Fatal fetal anomaly: Experiences of women and their partners

Title

Fatal fetal anomaly: Experiences of women and their partners

Creator

Jackson P; Power-Walsh S; Dennehy R; O'Donoghue K

Identifier

Publisher

Prenatal Diagnosis

Date

2023

Subject

Humans; Female; Male; Palliative Care; Quality of Health Care; Qualitative Research; Adaptation, Psychological; Pregnancy; Parents; Grief

Description

OBJECTIVE: This study explored the care experiences of parents whose pregnancy was diagnosed with a fatal fetal anomaly following the legalisation of termination of pregnancy in 2019 in Ireland., METHODS: A qualitative study using in-depth semi-structured interviews and interpretative phenomenological analysis was undertaken. Purpose ful sampling was used to recruit 10 parents, six women and four of their male partners. Parents recruited included those who terminated and continued the pregnancy., RESULTS: Three superordinate themes were identified: 'Attachment and coping', 'There's no place for you in the pregnancy world' and 'Consistency of quality care'. Parents shared the different approaches and level of attachment to their baby that supported their coping. Regardless of the level of attachment, many parents benefited from the acts of remembrance. Parents expressed how they no longer felt they belonged in the 'pregnancy world' and described a need for healthcare professionals to recognise their loss and create a safe and supportive environment in which they could share their grief. Despite this, parents' accounts highlighted variations and inconsistencies in care and service provision., CONCLUSION: Our study highlighted parents' need for consistent, well communicated, and comprehensive care, which encourages an individualised perinatal palliative care approach to meet parental needs.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August List 2023

Collection

Citation

Jackson P; Power-Walsh S; Dennehy R; O'Donoghue K, “Fatal fetal anomaly: Experiences of women and their partners,” Pediatric Palliative Care Library, accessed May 20, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19223.