Browse Items (70 total)
- Tags: Child Preschool
Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Caregiver, Caregivers/psychology, Child, Child Preschool, Female, Humans, Hurley F, Infant, Interviews As Topic, Journal Of Child Health Care, Kiernan G, Male, Middle Aged, Palliative Care, Parenting/psychology, Parents, Parents/psychology, Price J, Qualitative Research
Psychosocial factors affecting the quality of life of parents who have children with home mechanical ventilation
Tags: 2024, 2024 SE2 - Parent Perspectives, Adult, Bakirarar B, Bayav S, Child, Child Preschool, Cobanoglu N, Cross-sectional Studies, Duman B, Female, home care services, home mechanical ventilation, Humans, Male, Middle Aged, Ozcan G, Parents, Parents/psychology, Pediatric Pulmonology, Quality Of Life, Quality Of Life/psychology, Respiration Artificial/psychology, Social Support, Surveys And Questionnaires, Tekin MN, Zirek F
The Spiritual Dimension of Parents' Experiences Caring for a Seriously Ill Child: An Interview Study
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Brouwer MA, Child, Child Preschool, Engel M, existential care, family care, Female, Humans, Infant, Infant Newborn, Interviews As Topic, Journal of Pain and Symptom Management, Kars MC, Leget C, Male, Middle Aged, Palliative Care, Palliative Care/psychology, Parents/psychology, Pediatrics, Qualitative Research, Spiritual Care, Spirituality, Teunissen SCCM, Young Adult
Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Baker JN, Cancer, Child, Child Preschool, Collins G, Communication, Disclosure, Education, Female, Humans, Interviews As Topic, Kaye EC, Mack JW, Male, Neoplasms/psychology, Oncologists/psychology, Parents/psychology, Pediatric, Physician-patient Relations, Professional-family Relations, Prognosis, Prospective Studies, Qualitative Research, Quality, Self Disclosure, Supportive Care In Cancer, Truth Disclosure, Zalud K
Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trial
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Anxiety/epidemiology, Avery M, Becker D, Bona K, Cancer, Child, Child Preschool, children with advanced cancer, Depression/epidemiology, Dussel V, Eche-Ugwu IJ, Family Characteristics, Female, Feudtner C, Freedman JL, household material hardship (HMH), housing, Humans, Kang TI, Male, Middle Aged, Neoplasms/psychology/epidemiology, Orellana L, Palliative Care, parent depression, parent state anxiety, Parents/psychology, Poverty, Psychological Distress, Rosenberg AR, Stress Psychological/epidemiology, Ullrich CK, Waldman ED, Wolfe J
Hand Castings of Children With Terminal Illnesses From Cancer Can Provide Comfort to Grieving Families
A Pilot of a Telehealth-Hospice Transition Intervention for Children and Young Adults with Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Brock KE, Caregivers, Child, Child Preschool, DeGroote NP, Feasibility Studies, Female, Harris E, Hospice Care, Hospice Care/mt [Methods], Humans, Infant, Infant Newborn, Journal of Pain and Symptom Management, Kavalieratos D, Klosky JL, Lange A, Male, Neoplasms, Neoplasms/th [therapy], Patient Satisfaction, Pilot Projects, Prospective Studies, Telemedicine, Wasilewski-Masker K, Wolfe J, Young Adult
Clinical and socio-demographic profile of children receiving pediatric palliative care in a tertiary hospital of a metropolitan city in India
Tags: 2024, 2025 SE2 - LRS, Adolescent, Article, Bisen P, Child, Child Preschool, Childhood Disease, Chronic Disease, Chronic Disease/th [Therapy], Confusion, Constipation, Controlled Study, Deodhar J, Diagnosis, Disability, Dysphagia, European Journal of Pediatrics, Fatigue, Female, fever, Holistic Care, Human, Humans, immunopathology, India/ep [Epidemiology], Infant, Infant Newborn, Major Clinical Study, Male, Malik S, Muckaden MA, Neuromuscular Disease, Observational Study, Palliative Care, Palliative Care/sn [Statistics & Numerical Data], Palliative Therapy, pediatric patient, Rathi S, Retrospective Studies, Sample Size, Seizure, Socioeconomic Factors, Talawadekar P, terminal disease, tertiary care center, Tertiary Care Centers, Tertiary Care Centers/sn [Statistics & Numerical Data], Therapy, Wade P
PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-Threatening illnesses
Tags: 2025, Adolescent, Child, Child Preschool, Chronic Disease, Cross-sectional Studies, Cross-sectional Study, devices, Female, Human, Humans, Male, March List 2025, PACOPED QL, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Pediatric Palliative Care, Pediatrics, Pilot Projects, Pilot Study, Preschool Child, Procedures, Psychology, Psychometrics, psychometry, Quality Of Life, Questionnaire, Reliability, Reproducibility, Reproducibility of Results, Riera-Negre L, Rosselló MR, Surveys And Questionnaires, Validity, Varona J, Verger S
Complications and benefits of enteral feeding in children with progressive neurological disease in a palliative care service: a retrospective study
Exploring Parents' Experiences and Needs During Disclosure of a Cerebral Palsy Diagnosis of Their Young Child: A Scoping Review
Tags: 2024, Benders Mjnl, Cerebral Palsy, Cerebral Palsy/psychology, Child, Child Preschool, Child: Care, Health and Development, Communication, disclosure of diagnosis, Experiences, February List 2025, Gorter JW, Humans, Ketelaar M, Needs, Needs Assessment, Parent-child Relations, Parents, Parents/psychology, Professional-family Relations, Rentinck ICM, Sommers-Spijkerman MPJ, Truth Disclosure, van der Kemp J
Intrathecal baclofen therapy as treatment for spasticity and dystonia: Review of cases in a pediatric palliative care unit
Tags: 2024, Adolescent, Alba RM, baclofen, Baclofen/ad [Administration & Dosage], Baclofen/tu [Therapeutic Use], Cerebral Palsy/dt [Drug Therapy], Child, Child Preschool, de Noriega EI, Dystonia, dystonia/dt [Drug Therapy], Errasti VI, February List 2025, Female, Humans, Infant, Injections Spinal, Male, Muscle Relaxants Central, Muscle Relaxants Central/ad [Administration & Dosage], Muscle Relaxants Central/tu [Therapeutic Use], Muscle Spasticity, Muscle Spasticity/dt [Drug Therapy], Neurologia, Palliative Care, Pantothenate Kinase-Associated Neurodegeneration/dt [Drug Therapy], Perez MMA, Puertas MV, Retrospective Studies
The usage of family audiobooks as a legacy for grieving children - an exploratory quantitative analysis among terminally ill parents and close persons
Dignity in the Pediatric Population: A Systematic Review
Tags: 2024, Adolescent, Baker JN, Barrows C, Child, Child Preschool, Coughlin R, Easton V, February List 2025, Humans, Infant, Infant Newborn, Journal of Pain and Symptom Management, Kaye EC, Kessler A, Mali N, Palliative Care/es [Ethics], Pediatrics, Pediatrics/es [Ethics], Respect, Robinson M, Sawyer K, Silverstein A, Sirrine E, Spears M, Wrigley J
Of course you crash' Parenting a young child with neurodevelopmental difficulties.
Tags: 2024, Adaptation Psychological, Adult, Child Preschool, Emotions, Faldt A, Fangstrom K, February List 2025, Female, Humans, Male, neurodevelopmental disorders, Neurodevelopmental Disorders/px [Psychology], Parent-child Relations, Parenting, Parenting/px [Psychology], Parents, Parents/px [psychology], Qualitative Research, Research in Developmental Disabilities, Social Support, Stress Psychological/px [psychology]
"My child is my job now" - Care, work and careers of mothers with disabled children in the Norwegian welfare state.
Tags: 2024, Adult, Albertini FE, Career Choice, Child, Child Preschool, Disabled Children, Disabled Children/px [Psychology], Disabled Children/sn [Statistics & Numerical Data], Employment/px [Psychology], Employment/sn [Statistics & Numerical Data], February List 2025, Female, Humans, Middle Aged, Mothers, Mothers/px [Psychology], Mothers/sn [Statistics & Numerical Data], Norway, Osterud KL, Qualitative Research, Skjonsberg EE, Social Science and Medicine, Social Welfare/px [Psychology]
Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation.
Mothering a Child With Complexity and Rarity: A Narrative Inquiry Exploring Prader-Willi Syndrome.
Tags: 2024, Adolescent, Adult, Caine V, Child, Child Preschool, Currie G, Estefan A, February List 2025, Female, Humans, Hyperphagia/px [Psychology], Interviews As Topic, Male, Mother-child Relations, Mother-Child Relations/px [Psychology], Mothers, Mothers/px [Psychology], Narration, prader-willi syndrome, Prader-Willi Syndrome/px [Psychology], Qualitative Health Research, Qualitative Research
Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research
Tags: 2024, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Chronic Disease / psychology, Cook K, Disabled Children / psychology, Female, Health Services Research, Hermansen A-M, Humans, Kim L, Male, Middle Aged, Motivation, November List 2024, Parents / psychology, Qualitative Research, Siden H
A 15-year experience in pediatric palliative care: a retrospective hospital-based study
Tags: 2024, Adolescent, Agosto C, Benini F, BMC Palliative Care, Child, Child Preschool, Divisic A, Female, Giacomelli L, Humans, Infant, Infant Newborn, Italy, Lazzarin P, Male, Mercante A, Mirisola V, October List 2024, Palliative Care, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Papa S, Pediatrics/mt [methods], Pediatrics/sn [statistics & Numerical Data], Referral And Consultation, Referral and Consultation/sn [Statistics & Numerical Data], Referral and Consultation/st [Standards], Retrospective Studies, Rusalen F, Schiavon M, Zanin A
Camp Draws You Back Into Life Again: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness
Tags: 2024, Adaptation Psychological, Adolescent, Adult, Article, Bereavement, Camping/psychology, Child, Child Preschool, childhood, Family, Female, Guerin S, Hanlon P, Humans, Kiernan G, Male, Middle Aged, October List 2024, of interest with respect to the research authorship and/or publication of this, OMEGA - Journal of Death and Dying, Parents/psychology, Qualitative Research, Recreation Therapy, Serious Illness, therapeutic recreation
Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review
Tags: 2024, Adolescent, Balfe J, BMC Palliative Care, Child, Child Preschool, Delamere T, Fraser LK, Health Services Needs and Demand/sn [Statistics & Numerical Data], Humans, Infant, Infant Newborn, Needs Assessment/sn [Statistics & Numerical Data], October List 2024, Palliative Care, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Sheaf G, Smith S
Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review
Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult
Comprehensive care programmes for children with medical complexity
Tags: 2024, Adolescent, adverse outcome, August List 2024, Bias, Caregiver, Child, Child Health Care, Child Preschool, Children With Medical Complexity, Chronic Disease, Cochrane Database of Systematic Reviews, Cohen E, community care, Comprehensive Health Care, Connell TG, Controlled Before-After Studies, controlled clinical trial (topic), Cox GR, D’Aprano AL, Decision Making, Emergency Health Service, Emergency Ward, Epidemiology, Functional Status, Gibb SM, Harvey AR, Health Care, Health Care Cost, Health Care Delivery, health care need, health care organization, Health Care Personnel, Health Care Quality, Health Care Utilization, health Insurance, Hospital Admission, hospital readmission, Human, Humans, Infant, Interrupted Time Series Analysis, life satisfaction, Medical Care, Meehan E, Merrick N, meta analysis, Mountford NJ, Multidisciplinary team, Multiple Chronic Conditions, Non-Randomized Controlled Trials as Topic, outcome assessment, Patient Safety, Perception, Preschool Child, Primary Health Care, Program Evaluation, pulmonary aspiration, Quality Of Health Care, Quality Of Life, Randomized Controlled Trial (topic), Randomized Controlled Trials as Topic, remuneration, Review, social determinants of health, Social Worker, statistical bias, Survival Rate, Telemedicine, Therapy, Transition To Adult Care, Williams K
Interventions Performed in Children With Immunocompromised Conditions in the Pediatric Intensive Care Unit Within 48 Hours of Death
Tags: 2024, Adolescent, August List 2024, Child, Child Preschool, Cohort Studies, Espinoza J, Female, Humans, Immunocompromised Host, Infant, Intensive Care Units Pediatric, Intensive Care Units Pediatric/sn [Statistics & Numerical Data], Journal of Palliative Medicine, Kegel A, Male, Palliative Care, Rahrig A, Retrospective Studies, Rowan CM, Schade-Wills T, Terminal Care, Time Factors
Experiences of Fathers in Norway Attending an Online Course on Therapeutic Writing After the Death of a Child
Tags: 2024, Adult, Bereavement, Child, Child Preschool, Coping, Death, Emotions, Father-child Relations, Fathers, Funding Source, Grief, Human, In Infancy and Childhood, June List 2024, Kalstad TG, Lehmann OV, Male, Methods, Neimeyer RA, Norway, Online education, Psychosocial Factors, Psychotherapy, Psychotherapy Group, Qualitative Health Research, Support Psychosocial, writing
Differences in palliative opportunities across diagnosis groups in children with cancer.
Tags: 2023, 2023 SE3 - Oncology, Adolescent, Allen KE, Brock KE, Castellino SM, Child, Child Preschool, Clinical Trials Phase I as Topic, DeGroote NP, Ebelhar J, Humans, Infant, Infant Newborn, Labudde E, Leukemia, Lymphoma, Massie AM, Neoplasms/therapy, Only Child, Palliative Care, Pediatric Blood and Cancer, Quality Of Life, Recurrence, Retrospective Studies, Terminal Care/psychology, Wasilewski-Masker K
Associations between Music Therapy, Pain and Heart Rate for Children Receiving Palliative Care
Tags: 2023, Bernard A, Bradford N, Child, Child Preschool, Confidence Intervals, Convenience Sample, Delaney AM, Descriptive Statistics, Female, Heart Rate, Herbert AR, Human, In Infancy and Childhood, Infant, Infant Newborn, July List 2023, Male, Multimethod Studies, Music Therapy, Music Therapy Perspectives, Only Child, Pain, Palliative Care, Pediatric Care, Pretest-Posttest Design, Prevention and Control, Psychosocial Factors, Purposive Sample, Quality Of Life, scales, Summated Rating Scaling, Thematic Analysis, Therapy
The Needs of Children Receiving End of Life Care and the Impact of a Paediatric Palliative Care Team: A Retrospective Cohort Study
Tags: 2023, Adolescent, April List 2023, Cancelinha C, Child, Child Preschool, Chronic Disease, Cohort Studies, Complex Chronic Conditions, Correia D, End Of Life, European Journal of Pediatrics, Female, Gomes B, Health Resources, Humans, Infant, Length Of Stay, Loureiro M, Male, Nogueira A, paediatric palliative care, Palliative Care, Palliative Care/methods, Retrospective Studies, Terminal Care, Terminal Care/methods, Tertiary Care Centers
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Acute Disease, Adult, agency, Berkley JA, Caregivers, Charo A, Child Health, Child Mortality, Child Preschool, Childhood acute illness, Cohort Studies, Continuity Of Patient Care, Delivery of Health Care/standards, Family, Family Characteristics, Female, Health Facilities, Hospitalization, Humans, Infant, International Journal for Equity in Health, Kelley M, Kenya/epidemiology, Kimani MN, Male, Marsh V, Molyneux S, Muraya K, Njeru RW, Prospective Studies, Qualitative Research, Rural Population, Sanga G, Sarma H, Social Support, Treatment-seeking, Uddin MF, VULNERABILITY, Vulnerable Populations, Walson JL, Zakayo SM
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
Sibling Mortality Burden in Low-Income Countries: A Descriptive Analysis of Sibling Death in Africa, Asia, and Latin America and the Caribbean
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Asia, Caribbean Region, Child, Child Preschool, Cost Of Illness, Developing Countries, Female, Global Health, Humans, Infant, Infant Newborn, Latin America, Male, Middle Aged, Mortality/trends, PLoS One, Poverty, Siblings, Smith-Greenaway E, Socioeconomic Factors, Weitzman A, West Indies, Young Adult
Integrating a Palliative Approach into the Healthcare provided by the French-African Pediatric Oncology Group's Pilot Units. Insights from a 3-year Training Program
Tags: 2021, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Africa, Archives de Pediatrie, Aubier F, Calmanti S, Child, Child Preschool, Doucot MS, Edan C, Education Medical Continuing/methods/organization & administration, France, French-speaking Africa, Gagnepain-Lacheteau A, Hessissen L, Humans, Infant, Infant Newborn, International Cooperation, Medical Oncology/education, Moreira C, Oncology, Pain Management, Palliative Care, Patient Care Team, Patte C, Pediatrics, Pediatrics/education, Poulain P, Thinlot C, Training, Viallard ML, Yao AJJ
Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adolescents, Age Distribution, Brazil/epidemiology, Child, Child Preschool, Children, Comorbidity, COVID-19, COVID-19/mortality, Cristina FLD, Cristina FVS, de Siqueira ALA, deaths, Eduardo CL, Female, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Intensive Care Units, Lima SPR, Male, Mortality, Queiroz GR, Santana SV, Tropical Medicine & International Health
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Use of patient-controlled analgesia for pain control in dying children
Tags: 0 (analgesics Opioid), 2008, 76I7G6D29C (Morphine), Adolescent, Analgesia Patient-Controlled, Analgesics Opioid/ad [Administration & Dosage], Analgesics Opioid/tu [Therapeutic Use], Child, Child Preschool, Female, Gravou C, Griessinger N, Humans, January 2018 List, Male, Morphine/ad [Administration & Dosage], Morphine/tu [Therapeutic Use], Neoplasms/pp [Physiopathology], Pain Intractable/dt [Drug Therapy], Pain Measurement, Palliative Care, Retrospective Studies, Schiessl C, Sittl R, Supportive Care In Cancer, Terminal Care, Treatment Outcome, Zernikow B
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Tags: 2017, Adolescent, Ambulatory Care/ economics/utilization, Berry JG, Child, Child Preschool, Chronic Disease, Constipation/economics/ therapy, DeJong N, Delivery of Health Care/ economics, Emergency Service Hospital/utilization, Female, Hall M, Health Care Costs, Hospitalization/economics, Humans, Infant, January 2018 List, Journal Of Pediatric Gastroenterology And Nutrition, Male, Medicaid, Multiple Chronic Conditions, Patient Acceptance of Health Care, Prevalence, Retrospective Studies, Richardson T, Rodean J, Steiner MJ, Stephens JR, United States