Browse Items (72 total)

Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study

Tags: 2023, Acta Médica Portuguesa, Adolescent, Child, Chronic Disease, Humans, July List 2023, Machado MdC, Needs Assessment, Portugal, Psychometrics, Reproducibility of Results, Simoes MJP, Surveys And Questionnaires, Tavares F, Translations, Young Adult

Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Adult, Advanced Cancer, Avoine-Blondin J, BMC Palliative Care, Child, Concept Formation, Dumont É, Duval M, Female, Humans, Male, Marquis MA, Mixed-method, Neoplasms, Palliative Care, Pediatrics, psychology/therapy, Quality Of Life, Reproducibility of Results, Sultan S, Surveys And Questionnaires

Tags:  Adolescent,  Child,  Palliative Care,  Quality of Life,  Terminal Care, 2022, Cooper M, Cox V, Flemming K, Fraser LK, Gilman C, Hospice Care, Humans, Mayland CR, November 2022 List, Palliative Medicine, Powell PA, Quality Of Death, quality of dying, Reproducibility of Results, Review, Sunderland KA, Taylor P, tools, Turner N, Zeigler L

Tags: 2022, Beernaert K, Cohen J, Consensus, Deliens L, Palliative Medicine, Piette V, Quality Assurance, Reproducibility of Results, September 2022 List, Smets T, Terminal Care, Van Berlaer G

Tags: 2020, Adolescent, Bmj Open, Child, Consciousness, developmental neurology & neurodisability, Dunford C, Ireland, July 2021 List, Magee W, Music Therapy, neurological injury, paediatric neurology, paediatric palliative care, Pool JW, rehabilitation medicine, Reproducibility of Results, Siegert RJ, State Medicine, Taylor S

Tags: 2020, Arje D, Buera J, Canada, Child, Child Preschool, Chitayat D, Cohen E, Cohn RD, Costain G, Curtis M, Female, Genetic Testing/statistics & numerical data, Hayeems RZ, Humans, JAMA Network Open, Luca S, Male, Marano M, March 2021 List, Marshall CR, Mendoza-Londono R, Meyn MS, Orkin J, Predictive Value of Tests, Prospective Studies, Reproducibility of Results, Reuter MS, Scherer SW, Snell M, Somatoform Disorders/diagnosis, Stavropoulos DJ, Sung WWL, Thiruvahindrapuram B, Trost B, Veenma D, Walker S, Whole Genome Sequencing/statistics & numerical data, Yuen RKC

Tags: 2020, August 2020 List, Child, Journal of Pediatric Nursing, Ju H O, Park S Y, Physiological stress, Reproducibility of Results, Terminal Care

Tags: 2010, Adolescent, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], Ataxia Telangiectasia/pp [Physiopathology], Berkun Y, breathing difficulties, Case-Control Studies, characteristics, Child, Efrati O, Feasibility Studies, Female, Humans, Jacobson J M, Levi Y, lung deterioration, Male, Pediatric Pulmonology, Preschool, Reproducibility of Results, Spirometry, Trajectory, Vilozni D, Weiss B, Young Adult

Tags: 1989, Child Preschool, Female, Hand, hand splints, hand wringing, Humans, Miedaner J, physical intervention, Physical Therapy, Reproducibility of Results, Rett syndrome, Rett Syndrome/rehabilitation, splints, Stereotyped Behavior, tone and motor problems, Tuten H

Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult

Tags: 2013, assessments, Case L E, Child Development, Childhood/diagnosis, childhood/physiopathology, Children, Female, functional motor scale, Hartman J T, Hecker E, Humans, Infant, Kienitz K, King W, Krosschell K J, Leveille M, Male, Mazulski J A, Meffert M, motor, Observer Variation, Pediatric Physical Therapy, Pediatrics, performance, Physical Therapy, physical therapy specialty/standards, Project Cure Spinal Muscular Atrophy Investigators, Rehabilitation, Reproducibility of Results, Roman C A, scale development, Scott C, skills/physiology, SMA1, specialty/instrumentation, spinal muscular atrophies of, Swoboda K J, TIMP, tone and motor problems, tool development, Viazzo-Trussell D, Video Recording, Wood J

Tags: 2006, Child Preschool, Contracture/di [Diagnosis], Contracture/pp [Physiopathology], Crawford T O, Disability Evaluation, HFMS, Humans, Infant, Krosschell K J, Maczulski J A, Male, Neuromuscular Disorders, Observer Variation, Reproducibility of Results, scale development, Scott C, Severity Of Illness Index, SMA1, Spinal Muscular Atrophies of Childhood/di [Diagnosis], Spinal Muscular Atrophies of Childhood/pp [Physiopathology], Swoboda K J, tone and motor problems, tool development, Videotape Recording

Tags: 2007, 22q11.2 Deletion Syndrome, Abnormalities Multiple/genetics/pathology/psychology, American Journal of Medical Genetics Part A, Beemer F A, behavioral problems, Case-Control Studies, characteristics, Child, Child Behavior Disorders/psychology, Chromosome Deletion, Chromosomes Human Pair 22, Craniofacial Abnormalities/psychology, Duijff S N, Female, Heineman-de B J A, Humans, Intelligence, Jansen P W, Klaassen P W, Male, Morcus M E, Psychometrics/methods, Reproducibility of Results, Syndrome, Trajectory, Vorstman J A

Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G

Tags: 2019, Developmental Medicine and Child Neurology, Diagnostic Techniques, Female, Hadders-Algra M, Humans, Infant, Longitudinal Studies, Male, Neurodevelopmental Disorders/diagnosis, Neurological/standards, November 2019 List, Philippi H, Pietz J, Reproducibility of Results, Rupp A, Severity Of Illness Index, Tacke U

Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult

Tags: 2014, Activities of Daily Living, Adolescent, Backlog, Boyd R, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disability Evaluation, Female, Humans, James S, Journal Article, Male, PEDI Study, Psychometrics, Reproducibility of Results, Ziviani J

Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J

Tags: 2009, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birch PH, Child, Exploratory Behavior, Family, Female, Friedman JM, Humans, Intellectual Disability, Intellectual Disability/diagnosis/therapy, Journal Article, Makela NL, Male, Marra CA, Middle Aged, Parent caregivers, Parents, Perception, Prenatal Diagnosis, Reproducibility of Results, Social Support

Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T

Tags: 2007, Adaptation, Adult, Backlog, Depressive Disorder/diagnosis/psychology, Diagnostic and Statistical Manual of Mental Disorders, Educational Status, Female, Grubaugh AL, Health Status, Humans, Journal Article, Life Change Events, Models, Outcome Assessment (health Care), Parent caregivers, Patient Acceptance of Health Care/psychology, Personality Inventory, Post-Traumatic/diagnosis/psychology, Psychiatric Status Rating Scales, Psychological, Rape/psychology, Reproducibility of Results, Resick PA, Stress Disorders, The Psychiatric Quarterly, Violence/psychology

Tags: 2009, Acute Disease, Animal, Animals, Backlog, beta-Endorphin/analysis/metabolism/secretion, Biological Markers/analysis/blood, Biomarkers of Pain, Disease Models, Farr LA, Inbred DBA, Journal Article, Journal Of Neuroscience Methods, Male, Mice, Neurochemistry/methods, Pain Measurement, Pain/blood/physiopathology, Physical Stimulation, Radioimmunoassay/methods, Rasmussen NA, Reproducibility of Results, Time Factors, Up-Regulation/physiology

Tags: 2007, Adolescent, Backlog, Biomarkers of Pain, Child, Child Behavior, Crichton N, Female, Goldman A, Humans, Hunt A, Hydrocortisone/metabolism, Journal Article, Journal of Pain and Symptom Management, Male, Mastroyannopoulou K, Nervous System Diseases/complications/metabolism/psychology, Pain Measurement/methods, Pain/etiology/metabolism/psychology, Perry L, Preschool, Reproducibility of Results, Saliva/metabolism, Seers K, Videotape Recording, Wisbeach A

Tags: 2010, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anxiety, Stress, And Coping, Backlog, Bereavement, Calhoun LG, Cann A, Danhauer SC, Domestic Violence/psychology, Factor Analysis, Female, Humans, Journal Article, Leukemia/psychology, Life Change Events, Male, Middle Aged, Psychological, Psychological Tests, Psychometrics, Reproducibility of Results, statistical, Taku K, Tedeschi RG, Triplett KN, Vishnevsky T, Young Adult

Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods

Tags: 2007, Backlog, Burghen E, Clinical Nursing Research, dying children and adolescents, end-of-life research, Hinds PS, Humans, Journal Article, Longitudinal Studies, Oncologic Nursing/ethics, Oncology at EOL, Pediatric Nursing, Pediatric Oncology, Pediatrics, Pritchard M, Reproducibility of Results, Terminal Care, Western Journal of Nursing Research

Tags: 2006, 80 And Over, Adaptation, Adult, Aged, Backlog, Emotions, Factor Analysis, Female, Human Development, Humans, Jaarsma TA, Journal Article, Male, Middle Aged, Neoplasms/psychology, Netherlands, Parent caregivers, Pool G, Post-Traumatic/diagnosis/psychology, Psycho-Oncology, Psychological, Psychological Tests, Ranchor AV, Reproducibility of Results, Sanderman R, statistical, Stress Disorders

Tags: 2006, Adolescent, Backlog, Bugiani M, Child, Disability Evaluation, Disease Progression, Elson JL, Female, Great Britain, Humans, Infant, Journal Article, Longitudinal Studies, Male, McFarland R, Mitochondrial Diseases/diagnosis/therapy, Mitochondrial Encephalomyopathies/diagnosis/therapy, Morava E, Neurology/methods, Neuromuscular Disorders, Newborn, Observer Variation, Pediatrics/methods, Phoenix C, Predictive Value of Tests, Preschool, Prognosis, Q3 Scoping Review Results, Reproducibility of Results, Schaefer AM, Smeitink JA, Turnbull DM, Uziel G

Tags: 2005, Backlog, Bartoshuk L, Clinical Trials/methods/trends, Comparative Study, Dionne RA, Humans, Journal Article, Mogil J, P.H.S., Pain Measurement/drug effects/methods/standards, Pain/drug therapy/physiopathology, Reproducibility of Results, Research Support, Trends In Pharmacological Sciences, U.S. Gov't, Witter J

Tags: 2006, Activities of Daily Living, Adolescent, Backlog, Campbell K, Caregivers, Cerebral Palsy/classification/nursing/psychology, Child, Developmental Medicine and Child Neurology, Disabled Persons/psychology/rehabilitation, Fehlings D, Female, Health Status, Humans, Journal Article, Kiran S, Knights S, Longitudinal Studies, Male, Narayanan UG, Preschool, Quality Of Life, Questionnaires, Reproducibility of Results, Severity Of Illness Index, Weir S

Tags: 2005, Backlog, Beneficence, Casarett D, Decision Making/ethics, Empirical Research, Ethics, Human Experimentation/ethics, Humans, Journal Article, Journal of Palliative Medicine, Mental Competency, Multi-site Ethics, Palliative Care/ethics, Psychological, Quality Of Life, Reproducibility of Results, Research, Research Subjects, Stress, Terminal Care/ethics

Tags: 2005, Backlog, Data Collection/methods, Health Services Research/methods, Humans, Journal Article, Journal of Palliative Medicine, Outcome and Process Assessment (Health Care)/methods, Palliative Care/psychology/standards, Prospective Studies, Psychometrics/instrumentation/methods, Quality Of Life, Reproducibility of Results, Steinhauser KE, Terminal Care/psychology/standards, United States

Tags: 2005, Adolescent, Adult, Backlog, Cerebral Palsy/co [Complications], Cerebral Palsy/di [Diagnosis], Cerebral Palsy/rh [Rehabilitation], Child, Child Behavior/cl [Classification], Communication Barriers, Female, Humans, Journal Article, Male, Pain Measurement/mt [Methods], Pain/di [diagnosis], Pain/et [Etiology], Physical Therapy Modalities/ae [Adverse Effects], Reproducibility of Results, Sensitivity and Specificity, The Clinical Journal Of Pain, von Baeyer CL

Tags: 2006, Adolescent Transitions, Backlog, Consensus, Delphi Technique, Hasson F, Humans, Journal Article, Journal Of Advanced Nursing, Keeney S, McKenna H, Nursing Research/methods, Reproducibility of Results, Research Design

Tags: 2006, Alberta, Attitude To Health, Backlog, Bmc Medical Research Methodology, Data Interpretation, Depression/classification/diagnosis, Female, Ghali WA, Hospitals, Humans, Journal Article, Male, Operative/psychology, Outcome Assessment (Health Care)/methods/statistics & numerical data, Preoperative Care, Psychiatric Status Rating Scales, Psychometrics/methods, Quan H, Questionnaires, Regression Analysis, Reproducibility of Results, Research Design, Self Assessment (Psychology), Shrive FM, statistical, Stuart H, Surgical Procedures, Teaching

Tags: 2003, 80 And Over, Adult, Aged, Backlog, Boston, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Decision Making, Dissent And Disputes, Family Relations, Female, Galper BZ, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Intensive Care/statistics & numerical data, Interprofessional Relations, Journal Article, Length Of Stay, Male, Mello MM, Middle Aged, Professional-family Relations, Prospective Studies, Puopolo AL, Reproducibility of Results, Studdert DM, Time Factors, Truog RD

Tags: 2003, Backlog, Child, Children W/SNI, Cognition Disorders/complications/nursing, Curley MA, Disabled Children, Humans, Infant, Journal Article, Journal of Pediatric Nursing, Male, Nonverbal Communication, Nursing Evaluation Research, Pain Measurement/instrumentation/nursing/standards, Pain/etiology/nursing, Parent-child Relations, Pediatric Nursing/instrumentation/methods, Preschool, Professional-family Relations, Reproducibility of Results, Solodiuk J

Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results

Tags: 2004, Adolescent, Analgesia, Backlog, Brady M, Child, Communication Disorders, Crichton N, Developmental Medicine and Child Neurology, Disabled Children, Female, Goldman A, Humans, Hunt A, Infant, Journal Article, Male, Mastroyannopoulou K, Moffat V, Nervous System Diseases/complications, Non-U.S. Gov't, Operative, Oulton K, Pain Measurement/methods, Preschool, Q3 Scoping Review Results, Reproducibility of Results, Research Support, Seers K, Sensitivity and Specificity, Surgical Procedures