Sharing the care: the key-working experiences of professionals and the parents of life-limited children

Title

Sharing the care: the key-working experiences of professionals and the parents of life-limited children

Creator

Rodriguez A; King N

Publisher

International Journal Of Palliative Nursing

Date

2014

Subject

adolescent; Child; Female; Humans; Male; Terminal Care; Great Britain; Adult; Parents; Questionnaires; Middle Aged; Professional-Family Relations; Health Services Needs and Demand; Health Personnel; caregivers; Child Health Services; Focus Groups; Patient Care Planning; Stress; Psychological

Description

AIMS: To explore the lived experience of caring and care planning for a child with a life-limiting condition (LLC). METHOD: Using van Manen's conceptualisation of hermeneutic phenomenology, three focus groups were conducted with 21 paediatric palliative care professionals, and interviews were conducted with 20 parents of children with LLCs. FINDINGS: Parents' expectations for support were raised by the diagnosis, but the reality could disappoint, which put pressures on professionals. Current service designs with respect to key working did not always coincide with family preferences. Both parents and professionals found that the care journey required them to shift personas to respond to different contexts. CONCLUSIONS: The findings are limited by the sample characteristics, but they provide insight for current policy and practice initiatives. The key worker needs to be mindful of historical care arrangements and be prepared to step into the family 'team' arrangements.
2014-04

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

165-171

Issue

4

Volume

20

Citation

Rodriguez A; King N, “Sharing the care: the key-working experiences of professionals and the parents of life-limited children,” Pediatric Palliative Care Library, accessed July 25, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14907.

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