Browse Items (28 total)
- Tags: Self Report
What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature
Tags: 2023, 2025 SE1 - Oncology, administrative health data, Adolescent, Adult, Analgesia, Anticipation, Body Image, cancer center, Cancer Chemotherapy, Cancer Diagnosis, Cancer Palliative Therapy, Cancer Patient, Cancer Prognosis, cancer radiotherapy, Cancer Therapy, Checklist, Childhood Cancer, Chinese Version of the Medical Coping Mode Questionnaire, clinical assessment, clinical evaluation, Condren C, Coping, Data Base, data extraction, Demographics, Depression, Depression Anxiety and Stress Scale-21, developmental stage, Disease Burden, Disease Severity, Distress Syndrome, Dying, Edmonton Classification System of Cancer Pain, emotional support, Fatigue, Female, financial management, Follow Up, Gender Identity, Guerin S, Health Care, Health Personnel Attitude, Hematologic Malignancy, Hospital Anxiety and Depression Scale, Human, illness trajectory, Journal Of Adolescent And Young Adult Oncology, Looney K, Male, malignant neoplasm/rt [Radiotherapy], Mental Health, mood change, Neylon K, occupation, Oncology, Patient Autonomy, Patient Referral, patient-reported outcome, Pediatric Quality of Life Inventory, Personal Experience, Population, Prevalence, program appropriateness, Prospective Study, Psycho-Oncology, psychological aspect, psychosocial care, Psychosocial Intervention, Qualitative Analysis, Qualitative Research, quantitative analysis, Questionnaire, Review, Self Report, Semi Structured Interview, sexual health, Short Form 12, Side Effect, social needs, Social Support, Social Support Rating Scale, Social Worker, solid tumor, Study Design, Symptom, Systematic Review, Terminal Care, Thematic Analysis, unmet medical need, Western Australia, workshop, Young Adult
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Child, Current Oncology, Duval M, Felipe J, Female, Humans, Male, Marquis MA, measure, Michon B, Neoplasms/psychology, Olivier-D'Avignon M, Palliative Care, Patient Reported Outcome Measures, Pediatric Cancer, Perreault S, Quality Of Life, Quality Of Life/psychology, Robichaud LA, Self Report, Sultan S, Surveys And Questionnaires, Tyo-Gomez M
Decision-Making Factors in Advanced or Incurable Childhood Cancer Diagnosis in Low- and Middle- Income Countries
Tags: 2024, 2025 SE2 - LRS, access to treatment, Advanced Cancer, Cancer Diagnosis, catalyst, Child, Childhood Cancer, Clinical Article, conference abstract, Content Analysis, Decision Making, Diagnosis, Drug Therapy, Female, Human, Interview, Journal of Pain and Symptom Management, Male, middle income country, Rule A, Salek M, Self Report, Semi Structured Interview, special situation for pharmacovigilance, World Health Organization
Deepening Clinician Understanding of Family Caregivers' Lived Experiences Caring for Medically Complex Children
Tags: 2024, Adult, Bogetz J, care behavior, Caregiver, Caregiver Support, Child, Child Death, Clinician, conference abstract, ethnography, Female, Grief, Human, Human Experiment, Interpersonal Communication, Journal of Pain and Symptom Management, June List 2024, Male, McCarthy S, Palliative Therapy, Participant Observation, Personal Experience, Porter AS, rejuvenation, Self Report, Snaman JM
Reimagining Respite: An Interactive Session Aimed at Improving Pediatric Respite Care Through Idea Exchange
Free and Appropriate: Navigating School Integration for Pediatric Patients Receiving Palliative Care or Hospice
Tags: 2024, Adolescent, Child, conference abstract, Drug Therapy, Education Program, Female, French C, Glioma, Hospice, Human, Inflammation, Journal of Pain and Symptom Management, June List 2024, knowledge gap, Maxwell E, median survival time, medical student, Palliative Therapy, pediatric patient, Physiotherapy, professionalism, Prognosis, Purol N, Quality Of Life, Satty AM, School Child, Self Report, special situation for pharmacovigilance, symptom burden, Teamwork, tumor burden, Ullrich CK, wheelchair
Improving Safe Opioid Prescribing for Pediatric Hospice and Palliative Care Patients
Tags: 2024, Bray J, Child, conference abstract, controlled substance, Daut E, Drug Therapy, electronic medical record, Hospice, Human, Johansen W, Journal of Pain and Symptom Management, June List 2024, Male, Massmann C, Mental Health, Needs Assessment, Opiate, Palliative Therapy, Patient Health Questionnaire 2, Patient Safety, Quality Of Life, Self Report, special situation for pharmacovigilance, time series analysis, Total Quality Management
Has Pediatric Palliative Care Become Too Deferential? A Challenge To and For the Field
Tags: 2024, Advance Care Planning, Caregiver, Child, conference abstract, Controlled Study, Coping, Distress Syndrome, Drug Administration, Family Centered Care, Fatigue, Health Care Personnel, Human, Humphrey LH, Jacobowski N, Journal of Pain and Symptom Management, June List 2024, Medical Specialist, Palliative Therapy, professionalism, psychiatrist, psychological defense, Psychologist, Self Report, shared decision making, Teamwork, Truba NP, vignette
A Prospective Pilot Study of Longitudinal Parent Anxiety Screening: Implications for Data-Driven Palliative Care
Tags: 2024, Adult, anxiety, Bemis H, Caregiver, Caucasian, Child, conference abstract, Controlled Study, Decision Making, Diagnosis, Distress Syndrome, Female, Hispanic, Human, Journal of Pain and Symptom Management, June List 2024, Klein M, Lotstein D, Major Clinical Study, Male, Palliative Therapy, Parent, Patient Referral, patient triage, Pilot Study, Practice Guideline, preliminary data, Ritter MD, Screening, Self Report, Spaniard, supportive care need, Treatment Outcome
Factors associated with mental health service use among families bereaved by pediatric cancer
Tags: 2022, 2023 SE3 - Oncology, Akard TF, Article, Barrera M, Bereavement, Child, Child Behavior Checklist, Compas BE, Controlled Study, Cooperation, Demography, Distress Syndrome, Education, Educational Status, Fairclough DL, Father, Female, Gerhardt CA, Gilmer MJ, Health Care Personnel, Hill KN, Home Visit, Human, Major Clinical Study, Male, Malignant Neoplasm, mental health service, Mental Health Services, Mother, Multicenter Study, Olsavsky A, Palliative And Supportive Care, Palliative Therapy, race, Randomized Controlled Trial, self help, Self Report, Sibling, support group, Vannatta K
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Self-reported experiences of siblings of children with life-threatening conditions: A scoping review
Patient-centred outcome measure design: the perspectives and preferences of children and young people with life-limiting or life-threatening conditions
Tags: 2023, Adolescent, Bluebond-Langner M, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Coombes L, Downing J, Ellis-Smith C, Feasibility Study, Female, Fraser LK, genetic transcription, Harding R, Haroardottir D, Hills M, Human, Interview, July List 2023, Laddie J, Male, Malignant Neoplasm, Murtagh FEM, Nervous System, outcome assessment, Pain, Preschool Child, Quality of Life Research, Ramsenthaler C, Recall, Roach A, Scott H, Self Report, Voice
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
“A Child's Death Is Different”: Responding to the Needs, Preferences, and Challenges Shared by Hospice Nurses Caring for Dying Children in the Community (FR214)
Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting
Increasing joy for pediatric palliative care providers: #pactimpact a quality improvement initiative for resiliency in the workplace
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Tags: 2019, Adult, Anticipatory Grieving, anxiety, Applied Nursing Research, Bereavement, Blacks -- Psychosocial Factors, Comparative Studies, Côté-Arsenault D, Denney-Koelsch E M, Depression, Descriptive Statistics, February 2020 List, Female, Fetal Abnormalities -- Diagnosis, Funding Source, Health Status, Hispanics -- Psychosocial Factors, Human, Interviews, Kavanaugh K, Male, McCoy T P, Multimethod Studies, Palliative Care, Parental Attitudes, Patient Satisfaction, Perinatal Care, Perinatal Death -- Psychosocial Factors, Psychological Well-being, Qualitative Studies, Quantitative Studies, Questionnaires, scales, Self Report, Summated Rating Scaling, surveys, Treatment Outcomes
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Parental assessment of comfort in newborns affected by lifelimiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, April 2018 List, Article, Byrne M, Child Parent Relation, Clinical Article, Daho M, Female, fluid intake, Foe G, Health Care Delivery, Health Care Quality, health program, Health Survey, Human, Infant, Infant Nutrition, Journal Of Perinatology, kangaroo care, Life Expectancy, life limiting disease, Male, Newborn, Newborn Care, Parental Attitude, parental behavior, Parravicini E, Patient Comfort, Peer Review, physical disease, Prospective Study, Self Report, standardization, Steinwurtzel R
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Tags: 2015, Adaptation, Adolescent, Adult, Age Factors, Backlog, Baser RE, Breitbart W, Cause Of Death, Child, Corner GW, Cross-sectional Studies, Female, Grief, Health Services Accessibility, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Kissane DW, Li Y, Lichtenthal WG, Male, Mental Health Services, Middle Aged, Minority Groups, Neoplasms, Parents, Patient Acceptance of Health Care, Preschool, Prigerson HG, Psychological, Psychotherapy, Psychotropic Drugs, Roberts KE, Self Report, Self-Help Groups, Sweeney CR, Time Factors, United States, Wiener L, Young Adult
The effectiveness of a self-reporting bedside pain assessment tool for oncology inpatients
Tags: 2012, 80 And Over, Adult, Aged, Backlog, Chung JH, Female, Han Hye-Suk, Humans, Journal Article, Journal of Palliative Medicine, Kim EB, Kim ST, Kim Wun-Jae, Lee KH, Lim Sung-Nam, Male, Middle Aged, Neoplasms, Pain Measurement, Park BR, Patient Satisfaction, Prospective Studies, Reproducibility of Results, Republic of Korea, Self Report, Shin YD, Yim KH
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Challenges to code status discussions for pediatric patients
Using colors to assess pain in toddlers: validation of "the rainbow pain scale"-a proof-of-principle study.
Tags: 2014, Age Factors, Child, Child Preschool, Color, Female, Giaschi D, Holsti L, Humans, Infant, Inpatients/psychology, Journal Of Pediatric Oncology Nursing : Official Journal Of The Association Of Pediatric Oncology Nurses, Mahon P, Male, Neoplasms/psychology, Oncology, Oncology Nursing/methods, Outpatients/psychology, Pain, Pain Measurement/methods, Pain Scale, Pain/diagnosis/psychology, Pediatric Nursing/methods, Preschool Children, Psychometrics/instrumentation, Self Report, Siden H, Strahlendorf C, Turnham L
Pain In Children
Tags: 2006, Canada, Child Health Care, Childhood Disease, Clinical Research, Dermatome, Diagnostic Accuracy, Diagnostic Value, Doctor Patient Relation, Editorial, Education Program, Epidural Catheter, Finley G A, Human, Medical Literature, Nerve Block, Pain Assessment, Pain Research And Management, Pain/pc [prevention], Palliative Therapy, Patient Safety, Pediatric Anesthesia, Self Report, September 2017 List