Quality of End-of-Life Care in Children With Neurological Conditions in Belgium: A Population-Level Evaluation Using Face-Validated Quality Indicators
Title
Quality of End-of-Life Care in Children With Neurological Conditions in Belgium: A Population-Level Evaluation Using Face-Validated Quality Indicators
Creator
Piette V; Smets T; Deliens L; Van Berlaer G; Beernaert K; Cohen J
Identifier
Publisher
Palliative Medicine
Date
2022
Subject
child; human; female; male; consultation; surgery; palliative; therapy; imaging; study; clinical; abstract; care; conference; intensive; major; unit; retrospective; system; follow; up; Belgium; nervous; terminal; general; magnetic; nuclear; observational; overtreatment; practitioner; ray; resonance; X
Description
Background/aims: Neurological conditions, such as cerebral palsy and muscular dystrophy, are the main diagnoses of referral for many pediatric palliative care teams. Nevertheless, parents of children with such conditions globally report insufficient end-of-life care. Population-level measurement of end-of-life care appropriateness provides a quality-ofcare overview that is currently lacking, and offers options for care improvement. Therefore, the aim of this study was to evaluate the quality of end-of-life care in children who died with neurological conditions using face-validated quality indicators.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
September 2022 List
URL Address
Collection
Citation
Piette V; Smets T; Deliens L; Van Berlaer G; Beernaert K; Cohen J, “Quality of End-of-Life Care in Children With Neurological Conditions in Belgium: A Population-Level Evaluation Using Face-Validated Quality Indicators,” Pediatric Palliative Care Library, accessed February 12, 2025, https://pedpalascnetlibrary.omeka.net/items/show/18278.