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Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory
Tags: 2011, breathing difficulties, characteristics, Cornelia de Lange syndrome, De Lange syndrome, International Journal of Pediatric Otorhinolaryngology, Ishman S L, Kimball A, Kline A D, Levy H P, Mettel T L, Sleep disordered breathing, sleep disturbance, Sleepiness, snoring, Stavinoha Rose C, Trajectory
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Tags: 2011, American Journal of Medical Genetics Part A, anamnesis, apnea, Article, Azevedo A C, Barrios P, breathing difficulties, characteristics, Child, Clinical Article, Clinical Feature, Controlled Study, Cross-sectional Study, Dalcin P, disease association, Disease Severity, Doppler echocardiography, Fagondes S, Female, Giugliani R, Glycosaminoglycans, Human, John A, Lysosomal storage diseases, lysosome storage disease, macroglossia, Male, Maroteaux Lamy syndrome, Menna-Barreto S, Morquio syndrome, MPSVI, Mucopolysaccharidosis, oxygen saturation, oxygen/ec [Endogenous Compound], physical examination, pigeon thorax, Polysomnography, Preschool Child, Prevalence, Priority Journal, Prospective Study, pulmonary hypertension, Schwartz I, Sleep apnea, sleep apnea syndrome/di [Diagnosis], sleep disorder, snoring, Trajectory, witnessed apnea
Tags: (health care), 2011, atrophies of childhood/diagnosis, Child, Child Development/physiology, childhood/physiopathology, CHOP INTEND, Chung W K, Darras B T, De Vivo D C, Deng L Y, Disability Evaluation, Disease Severity, Dunaway S, Female, Finkel R S, Flickinger J, Glanzman A M, Humans, Infant, Kaufmann P, Male, Martens W B, McDermott M P, Montes J, Motor Skills/physiology, Muscle Study Group, natural-history, O'Hagen J, outcome assessment, Pediatric Neuromuscular Clinical Research, Pediatric Physical Therapy, Pediatrics, physical therapy/methods, Preschool, Psychometrics/methods, Quigley J, Rehabilitation, Riley S, scale development, Severity Of Illness Index, Sma, SMA1, smn2 copy number, spinal muscular, spinal muscular atrophies of, spinal muscular-atrophy, Sproule D, Tawil R, tone and motor problems, tool development, Validity, Yang M
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult
Tags: 2011, alertness, Attention process, Children, Fabio R A, Giannatiempo S, girls, Intervention, Journal of Developmental and Physical Disabilities, Murdaca A M, Oliva P, physiological intervention, Psycho-educational, Rehabilitation, Rett syndrome, SELECTIVE ATTENTION, selective attention training, Technology, tone and motor problems, Training, trial
Tags: 2011, Alshammari J, atresia, Balloon dilatation, Children, conservative treatment, Couloigner V, dilation, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Esophageal strictures, Experience, feeding difficulties, ingestion, International Journal of Pediatric Otorhinolaryngology, Management, Otorhinolaryngology, Pediatrics, Pierrot S, Quesnel S, repair, surgical intervention
Tags: 2011, Adolescent, Adult, Age, Air E L, Brain/ra [Radiography], Child, deep brain stimulation, Deep Brain Stimulation/ae [Adverse Effects], Deep Brain Stimulation/mt [Methods], Dystonia/pp [Physiopathology], Dystonia/th [Therapy], Factors Brain/pa [Pathology], Female, Follow-up Studies, Glutaric acidemia type I, Humans, Journal of Neurosurgery - Pediatrics, Lesch-Nyhan syndrome, Magnetic Resonance Imaging, Male, Movement, Ostrem J L, Preschool, Retrospective Studies, Sanger T D, secondary dystonia, Starr P A, Tomography, tone and motor problems, X-Ray Computed Treatment Outcome
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Tags: 2011, Acute Disease, Adolescent, Adult, Aged, Analgesics, Backlog, Bair MJ, Blow FC, Bohnert AS, Case-Control Studies, Chronic Disease, Cohort Studies, Drug Prescriptions/statistics & numerical data, Female, Ganoczy D, Humans, Ilgen MA, JAMA, Journal Article, Male, McCarthy JF, Middle Aged, Opioid/administration & dosage/poisoning, Overdose/epidemiology, Pain/drug Therapy, Physician's Practice Patterns/statistics & numerical data, Risk, United States/epidemiology, Valenstein M, Veterans/statistics & numerical data, Young Adult
Tags: 2011, Andrews J, Apkon S, Arias R, Backlog, Cunniff C, Davis MF, Journal Article, Karwoski J, Matthews D, Meaney FJ, Miller T, Muscle & Nerve, Pandya S, Pettit K, Trout C
Tags: 2011, Adolescent, Adult, Antineoplastic Agents/therapeutic use, Backlog, Child, Complementary Therapies, Female, Humans, Infant, Insogna IG, Journal Article, Kang T, Male, Neoplasms/therapy, Newborn, Paisley MA, Pediatric Blood & Cancer, Preschool, Questionnaires, Religion, Rheingold SR, Salvage Therapy, Survival Rate, Treatment Failure, Treatment Outcome, Young Adult
Tags: 2011, Backlog, Curran J, Journal Article, McLeod D, Psycho-Oncology, White M
Tags: 2011, Aydon L, Backlog, Biggs S, Cross Infection/epidemiology/prevention & control, Gill AW, Humans, Incidence, Infant, Infant Care/methods/organization & administration/standards, Infection Control/methods/organization & administration/standards, Jones C, Journal Article, Keil AD, Newborn, Quality Improvement/organization & administration/standards, The Journal Of Hospital Infection
Tags: 2011, Backlog, Databases as Topic, Decision Making, Dental, Diffusion of Innovation, Ethics, Evidence-Based Dentistry, Health Care, Hemprich A, Humans, Journal Article, Journal Of Oral And Maxillofacial Surgery, Meta-Analysis as Topic, Oral, Outcome Assessment (health Care), Pausch NC, Personal Autonomy, Pitak-Arnnop P, Practice Guidelines As Topic, Publication Bias, Quality Assurance, Randomized Controlled Trials as Topic/classification/standards, Research, Research Design, Review Literature as Topic, Surgery, Total Quality Management
Tags: 2011, Advance Directives, Aged, Backlog, DNAR, Fatal Outcome, Female, Health Care Reform, Humans, Journal Article, Journal of Pain and Symptom Management, Living Wills, Mahon MM, Meningitis/et [Etiology], Pain Management, Pain/et [Etiology], Palliative Care, Pancreatic Neoplasms/co [Complications], Pancreatic Neoplasms/pa [Pathology], Pancreatic Neoplasms/th [Therapy], Resuscitation Orders
Tags: 2011, Analgesics/administration & dosage, Andrews B, Attitude Of Health Personnel, Backlog, Bos Arend, Cardiopulmonary Resuscitation/methods, Decision Making/ethics, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Lane L, Leuthner SR, Meadow W, Medical Futility, Neonatal, Neuromuscular Blocking Agents/administration & dosage, Newborn, Nicu, Pain/drug Therapy, Palliative Care/methods, Physician Assisted Dying PAD, Prognosis, Psychological/drug therapy, Retrospective Studies, Stress, The Journal Of Pediatrics, Verhagen AAE
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy
Tags: 2011, Backlog, Bader AM, Barnato AE, Gawande AA, Jha AK, Journal Article, Kwok AC, Lancet, Lipsitz SR, Semel ME
Tags: 2011, Backlog, Broderick A, Decision Making, DNAR, Hospital Administration/es [Ethics], Humans, Joint Commission Journal On Quality And Patient Safety / Joint Commission Resources, Journal Article, Kaldjian LC, Palliative Care/es [Ethics], Palliative Care/og [Organization & Administration], Patient Care Planning/es [Ethics], Patient Care Planning/og [Organization & Administration], Policy, Resuscitation Orders/es [Ethics], Terminal Care/es [ethics], Terminal Care/og [organization & Administration]
Tags: 2011, Acute physiology and chronic health evaluation, Aged, APACHE, Backlog, Costs And Cost Analysis, DNAR, DNAR Outcomes, Do Not Resuscitate, Female, Frankenthaler M, Hospital Mortality/td [Trends], Humans, Hussain E, Intensive Care Units/statistics & numerical data, Journal Article, Length of Stay/sn [Statistics & Numerical Data], Length of Stay/td [Trends], Lesser M, Lustbader DR, Male, Medical Futility, Medical intensive care, Napolitano B, Palliative & Supportive Care, Palliative Care, Palliative medicine consultation, Pekmezaris R, Referral And Consultation, Resuscitation Orders, Retrospective Studies, Smith F, Walia R