Recruitment and retention in a longitudinal palliative care study.

Title

Recruitment and retention in a longitudinal palliative care study.

Creator

Sherman DW; McSherry CB; Parkas V; et al

Publisher

Applied Nursing Research

Date

2005

Subject

Female; Humans; Male; Palliative Care; Adult; Data Collection; Middle Aged; Focus Groups; Longitudinal Studies; Patient Selection; Feasibility Studies; patient care team; caregivers; Neoplasms/therapy; Acquired Immunodeficiency Syndrome/therapy; Clinical Nursing Research/organization & administration; Patient Dropouts

Description

A longitudinal feasibility study regarding quality of life and interventions for patients with advanced cancer or AIDS and their family caregivers was conducted to determine issues related to their recruitment and retention and to obtain pilot data relevant to the development of a larger study. At the completion of the study, a focus group consisting of the members of the palliative care research team was convened to identify barriers to and facilitators of the research process based on their research experience. The purpose of this article is to (1) describe recruitment, mortality rates, attrition rates, and compliance with data collection of patients and family caregivers experiencing an advanced illness and to (2) examine the researchers' perspectives regarding barriers to and facilitators of the research process that relate to patients and family caregivers, institutions, the data collection process, and their personal experiences. Implications for palliative care research are discussed.
2005

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

167-177

Issue

3

Volume

18

Citation

Sherman DW; McSherry CB; Parkas V; et al, “Recruitment and retention in a longitudinal palliative care study.,” Pediatric Palliative Care Library, accessed December 7, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13750.

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