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The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study

Background: To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual…

A 15-year experience in pediatric palliative care: a retrospective hospital-based study

BACKGROUND: The current Italian scenario of pediatric palliative care (PPC) services is characterized by inadequate coverage of the territory. Therefore, it is important to improve the referral of patients to the most appropriate setting (community…

Development of global rating instruments for pediatric patients with ataxia telangiectasia

INTRODUCTION: Ataxia telangiectasia (AT) is a neurodegenerative disorder with cerebellar and extrapyramidal features. Interventional and epidemiological studies in AT should rely on specific scales which encompass the specific neurological features,…

Paediatric palliative care: recommendations for treatment of symptoms in the Netherlands

BACKGROUND: Children dying of a life threatening disease suffer a great deal at the end of life. Symptom control is often unsatisfactory, partly because many caregivers are simply not familiar with paediatric palliative care. To ensure that a child…

Tags: 2015, April 2019 List, BMC Palliative Care, Caregivers, Consensus, Dutch Paediatric Palliative Care Guideline Group for Symptoms, Health Planning Guidelines, Humans, Knops RR, Kremer L C, Netherlands, Palliative Care/mt [methods], Palliative Care/st [standards], Pediatrics/mt [methods], Pediatrics/st [standards], Verhagen AA

Pediatric Advance Care Planning: A Systematic Review

BACKGROUND AND OBJECTIVES: Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults, but ACP is also being practiced in pediatrics. We conducted a…

A Pilot Study Of The Effectiveness Of Home Teleconsultations In Paediatric Palliative Care

We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families…

Palliative Medicines For Children - A New Frontier In Paediatric Research

OBJECTIVES: This paper seeks to highlight from a UK perspective the current lack of a research evidence base in paediatric palliative care that has resulted in a paucity of available medicines with appropriate formulations (strength and dosage form)…

Pediatrician Ambiguity In Understanding Palliative Sedation At The End Of Life

CONTEXT: Palliative sedation is a means of relieving intractable symptoms at the end of life, however, guidelines about its use lack consistency. In addition, ethical concerns persist around the practice. There are reports of palliative sedation in…

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