How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review

Title

How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review

Creator

Mayland CR; Sunderland K; Taylor P; Powell P; Turner N; Cox V; Gillman C; Cooper M; Zeigler L; Flemming K; Fraser L

Publisher

Palliative Medicine

Date

2022

Subject

child; human; pain; female; male; adult; cancer; pediatric; sibling; caregiver; life; review; Cinahl; Embase; Medline; PsycINFO; palliative; questionnaire; mother; heart; of; therapy; spiritual; quality; study; disease; patient; abstract; care; conference; controlled; intensive; unit; systematic; young; terminal; advanced

Description

Background/aims: The death of a child or young adult is fundamentally painful. Evaluating end-of-life care experiences can identify specific needs and ensure good quality care is provided. Our aim was to identify tools assessing quality of dying, death or end-oflife care for children and young adults.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2022 List

Collection

Citation

Mayland CR; Sunderland K; Taylor P; Powell P; Turner N; Cox V; Gillman C; Cooper M; Zeigler L; Flemming K; Fraser L, “How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review,” Pediatric Palliative Care Library, accessed February 6, 2023, https://pedpalascnetlibrary.omeka.net/items/show/18279.

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