experience, Male, paediatric palliative care, Parents, Sibling, Siblings, Winger A
Survival, short-term morbidity of extremely low gestational age infants and their predictors
Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis
How to move forward in shared decision-making in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Aris-Meijer JL, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Decision Making, Human, Infant, Joren CY, Lantos J, Palliative Care, Palliative Therapy, shared decision making, special situation for pharmacovigilance, Therapy, Verhagen AAE
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Tags: 2024, Adult, April List 2024, Article, Beck AF, Child, Chronic Disease, Cohort Analysis, Controlled Study, Corley AMS, Cortezzo DE, economic inequality, Ethnicity, Female, Gestational Age, Hispanic, Human, Jones MN, Journal of Pediatrics, Major Clinical Study, Male, Medicaid, Morbidity, Mortality, Multidisciplinary team, Neurologic Examination, Only Child, Patient Referral, primary medical care, racial disparity, racism, Referral And Consultation, Retrospective Study, Simpson SL, Socioeconomic Factors, special situation for pharmacovigilance, tertiary care center, Thienprayoon R, Thomson J
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Investigation of the impact of paediatric hospices on the quality of care of paediatric nurses
A "good" death in a pediatric ICU: Is it possible?
Grieving Children' Death in an Intensive Care Unit: Implementation of a Standardized Process
Monitoring of physiologic features and treatment aspects of children on home invasive mechanical ventilation
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery