Browse Items (99 total)
- Tags: Pregnancy
What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change
Facilitating home birth in perinatal palliative care: A case report
Tags: 2024, Bertaud S, Collaboration, Crudgington A, Decision Making, Decision Making Clinical, Family -- Education, Female, Harrop E, Home Childbirth, Hospice Care, Hypoplastic Left Heart Syndrome -- Diagnosis, Infant Newborn, Kirven R, Kirven T, Life Experiences, March List 2025, Multidisciplinary Care Team, Palliative Care -- In Infancy and Childhood, Palliative Medicine, Patient Care Plans, Perinatal Care, Perinatal Death, Pregnancy, Pregnancy Complications, Prenatal Diagnosis, Professional-family Relations, Spouses, Support Psychosocial, Wilkinson D
Factors Associated With Palliative Care Birth Planning at a Pediatric Hospital
Tags: 2024, Adult, Allen SS, Brown MF, February List 2025, Female, financial relationships., Friebert S, Grossoehme DH, Health Equity, Hospitals Pediatric, Humans, Journal of obstetric, gynecologic, and neonatal nursing, Kelly-Langen CA, Midwestern United States, Palliative Care, Palliative Care/methods, Patient Care Planning, Pediatrics, Perinatal Mortality, Pregnancy, Prenatal Care, Prenatal Care/methods, Retrospective Studies, Richner GJ
Continuing bonds in parents after a loss in pregnancy, or a death at or shortly after birth: A population-based study
Evaluation of a perinatal palliative care program by SWOT analysis
Tags: 2024, Adult, Article, Catapano F, Corvaglia LT, Diagnosis, Female, Human, Interpersonal Communication, Knowledge, Locatelli C, Major Clinical Study, Newborn, November List 2024, Nursing Care, Palliative Therapy, Patient Referral, Pediatric Research, Pregnancy, Prenatal Diagnosis, Quality Of Life, Ramacieri G, Retrospective Study, shared decision making, Sperti G
Voices of experience: insights from Dutch parents on periviability guidelines and personalisation
Tags: 2024, Archives of Disease in Childhood, Article, Clinical Article, de Boer A, De Proost L, extremely premature birth, Female, Gestational Age, Geurtzen R, Health Care Personnel, Hogeveen M, Human, Infant, Intensive Care, Interview, Male, Middle Aged, Neonatal Intensive Care Unit, October List 2024, Palliative Therapy, Parent, Pregnancy, Qualitative Research, Resuscitation, Surgery, Therapy, Verhagen E, Verweij EJTJ, Voice
Managing CHD in Tertiary NICU in Collaboration with a Cardiothoracic Center
Tags: 2024, adenosine/pv [Special Situation for Pharmacovigilance], Article, Artificial Ventilation, Birth Weight, Cardiologist, Cardiomyopathy, cardioversion, Chee YH, Congenital Heart Disease, diuretic agent/dt [Drug Therapy], diuretic agent/pv [Special Situation for Pharmacovigilance], Drug Withdrawal, Dunning-Davies B, flecainide/pv [Special Situation for Pharmacovigilance], Gestational Age, heart arrhythmia, heart failure/dt [Drug Therapy], heart tumor, Human, isoprenaline/pv [Special Situation for Pharmacovigilance], Kelsall W, Low Birth Weight, Male, Neonatal Intensive Care Unit, Newborn, Observational Study, Oxygen Therapy, Pediatric Cardiology, Pregnancy, Prematurity, propranolol/pv [Special Situation for Pharmacovigilance], prostaglandin E2/pv [Special Situation for Pharmacovigilance], Psychological Well-being, Retrospective Study, September List 2024, Singh Y, supraventricular tachycardia, tertiary care center, Yates R
The Special Delivery Unit: A Novel Concept for Mother-Baby Continuity for Major Fetal Abnormalities
Tags: 2024, American Journal of Perinatology, Anesthesiology, anxiety, Apgar score, Article, August List 2024, Bebbington MW, Birth Weight, Blood Transfusion, body mass, Cesarean Section, Clinical Outcome, colonoscopy, community hospital, Cost Effectiveness Analysis, diabetic ketoacidosis, electronic medical record, Female, Fetus, fetus disease, fetus echography, fetus surgery, Gestational Age, Health Care Access, Health Care Cost, Health Care Delivery, health Insurance, hospital discharge, Human, Intensive Care Unit, interatrial septum, Kosko A, Length Of Stay, Medical Education, Moise KJ, neuroprotection, newborn surgery, Nix M, obstetric delivery, obstetrical nursing, operating room, outcome assessment, oxygen consumption, Palliative Therapy, Parenteral Nutrition, patent ductus arteriosus, Patient Care, Patient Satisfaction, pharmacist, preeclampsia, Pregnancy, pregnant woman, Prenatal Care, Prenatal Diagnosis, puerperium, Resuscitation, Systematic Review, Teaching, telephone interview, Thomas H, wound infection
Short Term Coping-Behaviors and Postpartum Health in a Population-Based Study of Women with a Live Birth, Stillbirth, or Neonatal Death
Tags: 2024, Adaptation Psychological, Alcohol Drinking, Behavior, Christiansen-Lindquist L, complications, Confidence Intervals, Coping, Depression, Descriptive Statistics, Dudley D, Edinburgh Postnatal Depression Scale, Evaluation, Female, Funding Source, Hogue CJR, Human, July List 2024, Logistic Regression, Maternal And Child Health Journal, Maternal-Child Health, Odds Ratio, Perinatal Death, Postnatal Care, Pregnancy, Pregnancy Outcomes, Psychosocial Factors, scales, Smoking, Spirituality, Stanhope KK, Stoll BJ, Support Groups, Temple JR, Thematic Analysis, United States, Varner M, Women
Meaningful Display of Legacy Items Among Families Experiencing a Perinatal, Neonatal, or Infant Death
Tags: 2024, Bereavement, Cause Of Death, Child, Child Death, conference abstract, Controlled Study, Conversation, Family, Family Interaction, Female, fetus death, Gestational Age, Grief, Human, Infant, Interview, Journal of Pain and Symptom Management, June List 2024, Kaushik R, Mental Health, Newborn, Palliative Therapy, palmar dermatoglyphics, Pregnancy, Rodriguez M, Second Trimester Pregnancy, Smith V, third trimester pregnancy, University Hospital, Vandermeer R
Bereaved Parents' Change in Mental Health during a Dyadic Diary
Tags: 2024, anxiety, Aydin EN, Aykutoglu B, Bereavement, Buyukcan-Tetik A, Deryalar B, Diaries, Ergun TD, Evaluation, Female, Funding Source, Grief, Human, Journal of Loss and Trauma, June List 2024, Labor, Male, Mental Health, Parental Attitudes, Parents, Perinatal Death, Postnatal Period, Pregnancy, Psychosocial Factors, Sex Factors, Spouses, Topal MA, Women
"She was finally mine": the moral experience of families in the context of trisomy 13 and 18- a scoping review with thematic analysis
Tags: 2024, Bioethics, Bmc Medical Ethics, Child, Decision-making, Ethicists, Female, Goals Of Care, Health Personnel, Humans, Infant Newborn, May List 2024, Morals, Neonatal, neonatal intensive care, Palliative Care, Pregnancy, Prenatal Care, Ritchie Z, Shaul RZ, Smith MJ, Teachman G, Trisomy 13, Trisomy 13 Syndrome, Trisomy 18, Values
Effect of Sustaining a Perinatal Loss: Mothers’ Mental Health and Marital Satisfaction
Tags: 2024, Akhtar M, Attitude To Death, Bereavement, Child, Counselors, Cross Sectional Studies, Descriptive Statistics, Emotions, Evaluation, Female, Grief, Gynecologists, Human, Illness, Crisis and Loss, Infant, Infant Death, Khalid B, Marital Satisfaction, May List 2024, Mental Health, Mothers, Perinatal Death, Pregnancy, Psychological Well-being, Psychosocial Factors, Quantitative Studies, Questionnaires, scales, Snowball Sample, United States
Survival, short-term morbidity of extremely low gestational age infants and their predictors
Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis
Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria: Improving Prenatal Palliative Care Consultation through Quality Improvement
Tags: 2023, Ackerman O, Andescavage N, Article, Child, Congenital Malformation, Consultation, Controlled Study, Diagnosis, eligibility, February List 2024, Female, Fisher D, Human, Journal of Pain and Symptom Management, Lanzel AF, Lin M, Mahmood LA, outcome assessment, Palliative Therapy, Patient Referral, Pregnancy, Rholl E, Total Quality Management
Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Tags: 2023, Barrington KJ, Bélanger S, Bigras-Mercier A, Boutillier B, Butterflies, Children (Basel), Communication, Embleton ND, Janvier A, Larone Juneau A, Medical Education, multiple pregnancy, Neonatology, Nursing, October List 2047, Palliative Care, Parental Perspectives, Perinatal Loss, Pregnancy, Prematurity, triplets, Twins
Max's legacy: an evaluation of the impacts of baby loss on staff and families
Tags: 2023, Abortion, Spontaneous, After Care, Attitude Of Health Personnel, Bereavement, British Journal of Midwifery, Cater K, Crane R, Descriptive Research, Family Attitudes, Female, Focus Groups, Human, Multimethod Studies, Pregnancy, Pregnancy Trimester, First, Rostron H, Safety, Semi-Structured Interview, September List 2058, Thematic Analysis, United Kingdom, Whitehouse C
Fatal fetal anomaly: Experiences of women and their partners
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Uncertainty and probability in neonatal end-of-life decision-making: analysing real-time conversations between healthcare professionals and families of critically ill newborns
Tags: 2023, BMC Palliative Care, Child, Communication, Critical Illness, Critical Illness/th [therapy], Death, Decision Making, Delivery of Health Care, Fauchère JC, Female, Gubler D, Hendriks MJ, Humans, Infant Newborn, July List 2023, Limacher R, Parents, Pregnancy, Probability, Qualitative Research, Uncertainty
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal Death
Tags: 2022, April List 2023, Astell C, Australia, Bereavement, Boyle FM, Callander E, Clinical Trials, Crocker S, Dean J, Ellwood D, Female, Flenady V, Grief, Horey D, Infant Newborn, Internet, Jackson C, Lancaster A, Loughnan SA, Male, Parents, Perinatal Death, Pregnancy, Prevention and Control, Psychosocial Factors, Quality Of Life, scales, Shand A, Trials
Overview of Perinatal Palliative Care in Brazil
Tags: 2022, 2022 Special Edition Low Resource Setting Issue, America, Animals, Birth, Birth defects, Brazil, Brazilian Archives of Biology and Technology, Chordata, Community of Portuguese Language Countries, Congenital Abnormalities, Congenital malformations, de Moraes AMSM, drug abusers, drug users, epidemics, Epidemiology, Eukaryotes, Favero GM, gestation, Guidelines, Health Care, high Human Development Index countries, Hominidae, Homo, Human Diseases, Latin America, Malformations, Mammals, Man, microcephaly, Mothers, Neonates, Palliative Care, Pregnancy, Primates, Quality Of Life, Recommendations, Saffi Junior MC, South America, upper-middle income countries, Vertebrates, Women
Utilization of a Prenatal Palliative Care Consultation Pathway for Congenital Heart Disease
Over 4 decades, short- and long-term survival for children with congenital heart disease (CHD) has significantly increased. Those with complex CHD have a 1-year mortality rate of approximately 25%. Prenatal access to palliative care ensures…
Tags: 2023, Child, Congenital, Congenital Diagnosis, Congenital Therapy, Female, Gandhi R, Heart Defects, Human, Infant, Journal of Hospice and Palliative Nursing, March List 2023, Mikal M, Palliative Care, Palliative Care Psychology, Parents Psychology, Pregnancy, Referral And Consultation, Retrospective Study, Walsh SM
Parents' Decision-Making for their Foetus or Neonate with a Severe Congenital Heart Defect
Tags: Child, Female, Fetus, Infant, Male, Newborn, Parents, Qualitative Research, 2022, Adult, Brown H, Cardiology In The Young, Congenital, Decision-making, Delaney RK, Donofrio MT, Fagerlin A, Heart Defects, Humans, Karasawa M, Miller SG, November 2022 List, Ozanne EM, Patel A, Pinto NM, Pregnancy, Psychology, Stark LA, Steltzer MM, Watt MH, Zickmund SL
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Relational Sequelae of Fetal Death During the First Pregnancy: A Qualitative Study on the Subjective Perceptions of the Relationship Between Mothers and Their Adult Subsequent Firstborn Children
Addressing bias and disparities in periviable counseling and care
Perinatal Palliative Care in the Neonatal Intensive Care Unit
Tags: 2022, April 2022 List, Child, Critical Care Nursing Clinics Of North America, Female, Hospice And Palliative Care Nursing, Humans, Infant, Infant Newborn, Infant Newborn Diseases, Intensive Care Units Neonatal, Maher-Griffiths C, Memory Making, Neonatal Palliative Care, Palliative Care, Perinatal Care, Perinatal Palliative Care, Pregnancy, Resilience
Perinatal palliative care
Tags: 2022, Anales de Pediatría (English Edition), Bereavement, Boix H, Cernada M, Child, Couce ML, Espinosa Fernández MG, González-Pacheco N, Infant, Life-limiting Condition, Life-threatening Condition, March 2022 List, Martín-Ancel A, Neonatal Death, Newborn, Palliative Care, Pérez-Muñuzuri A, Perinatal Care, Perinatal Palliative Care, Pregnancy, Quality Of Life, Sánchez-Redondo MD
Creating a safe space': how perinatal palliative care coordinators navigate care and support for families
Tags: 2021, Care coordinator, Case Management, Côté-Arsenault D, Curriculum, December 2021 List, Delivery of Health Care, Denney-Koelsch E, Elliott G, Family, Fetal Diagnosis, Grief, International Journal of Palliative Nursing, Newborn Infant, Palliative Care, Perinatal Care, Perinatal Palliative Care, Pregnancy, Qualitative Research
Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Tags: 2020, Attitude To Health, Bhamidipalli SS, Decision Making, Fadel W, fetal viability, Financial Stress, Hoffman SM, Jeffries E, Kavanaugh K, Laitano T, October 2021 List, Paediatric and Perinatal Epidemiology, Parents, periviable delivery, Pilot Projects, Pregnancy, premature birth, Qualitative Research, Quality Of Life, Religion, Resuscitation Orders, Second Trimester Pregnancy, shared decision making, Social Support, Tucker EB, values clarification
Perinatal palliative care: a dedicated care pathway
Tags: 2021, Benini F, BMJ Supportive & Palliative Care, Cavicchiolo ME, Child, Hospice And Palliative Care Nursing, Hospice Care, Infant, Lago P, Life-limiting Diseases, life-threatening diseases, Neonatal mortality, neonatal pain management, Newborn Infant, October 2021 List, paediatric palliative care, Palliative Care, Parents, Perinatal Palliative Care, Pregnancy, Rusalen F, Salvadori S, Terminal Care
Neonatologists and neonatal nurses have positive attitudes towards perinatal end-of-life decisions, a nationwide survey
Tags: 2020, Acta Paediatrica, Attitude Of Health Personnel, Attitude questionnaire, Attitudes of neonatologists and neonatal nurses, Baes S, Beernaert K, Belgium, Chambaere K, Cohen J, Cools F, Death, Decision Making, Deliens L, Dombrecht L, End-of-life Decisions, Goossens L, July 2021 List, Naulaers G, Neonatal Nurses, Neonatologists, Newborn Infant, Optimism, Perinatal Death, Piette V, Pregnancy, Roets E, Surveys And Questionnaires, Terminal Care, Termination of pregnancy
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
The grief ritual of extracting and donating human milk after perinatal loss
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care
Effectiveness of psychotherapeutic interventions on psychological distress in women who have experienced perinatal loss: a systematic review protocol
Tags: 2020, Animals, Bright K S, Charrois E M, Chordata, Eukaryotes, gestation, Hayden K A, Hominidae, Homo, Human Diseases, Kingston D, Mammals, Man, Mental Disorders, Mental Health, mental illness, Meta-Analysis, Mughal M K, October 2020 List, Perinatal Mortality, Pregnancy, Pregnancy Complications, Pregnant Women, Primates, Psychotherapy, Randomized Controlled Trials, Systematic reviews, Vertebrates, Wajid A, Women
Extending the Concept of Advance Care Planning to the Perinatal Period
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F