Browse Items (5 total)
- Tags: pulmonary hypertension
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Palliative Care in Pediatric Pulmonology
Tags: 2021, Baumann T, Benitez EA, Bronchopulmonary Dysplasia, Children, Communication, Cystic Fibrosis, Das S, Gazzaneo MC, Jarrell JA, lung transplant, Nakashima-Paniagua Y, Neuromuscular Disease, November 2021 List, Palliative Care, Pediatric Pulmonology, primary palliation, psychosocial support, pulmonary hypertension, Quality Of Life, Villafranco N
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Sleep abnormalities in untreated patients with mucopolysaccharidosis type VI
Tags: 2011, American Journal of Medical Genetics Part A, anamnesis, apnea, Article, Azevedo A C, Barrios P, breathing difficulties, characteristics, Child, Clinical Article, Clinical Feature, Controlled Study, Cross-sectional Study, Dalcin P, disease association, Disease Severity, Doppler echocardiography, Fagondes S, Female, Giugliani R, Glycosaminoglycans, Human, John A, Lysosomal storage diseases, lysosome storage disease, macroglossia, Male, Maroteaux Lamy syndrome, Menna-Barreto S, Morquio syndrome, MPSVI, Mucopolysaccharidosis, oxygen saturation, oxygen/ec [Endogenous Compound], physical examination, pigeon thorax, Polysomnography, Preschool Child, Prevalence, Priority Journal, Prospective Study, pulmonary hypertension, Schwartz I, Sleep apnea, sleep apnea syndrome/di [Diagnosis], sleep disorder, snoring, Trajectory, witnessed apnea
Talking to families when death becomes a likely outcome-a pilot simulation programme to improve end of life conversations during and around PICU admission
Tags: 2018, Advanced Cancer, Bone Marrow Transplantation, Cancer Staging, Cerebrovascular Accident, Child, conference abstract, Controlled Study, Conversation, craniofacial surgery, Death, Du Pre P, Experimental Therapy, Human, Immunology, Life Sustaining Treatment, Multidisciplinary team, November 2018 List, nursing role, Oncology, Palliative Therapy, Pediatric Critical Care Medicine, pulmonary hypertension, Sidgwick P, Simulation, Skellett S, Treatment Failure