Ethics Roundtable: How Much is Too Much?
Title
Ethics Roundtable: How Much is Too Much?
Creator
Theodoro MF; Hays J; DiBartolomeo M; Carter B
Identifier
Publisher
American Journal of Hospice and Palliative Medicine
Date
2023
Subject
Infant; Newborn; Humans; Infant; Premature Ectodermal Dysplasia Pylorus/abnormalities; Gastric Outlet Obstruction; Carmi syndrome; end-of-life; epidermolysis bullosa; ethics; Life-limiting condition; Palliative Care
Description
How should the medical team approach care for a very preterm infant with a significant painful and life-limiting condition when the parents wish to pursue all life-sustaining therapies? Here, we discuss a case of an infant born at 28 weeks' gestation with a diagnosis of Carmi syndrome (junctional epidermolysis bullosa and pyloric atresia). While the medical team felt that a do-not-resuscitate order and redirection to comfort care were appropriate, the family held on to hope for recovery and wished to continue with full intensive care measures.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
February List 2023
URL Address
Collection
Citation
Theodoro MF; Hays J; DiBartolomeo M; Carter B, “Ethics Roundtable: How Much is Too Much?,” Pediatric Palliative Care Library, accessed April 23, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18616.