Browse Items (38 total)
- Tags: Data Collection
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Using mobile phones, WhatsApp and phone interviews to explore how children's hospice nurses manage long-term relationships with parents: a feasibility pilot
Sleep disturbance in mucopolysaccharidosis type III (Sanfilippo syndrome): a survey of managing clinicians.
Tags: 2002, Behavior Therapy, characteristics, Clinical Genetics, Data Collection, Delatycki MB, Fraser J, Humans, MPS III, Mucopolysaccharidosis III/complications, NET Files, Physicians, Sleep Disorders/complications, Sleep Disorders/drug therapy, Sleep Disorders/therapy, sleep disturbance/disorders, Trajectory, Wraith JE
Clinician perspectives regarding the do-not-resuscitate order
Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy
Tags: 2008, Adolescent, Adult, Backlog, Body Temperature/physiology, Cerebral Palsy/complications/physiopathology, Child, Constipation/etiology, Data Collection, Englund E, European Journal of Paediatric Neurology, Extremities/blood supply/physiology, Female, Health Status, Humans, Journal Article, Male, Malker H, Muscle Tonus/physiology, Pain/etiology, Parents, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/etiology, Stener-Victorin E, Svedberg LE
Does palliative care improve quality? A survey of bereaved family members
Tags: 2008, 80 And Over, Adolescent, Adult, Aged, Backlog, Bereavement, Data Collection, Family, Female, Gelfman LP, Health Care, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Meier DE, Middle Aged, Morrison RS, New York, Pain/epidemiology/nursing, Palliative Care/statistics & Numerical Data, Patient Satisfaction/statistics & Numerical Data, Quality Assurance, Terminal Care, Treatment Outcome
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
Are we training our fellows adequately in delivering bad news to patients? A survey of hematology/oncology program directors
Tags: 2009, Attitude Of Health Personnel, Backlog, Butera JN, Castillo J, Communication, Data Collection, Education, Fellowships And Scholarships, Graduate/economics/standards, Hebert HD, Hematology/education, Humans, Journal Article, Journal of Palliative Medicine, Medical, Medical Oncology/education, Mega AE, Physician-patient Relations, Truth Disclosure, United States
Age limits and transition of health care in pediatric emergency medicine
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Backlog, Bryce L, Child, Cystic Fibrosis, Data Collection, Dobson JV, Emergency Medicine, Emergency Service, Female, General/statistics & numerical data, Glaeser PW, Hospital/statistics & numerical data, Hospitals, Humans, Journal Article, Losek JD, Male, Organizational Policy, Pediatric Emergency Care, Pediatric/statistics & Numerical Data, Pediatrics, Pregnancy, Pregnancy in Adolescence, United States
The role of nurses in physician-assisted deaths in Belgium
Tags: 2010, Active, Active/statistics & numerical data, Adult, Assisted/statistics & numerical data, Backlog, Belgium, Bilsen J, Canadian Medical Association Journal, Confidence Intervals, Data Collection, Decision Making, Deliens L, Euthanasia, Female, home care services, Humans, Inghelbrecht E, Journal Article, Logistic Models, Male, Middle Aged, Mortier F, Nurse's Role, Odds Ratio, Questionnaires, Suicide, Terminal Care/methods/statistics & numerical data, Voluntary/statistics & numerical data, Young Adult
Adolescents' reports of parental knowledge of adolescents' use of sexual health services and their reactions to mandated parental notification for prescription contraception
Tags: 2005, Adolescent, Adolescent Transitions, Attitudes, Backlog, Confidentiality/legislation & jurisprudence/psychology, Contraception Behavior, Data Collection, Empirical Approach, Family Planning Services/legislation & jurisprudence/utilization, Female, Finer LB, Genetics and Reproduction, Health Knowledge, Humans, JAMA, Jones RK, Journal Article, Logistic Models, Parental Notification/legislation & jurisprudence, Parents, Practice, Purcell A, Questionnaires, Sexual Behavior, Singh S, Unsafe Sex
Recruitment and retention in a longitudinal palliative care study.
Tags: 2005, Acquired Immunodeficiency Syndrome/therapy, Adult, Applied Nursing Research, Backlog, Caregivers, Clinical Nursing Research/organization & administration, Data Collection, et al, Feasibility Studies, Female, Focus Groups, Humans, Journal Article, Longitudinal Studies, Male, McSherry CB, Middle Aged, Neoplasms/therapy, Palliative Care, Parkas V, Patient Care Team, Patient Dropouts, Patient Selection, Sherman DW
Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs
Tags: 2005, Adolescent Transitions, Adult, Allada V, Backlog, Cardiology/education, Chang RK, Child, Child JS, Congenital, Data Collection, Education, Educational, Fellowships And Scholarships, Graduate/economics/standards, Gurvitz MZ, Heart Defects, Humans, Journal Article, Journal of the American College of Cardiology, Klitzner TS, Medical, Models, Pediatrics/education, Program Evaluation, Ramos FJ, United States
Status quo of palliative care in pediatric oncology-a nationwide survey in Germany
Tags: 2005, Adolescent, Backlog, Brun S, Child, Data Collection, Female, Friedrichsdorf SJ, Germany/epidemiology, Home Care Services/statistics & numerical data/trends, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Location Of Death, Male, Medical Oncology/methods/trends, Menke A, Neoplasms/mortality/therapy, Newborn, Non-U.S. Gov't, Palliative Care/methods/statistics & numerical data/trends, Pediatrics/methods/trends, Physician's Practice Patterns/statistics & numerical data, Preschool, Research Support, Treatment Outcome, Wamsler C, Zernikow B
HIV/AIDS symptom management in Southern Africa
Tags: 2005, 80 And Over, Acquired Immunodeficiency Syndrome/diagnosis/epidemiology/therapy Adolescent Adult Africa, Anti-HIV Agents/therapeutic use, Backlog, Child, Comorbidity, Complementary Therapies/methods/statistics & numerical data, Data Collection, Diet, Female, Holzemer WL, Human S, Humans, Journal Article, Journal of Pain and Symptom Management, Makoa ET, Makoae LN, Male, Methods, Middle Aged, Mndebele SC, Non-U.S. Gov't Self Care/methods/statistics & numerical data, Palliative Care/, PedPal Lit, Ramukumba TS, Seboni NM, Southern/epidemiology Aged Aged, statistics & numerical data Research Support, Sukati NA, Therapy/statistics & numerical data
Perceptions of the term palliative care
The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period. The Euro Heart Survey on adult congenital heart disease
Tags: 2005, Adolescent, Adolescent Transitions, Adult, Aged, Ambulatory Care/statistics & numerical data, Backlog, Boersma E, Cardiovascular Agents/therapeutic use, Cardiovascular/mortality, Congenital/mortality, Daliento L, Data Collection, Engelfriet P, Europe/epidemiology, European Heart Journal, Female, Follow-up Studies, Gatzoulis MA, Heart Defects, Hirsch R, Humans, Journal Article, Kaemmerer H, Laforest V, Male, Meijboom F, Middle Aged, Moons P, Mulder B, Oechslin E, Patient Acceptance Of Health Care/statistics & Numerical Data, Popelova J, Pregnancy, Pregnancy Complications, Survival Analysis, Thaulow E, Thilen U, Tijssen J
New and lingering controversies in pediatric end-of-life care
Tags: 2005, Analgesics, Attitude Of Health Personnel, Backlog, Child, Data Collection, Dokken DL, Fleischman AR, Heller KS, Hospital/psychology, Humans, ICU Decision Making, Journal Article, Levetown M, Life Support Care, Medical, Medical Futility, Medical Staff, Nurses/psychology, Opioid/therapeutic use, Pain/drug Therapy, Pediatrics, Practice Guidelines, Rushton C, Sellers DE, Solomon MZ, Specialties, Terminal Care/psychology, Truog RD, Withholding Treatment
Frequency and perceived competence in providing palliative care to terminally ill patients: a survey of primary care physicians
Tags: 2004, Backlog, Boyer EG, Collier VU, Data Collection, Farber NJ, Health Care/methods, Humans, Journal Article, Journal of Pain and Symptom Management, Metzger M, Palliative Care/statistics & Numerical Data, Physician-patient Relations, Physician's Practice Patterns/statistics & numerical data, Primary Health Care/statistics & numerical data, Professional Competence/statistics & numerical data, Quality Assurance, Terminal Care/statistics & Numerical Data, Terminally Ill/statistics & numerical data, United States/epidemiology, Urban SY, Weiner J
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Tags: 2004, Attitude, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Data Collection, Death and Euthanasia, Empirical Approach, Ethics, Female, Henter JI, Humans, Interviews, Journal Article, Kreicbergs U, Lancet, Longitudinal Studies, Male, Parents/psychology, Pilot Projects, Questionnaires, Research, Steineck G, Sweden, Valdimarsdottir U
Sleep disturbance in mucopolysaccharidosis type III (Sanfilippo syndrome): a survey of managing clinicians.
Mothers' experience of social support following the death of a child
Tags: 2002, Adaptation, Adult, Attitude To Death, Backlog, Child, Data Collection, Female, Finland, Grief, Humans, Interpersonal Relations, Journal Article, Journal of Clinical Nursing, Laakso H, Male, Mother-child Relations, Mothers/psychology, Nurse's Role, Paunonen-Ilmonen M, Preschool, Psychological, Questionnaires, Social Support
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Tags: 2003, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Data Collection, Decision Making, Ethics, Euthanasia, Female, Hardart GE, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care, Journal Article, Legal Guardians, Male, Medical, Mental Competency, Middle Aged, Morals, Newborn, Passive, Professional-family Relations, Religion and Medicine, Teaching, Truog RD, United States
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Mapping the journey of cancer patients through health care system. Part 1: developing the research question
Tags: 2004, Adaptation, Attitude To Health, Backlog, Blood P, Canadian Oncology Nursing Journal, Clinch J, Data Collection, Delivery of Health Care/standards, El Sayed S, Humans, Journal Article, Khoo K, Longitudinal Studies, Manitoba, Motivation, Nemecek A, Neoplasms/diagnosis/psychology/therapy, Non-U.S. Gov't, Nursing, Nursing Methodology Research/methods, Philosophy, Psychological, Research Design, Research Support, Scott-Findlay S, Sloan JA, Trylinski C, Whittaker H
Preventive services in a health maintenance organization: how well do pediatricians screen and educate adolescent patients?
Tags: 2000, Adolescent, Adolescent Behavior, Adolescent Health Services/statistics & numerical data, Adolescent Transitions, Archives Of Pediatrics & Adolescent Medicine, Backlog, California, Data Collection, Elster AB, Fuster CD, Halpern-Felsher BL, Health Maintenance Organizations, Humans, Irwin CE, Journal Article, Millstein SG, Ozer EM, Patient Education as Topic/statistics & numerical data, Pediatrics/statistics & numerical data, Physician's Practice Patterns/statistics & numerical data, Preventive Health Services/statistics & numerical data, Risk-Taking, Wibbelsman CJ
Whatever happened to qualitative description?
Clinical problems with the performance of euthanasia and physician-assisted suicide in The Netherlands
Tags: 2000, 80 And Over, Active, Adult, Aged, Assisted/statistics & numerical data, Backlog, Data Collection, Death and Euthanasia, Empirical Approach, Empirical Research, Euthanasia, Euthanasia/statistics & numerical data, Female, Groenewoud JH, Humans, Journal Article, Male, Middle Aged, Netherlands, Onwuteaka-Philipsen BD, Random Allocation, Suicide, The New England Journal Of Medicine, van der Heide A, van der Maas PJ, van der Wal G, Willems DL
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
The Delphi method?
Tags: 1997, Adams A, Backlog, Crisp J, Data Collection, Decision Making, Delphi Technique, Duffield C, Humans, Journal Article, Nagy S, Non-U.S. Gov't, Nursing Research, Nursing Research/methods/organization & administration, Organizational, Organizational Objectives, Organizational Policy, Pelletier D, Reproducibility of Results, Research Design, Research Support
Behaviour in mucopolysaccharide disorders
Tags: 1995, Aggression, Archives of Disease in Childhood, Backlog, Bax MC, Child, Child Behavior Disorders/complications, Colville GA, Data Collection, Family Health, Female, Humans, Journal Article, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis II/psychology, Mucopolysaccharidosis III/psychology, Parents, Preschool, Prevalence, Q3 Scoping Review Results, Self-Help Groups, Sleep Disorders/complications
Building measurement and data collection into medical practice
Tags: 1998, Annals Of Internal Medicine, Backlog, Batalden PB, Blood Glucose Self-Monitoring, Clinical Protocols, Cost Control, Data Collection, Diabetes Mellitus, Humans, Journal Article, Medical/standards, Nelson EC, Outcome And Process Assessment (health Care), Patient Care Team, Physician's Role, Plume SK, Practice Management, RDF Project, Splaine ME, Type 2/therapy, Urinary Tract Infections/therapy
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
Audit of deaths in general practice: pilot study of the critical incident technique
Tags: 1992, Backlog, Berlin A, Bhopal RS, Cause Of Death, Data Collection, England, Family Practice/standards, Health Services Research/methods, Human, Journal Article, Medical Audit/methods, Non-U.S. Gov't, Pilot Projects, Primary Health Care/standards, Quality In Health Care, Spencer JA, Support, Urban Population, van Zwanenberg TD
Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners
Tags: 2013, Adaptation Psychological, Adult, Aged, BMJ Supportive & Palliative Care, British Columbia, Curriculum, Data Collection, Education Medical Continuing, Female, Humans, Male, Middle Aged, Miller T, Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners, Palliative Care/ Psychology, Pediatrics/ Education, Physicians Family/ Education/ Psychology, Self Care/psychology, Straatman L, Surveys And Questionnaires