Ethics Roundtable: How Much is Too Much?

Title

Ethics Roundtable: How Much is Too Much?

Creator

Theodoro MF; Hays J; DiBartolomeo M; Carter B

Publisher

American Journal of Hospice and Palliative Medicine

Date

2023

Subject

Infant; Newborn; Humans; Infant; Premature Ectodermal Dysplasia Pylorus/abnormalities; Gastric Outlet Obstruction; Carmi syndrome; end-of-life; epidermolysis bullosa; ethics; Life-limiting condition; Palliative Care

Description

How should the medical team approach care for a very preterm infant with a significant painful and life-limiting condition when the parents wish to pursue all life-sustaining therapies? Here, we discuss a case of an infant born at 28 weeks' gestation with a diagnosis of Carmi syndrome (junctional epidermolysis bullosa and pyloric atresia). While the medical team felt that a do-not-resuscitate order and redirection to comfort care were appropriate, the family held on to hope for recovery and wished to continue with full intensive care measures.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

February List 2023

Collection

Citation

Theodoro MF; Hays J; DiBartolomeo M; Carter B, “Ethics Roundtable: How Much is Too Much?,” Pediatric Palliative Care Library, accessed April 20, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18616.