Browse Items (213 total)
- Tags: Questionnaires
Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study
Tags: 2024, Adult, Attitude Of Health Personnel, Bergstrasser E, Chi Square Test, Comparative Studies, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Feuz U, Funding Source, Gerber AK, Health Personnel, Hospitals Pediatric, Human, July List 2024, Male, Middle Age, Mitterer S, Multidisciplinary Care Team, Palliative Care, Palliative Care and Social Practice, Pearson's Correlation Coefficient, Pediatric Care, Psychosocial Factors, Quality Of Life, Quality of Working Life, Questionnaires, Regression, Repeated Measures, Shiftwork, Simon M, Sociodemographic Factors, structural equation modeling, Summated Rating Scaling, Support Psychosocial, Switzerland, T-Tests, Von der Weid N, work environment, Work Experiences, workload, Zimmermann K
Effect of Music and Aromatherapy Applied in Pallıatıve Care on Symptom Management: A Systematic Revıew
Tags: 2024, Akbas Uysal Duygu, Aromatherapy, Control Group, Experimental Studies, Human, International Journal of Caring Sciences, July List 2024, music, Music Therapy, Nausea And Vomiting, Palliative Care, Psychological Tests, PubMed, Quasi-Experimental Studies, Questionnaires, Retrospective Design, scales, Senuzun Aykar Fisun, Signs and Symptoms, Systematic Review, Terminally Ill Patients, Therapy, Treatment Outcomes, Wong-Baker FACES Pain Rating Scale
"We Want to Talk about Death, Dying and Grief and to Learn about End-of-Life Care"-Lessons Learned from a Multi-Center Mixed-Methods Study on Last Aid Courses for Kids and Teens
Tags: 2024, Adolescence, anxiety, Attitude To Death, Bollig G, Child, Children, Course Content, Death Education, Drexler D, Education, Female, Focus Groups, Graf K, Grief, Gruna H, Human, Interviews, Learning, literacy, Male, May List 2024, Multicenter Studies, Multimethod Studies, Palliative Care, Pothmann R, Psychosocial Factors, Qualitative Studies, Questionnaires, Self-Awareness, Terminal Care
Effect of Sustaining a Perinatal Loss: Mothers’ Mental Health and Marital Satisfaction
Tags: 2024, Akhtar M, Attitude To Death, Bereavement, Child, Counselors, Cross Sectional Studies, Descriptive Statistics, Emotions, Evaluation, Female, Grief, Gynecologists, Human, Illness, Crisis and Loss, Infant, Infant Death, Khalid B, Marital Satisfaction, May List 2024, Mental Health, Mothers, Perinatal Death, Pregnancy, Psychological Well-being, Psychosocial Factors, Quantitative Studies, Questionnaires, scales, Snowball Sample, United States
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Measuring Knowledge of Healthcare Providers on Pediatric Palliative Care with an Online Questionnaire Based on the National Core Curriculum in Italy
Sleep quality moderates the association between family bereavement and heart rate variability
Tags: 2023, Almeida DM, Bereavement, Cardiovascular Diseases, Chai HW, Comparative Studies, Death, Descriptive Statistics, Family, Family Attitudes, Family Relations, Funding Source, Health Behavior, Heart Rate Variability, Human, insomnia, Jester DJ, Joo S, Journal Of Behavioral Medicine, Lee S, Psychological Distress, Psychological Well-being, Psychosocial Factors, Questionnaires, September List 2031, Sleep, Sleep Quality, surveys, Umberson DJ, United States, VULNERABILITY
Palliative care education in an Australian undergraduate pharmacy curriculum: an exploratory descriptive study
Tags: 2023, Adolescence, Adult, Ash K, Australia, clinical reasoning, Communication, Confidence, Curriculum, Descriptive Research, Descriptive Statistics, Education, Education Pharmacy, Empathy, Exploratory Research, Female, Human, International Journal of Pharmacy Practice, June 2022 List, Kumar S, Male, Mann-Whitney U Test, Ong JA, Palliative Care, Prospective Studies, Qualitative Studies, Questionnaires, Reflection, Rego J, Saini B, Self Concept, Students Undergraduate, surveys, Thematic Analysis, Ung T, Yates P
Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Tags: 2022, After Care, April List 2023, Brown RL, Coefficient Alpha, Comparative Studies, Data Analysis Software, Descriptive Statistics, Female, Hospitalization, Human, Hypothesis, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Johnson TS, Lagatta J, Leuthner J, Male, Malin KJ, Malnory M, Mental Disorders, Palliative Care, Parent-Infant Relations, Parents, Patient Discharge, Perinatal Care, Prospective Studies, Psychologists, Psychosocial Factors, Questionnaires, reliability and validity, Research in Nursing and Health, Rholl E, scales, Stress Disorders Post-Traumatic, Summated Rating Scaling, Uncertainty, White?Traut R
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Hospital Practices for Parents Following Perinatal Loss
Tags: 2020, Bereavement, Descriptive Statistics, Female, Funding Source, Grief, Hospitals – Turkey, Human, Infant Mortality – Psychosocial Factors – Turkey, Kalanlar B, Male, Midwives, November 2020 List, Nurses, Omega: Journal Of Death & Dying, Parental Attitudes, Physicians, psychosocial, Purposive Sample, Questionnaires, Support, Turkey
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Şener Taplak A, Thematic Analysis, Time Factors
Attachment to God as a Mediator of the Relationship Between Religious Affiliation and Adjustment to Child Loss
Tags: 2020, Adaptation, April 2020 List, Attachment Behavior – Evaluation – In Middle Age, Child Mortality – Psychosocial Factors, Female, Frei-Landau R, Grief – Evaluation, Hasson-Ohayon I, Human, Male, Middle Age, Models, Parental Attitudes, Psychological, Psychological – Evaluation – In Middle Age, Psychological Trauma: Theory, Research, Practice & Policy, Psychotherapy, Questionnaires, Religion and Psychology – Evaluation – In Middle Age, Silberg T, Tuval-Mashiach R
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Tags: 2019, Adult, Anticipatory Grieving, anxiety, Applied Nursing Research, Bereavement, Blacks -- Psychosocial Factors, Comparative Studies, Côté-Arsenault D, Denney-Koelsch E M, Depression, Descriptive Statistics, February 2020 List, Female, Fetal Abnormalities -- Diagnosis, Funding Source, Health Status, Hispanics -- Psychosocial Factors, Human, Interviews, Kavanaugh K, Male, McCoy T P, Multimethod Studies, Palliative Care, Parental Attitudes, Patient Satisfaction, Perinatal Care, Perinatal Death -- Psychosocial Factors, Psychological Well-being, Qualitative Studies, Quantitative Studies, Questionnaires, scales, Self Report, Summated Rating Scaling, surveys, Treatment Outcomes
Sleep disturbances in aspartylglucosaminuria (AGU): a questionnaire study.
Tags: 2006, Acetylglucosamine, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Aspartylglucosaminuria, characteristics, Child, Child Preschool, Children W/SNI, Female, Heiskala H, Humans, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso M L, Lindblom N, Longitudinal Studies, Male, Metabolism Inborn Errors, Metabolism Inborn Errors/complications/pathology, Middle Aged, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis, sleep disturbance/disorders, Sleep Wake Disorders, Surveys And Questionnaires, Trajectory
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Behavior Therapy, Benzodiazepines, characteristics, Child, Child Preschool, Delatycki M B, Fraser J, Gason A A, Humans, Incidence, Infant, Infant Newborn, melatonin, Melatonin/therapeutic use, MPS III, Mucopolysaccharidosis III/psychology, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, sleep disturbance/disorders, Trajectory, Treatment Outcome, Wraith J E
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites
The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care
Tags: 2014, Adult, Attitude Of Health Personnel, Attitudes, Backlog, Child, Female, Friderici J, Goff Sarah L, Health Knowledge, Humans, Internship And Residency, Journal Article, Journal of Palliative Medicine, Male, Palliative Care, Patient Care Team, Pediatrics, Practice, Questionnaires, United States, Wu KL
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
Can art therapy reduce death anxiety and burnout in end-of-life care workers? a quasi-experimental study
Tags: 2014, Adolescent, Adult, anxiety, Art Therapy, Backlog, Burnout, Chan F, Cheng C, Female, Health Personnel, Humans, Hy Ho A, International Journal of Palliative Nursing, Journal Article, Lu Wang Xiao, Male, Middle Aged, Potash J, Professional, Questionnaires, Self Efficacy, Terminal Care, Young Adult
Parent perceptions of the quality of information received about a child's cancer
Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?
Tags: 2013, Adolescent, Alexander S, Attitude To Death, Backlog, Child, Choice Behavior, Female, Follow-up Studies, home care services, Hospice Care, Hospitals, Humans, Journal Article, Kassam A, Male, Neoplasms, Parents, Pediatric Blood & Cancer, Physicians, Preschool, Prognosis, Quality Of Life, Questionnaires, Residence Characteristics, Skiadaresis J, Terminal Care, Wolfe J
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Bereaved Jewish mothers of children who died of cancer: the relationship between the mother and the deceased child and the mother's perceived functioning
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Tags: 2013, Adaptation, Adult, Backlog, Bereavement, Case-Control Studies, Child, Cohort Studies, Eilegård A, Female, Follow-up Studies, Health Status, Humans, Journal Article, Kreicbergs U, Male, Mental Health, Neoplasms, Nyberg T, Psycho-Oncology, Psychological, Questionnaires, Self Concept, sibling bereavement, Siblings, Sleep Initiation and Maintenance Disorders, Steineck G, Sweden, Young Adult
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
The role of partner relationships in the young person's adherence to the diabetes self-care regime
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Backlog, Cross-sectional Studies, Diabetes Mellitus, Female, Gillibrand R, Humans, International Journal Of Behavioral Medicine, Interpersonal Relations, Journal Article, Male, Patient Compliance/statistics & numerical data, Questionnaires, Self Care, Sexual Partners, Stevenson J, Type 1/drug therapy/psychology
Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe
Tags: 2009, Adolescent, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Canobbio MM, Child, Congenital/therapy, Continuity Of Patient Care, Europe, Fernandes SM, Fleck D, Heart Defects, Hilderson D, Humans, Journal Article, Kovacs AH, Linstead R, Meadows A, Moons P, Patient Transfer/statistics & numerical data, Pediatric Cardiology, Questionnaires, Retrospective Studies, Saidi AS, United States, Van Deyk K, Verstappen A
Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T
Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy
Tags: 2008, Adolescent, Adult, Backlog, Body Temperature/physiology, Cerebral Palsy/complications/physiopathology, Child, Constipation/etiology, Data Collection, Englund E, European Journal of Paediatric Neurology, Extremities/blood supply/physiology, Female, Health Status, Humans, Journal Article, Male, Malker H, Muscle Tonus/physiology, Pain/etiology, Parents, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/etiology, Stener-Victorin E, Svedberg LE