Aspects And Intensity Of Pediatric Palliative Case Management Provided By A Hospital-based Case Management Team

Title

Aspects And Intensity Of Pediatric Palliative Case Management Provided By A Hospital-based Case Management Team

Creator

Jagt Van Kampen CT; Colenbrander DA; Bosman DK; Grootenhuis MA; Kars MC; Schouten-Van Meeteren AYN

Identifier

10.1177/1049909117695068

Publisher

American Journal Of Hospice And Palliative Medicine

Date

2017

Subject

Case Management; Child; End-of-life Care; Only Child; Palliative Care; Palliative Care Team; Pediatrics; Retrospective Studies

Description

OBJECTIVES: Anticipating case management is considered crucial in pediatric palliative care. In 2012, our children's university hospital initiated a specialized pediatric palliative care team (PPCT) to deliver inbound and outbound case management for children with life-shortening disease. The aim of this report is to gain insight in the first 9 months of this PPCT. METHODS: Aspects of care during the first 9 months of the PPCT are presented, and comparison is made between patients with malignant disease (MD) and nonmalignant disease (NMD) in a retrospective study design. Insight in the aspects of care of all patients with a life-shortening disease was retrieved from web-based files and the hour registrations from the PPCT. RESULTS: Forty-three children were supported by the PPCT during the first 9 months: 22 with MD with a median of 50 (1-267) days and 29 minutes (4-615) of case management per patient per day and 21 patients with NMD with a median of 79.5 (5-211) days and 16 minutes of case management per day (6-64). Our data show significantly more interprofessional contacts for patients with MD and more in-hospital contacts for patients with NMD. The median number of admission days per patient was 11 (0-22) for MD (44% for anticancer therapy) and 44 (0-303) for NMD (36% for infectious diseases). SIGNIFICANCE OF RESULTS: This overview of aspects of pediatric palliative case management shows shorter but more intensive case management for MD in comparison with NMD. This insight in palliative case management guides the design of a PPCT.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

May 2017 List

Citation

Jagt Van Kampen CT; Colenbrander DA; Bosman DK; Grootenhuis MA; Kars MC; Schouten-Van Meeteren AYN, “Aspects And Intensity Of Pediatric Palliative Case Management Provided By A Hospital-based Case Management Team,” Pediatric Palliative Care Library, accessed July 25, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10828.

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