Quality of End-of-Life Care in Children With Neurological Conditions in Belgium: A Population-Level Evaluation Using Face-Validated Quality Indicators

Quality of End-of-Life Care in Children With Neurological Conditions in Belgium: A Population-Level Evaluation Using Face-Validated Quality Indicators

Piette V; Smets T; Deliens L; Van Berlaer G; Beernaert K; Cohen J

Palliative Medicine

2022

child; human; female; male; consultation; surgery; palliative; therapy; imaging; study; clinical; abstract; care; conference; intensive; major; unit; retrospective; system; follow; up; Belgium; nervous; terminal; general; magnetic; nuclear; observational; overtreatment; practitioner; ray; resonance; X

Background/aims: Neurological conditions, such as cerebral palsy and muscular dystrophy, are the main diagnoses of referral for many pediatric palliative care teams. Nevertheless, parents of children with such conditions globally report insufficient end-of-life care. Population-level measurement of end-of-life care appropriateness provides a quality-ofcare overview that is currently lacking, and offers options for care improvement. Therefore, the aim of this study was to evaluate the quality of end-of-life care in children who died with neurological conditions using face-validated quality indicators.

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September 2022 List