Browse Items · Pediatric Palliative Care Library

Barriers to and Facilitators of Neonatal Palliative Care Among Neonatal Professionals in China

Objectives: This study investigated institutional and personal barriers to and facilitators of neonatal palliative care facing neonatal professionals in China. Methods: A cross-sectional questionnaire surveyed 231 neonatal clinicians employed in 5…

Tags: 2022, 2022 Special Edition Low Resource Setting Issue, American Journal of Hospice and Palliative Medicine, Chang YC, Child, Cross-sectional Study, Gu L, Health Personnel Attitude, Human, Li ZZ, Neonatal Intensive Care Unit, Newborn, palliative nursing, Palliative Therapy, Peng NH, Terminal Care, Wei BR, Zhou JF

Effects of a Web-Based Pediatric Oncology Legacy Intervention on the Coping of Children With Cancer

BACKGROUND: Recurrent or refractory cancer often results in substantial and extensive physical, emotional, psychosocial, and spiritual burdens for children and their families. However, the therapeutic benefits of legacy interventions in children with…

Ethics Roundtable: How Much is Too Much?

How should the medical team approach care for a very preterm infant with a significant painful and life-limiting condition when the parents wish to pursue all life-sustaining therapies? Here, we discuss a case of an infant born at 28 weeks' gestation…

Tags: 2023, American Journal of Hospice and Palliative Medicine, Carmi syndrome, Carter B, DiBartolomeo M, end-of-life, epidermolysis bullosa, Ethics, February List 2023, Gastric Outlet Obstruction, Hays J, Humans, Infant, Life-limiting Condition, Newborn, Palliative Care, Premature Ectodermal Dysplasia Pylorus/abnormalities, Theodoro MF

Patterns of Health Care Services During Pediatric Concurrent Hospice Care: A National Study

BACKGROUND: Children at end of life have unique and complex care needs. Although there is increasing evidence about pediatric concurrent hospice care, the health care services received while in hospice have not received sufficient attention.…

Tags: 2022, American Journal of Hospice and Palliative Medicine, April 2022 List, Children, end-of-life, Health Care Services, Hospice Care, Keim-Malpass J, Lindley LC, Mendola A, Mooney-Doyle K, Naumann WC, Pediatric, Svynarenko R

Pediatric End-of-Life Care in Rural America: A Systematic Review

BACKGROUND: Families increasingly desire to bring their children home from the acute care setting at end of life. This transition includes home to rural or remote areas. Little is known about the end-of-life care for children who reside in rural…

Tags: 2021, American Journal of Hospice and Palliative Medicine, Cozad MJ, February 2022 List, Fornehed MLC, Keim-Malpass J, Lindley LC, pediatric end-of-life, pediatric hospice, Pediatric Palliative Care, rural health care, rural hospice, Stone W, Systematic Review

Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care

BackgroundThe 2010 Patient Protection and Affordable Care Act (ACA) mandated landmark hospice care legislation for children at end of life. Little is known about the impact of pediatric concurrent hospice care.ObjectiveThe purpose of this study was…

Tags: 2021, American Journal of Hospice and Palliative Medicine, care continuity, concurrent hospice care, Cozad MJ, emergency department use, Hinds PS, Hospice Length Of Stay, hospice live discharge, inpatient admission, January 2022 List, Keim-Malpass J, Lindley LC, Mack JW, Medicaid, Pediatric Hospice Care, Svynarenko R

Recent Changes in End-of-Life Decisions for Newborns in a Korean Hospital

INTRODUCTION: Despite recent advances in neonatal intensive care in Korea, few studies exist on the end-of-life decisions in newborns. In this study, we sought to examine the status of end-of-life decisions in neonates, changes over time, and…

Tags: 2017, American Journal of Hospice and Palliative Medicine, Decision Making, end-of-life, Ethics, Kim MJ, Lee HD, Lee JH, Neonatal Care, Neonatal Intensive Care Unit, Newborns, November 2017 List

Pain Management Concerns From the Hospice Family Caregivers' Perspective

BACKGROUND: Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives. OBJECTIVES:…

Tags: 2017, American Journal of Hospice and Palliative Medicine, Carers, Chi NC, Demiris G, End-of-life Care, Family Caregivers, Hospice Care, November 2017 List, Oliver DP, Pain Management, Pain Medications, Pike KC, Washington K

Aspects And Intensity Of Pediatric Palliative Case Management Provided By A Hospital-based Case Management Team

OBJECTIVES: Anticipating case management is considered crucial in pediatric palliative care. In 2012, our children's university hospital initiated a specialized pediatric palliative care team (PPCT) to deliver inbound and outbound case management for…

Tags: 2017, American Journal of Hospice and Palliative Medicine, Bosman DK, Case Management, Child, Colenbrander DA, End-of-life Care, Grootenhuis MA, Jagt Van Kampen CT, Kars MC, May 2017 List, Only Child, Palliative Care, Palliative Care Team, Pediatrics, Retrospective Studies, Schouten-Van Meeteren AYN

End-of-life Conversation Game Increases Confidence For Having End-of-life Conversations For Chaplains-in-training

CONTEXT: Discussing end-of-life issues with patients is an essential role for chaplains. Few tools are available to help chaplains-in-training develop end-of-life communication skills. OBJECTIVE: This study aimed to determine whether playing an…

Tags: 2017, American Journal of Hospice and Palliative Medicine, Bohr T A, Communication, End-of-life Conversations, Green M J, Health Games, Levi B H, October 2017 List, Palliative Care, Pastoral Care, Terminal Care, Van Scoy L J, Watson-Martin E

Pediatric Primary Care Involvement In End-of-life Care For Children

OBJECTIVES: To examine the relationship between pediatric primary care involvement and hospice and home health care use at end of life. METHODS: California Medicaid data were used to estimate the relationship between pediatric primary care…

Pediatrician Ambiguity In Understanding Palliative Sedation At The End Of Life

CONTEXT: Palliative sedation is a means of relieving intractable symptoms at the end of life, however, guidelines about its use lack consistency. In addition, ethical concerns persist around the practice. There are reports of palliative sedation in…

Religion And Spiritual Care In Pediatric Intensive Care Unit: Parental Attitudes Regarding Physician Spiritual And Religious Inquiry

OBJECTIVE: Parents of seriously ill children require attention to their spiritual needs, especially during end-of-life care. The objective of this study was to characterize parental attitudes regarding physician inquiry into their belief system.…

Tags: 2016, American Journal of Hospice and Palliative Medicine, Arutyunyan T, Decision Making, February 2017 List, Niedner M, Odetola F, Pediatric Intensive Care Unit, Religious Belief, Spiritual Care, Spiritual History, Swieringa R

Physician Communication In Pediatric End-of-life Care: A Simulation Study

Objective: The objective of this exploratory study is to describe communication between physicians and the actor parent of a standardized 8-year-old patient in respiratory distress who was nearing the end of life. Methods: Thirteen pediatric…

Tags: 2016, American Journal of Hospice and Palliative Medicine, Bateman LB, Clair Jeffrey Michael, Dure Leon S, End-of-life Communication, January 2017 List, Needham Belinda L, Palliative Care, Pediatric End-of-life Care, Pediatrics, Physician–parent Communication, Qualitative Methods, Simulation, Therapeutic Processes, Tofil Nancy M, White Marjorie Lee

Pediatric Palliative Care Pilot Curriculum: Impact Of "pain Cards" On Resident Education

BACKGROUND:
Prior research has shown that less than 40% of pediatric program directors believe their graduating residents competent in palliative care. While many curricula have been developed to address this need, few have demonstrated improved…

Nurse Knowledge, Work Environment, And Turnover In Highly Specialized Pediatric End-of- Life Care.

OBJECTIVE:
To examine the relationship between nurse knowledge, work environment, and registered nurse (RN) turnover in perinatal hospice and palliative care organizations.

METHODS:
Using nurse intellectual capital theory, a multivariate analysis…

Tags: 2016, Advanced Practice Nurses, American Journal of Hospice and Palliative Medicine, Cozad MJ, Lindley LC, May 2016 List, Nurse Intellectual Capital Theory, Perinatal Hospice, Perinatal Palliative Care, Rn Turnover, Rn Work Environment

Palliative Care In Undergraduate Medical Education—how Far Have We Come?

Purpose: There is an increasing demand for quality palliative care teaching within undergraduate medical education. Studies suggest that many junior doctors feel underprepared to perform end-of-life care. Previous systematic reviews on palliative…

Tags: 2016, Adelaide, American Journal of Hospice and Palliative Medicine, Australia, Australia And New Zealand, Danielle Fitzpatrick, End-of-life Care, Helena Ward, July 2016 List, Medical Education, Medical School, Palliative And Supportive Care, Palliative Care, Professional Education, Rebecca Heah, Simon Patten, Undergraduate Medical Education

Predictors Of Intention To Refer To Pediatric Palliative Or Hospice Care

The purpose of this descriptive correlational study was to determine whether nurse characteristics, level of comfort with care of the dying, and spirituality predict intention to refer and timing of referral to pediatric palliative/hospice care. The…

Evaluating Hospice And Palliative Medicine Education In Pediatric Training Programs.

BACKGROUND:
Hospice and Palliative Medicine (HPM) competencies are of growing importance in training general pediatricians and pediatric sub-specialists. The Accreditation Council for Graduate Medical Education (ACGME) emphasized pediatric trainees…

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