Browse Items (14 total)
- Tags: France
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study
Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]
[French law related to patient's rights and end of life: pediatric intensive care unit's health professionals' opinions]
Tags: 2014, Archives de Pediatrie, Assisted, Attitude Of Health Personnel, Backlog, Child, Cremer R, de Saint Blanquat L, Double Effect Principle, Dupic L, Elie C, France, Health Care, Health Surveys, Hubert P, Humans, Intensive Care Units, Journal Article, Lesage F, Palliative Care, Patient Care Team, Patient Rights, Pediatric, pour le Groupe francophone de réanimation et urgences pédiatriques (GFRUP), Quality Assurance, Resuscitation Orders, Suicide, Terminal Care, Withholding Treatment
Transition from pediatric to adult care: experience of a cystic fibrosis care center]
Tags: 2009, Adolescent, Adolescent Health Services, Adolescent Transitions, Archives de Pediatrie, Backlog, Bonnemains C, Chiffoleau M, Continuity Of Patient Care, Cystic Fibrosis/therapy, Darviot E, Female, France, Ginies JL, Humans, Journal Article, Malbrunot-Wagner AC, Male, Person C, Quality Of Health Care, Troussier F, Urban T, Young Adult
Parental involvement in treatment decisions regarding their critically ill child: a comparative study of France and Quebec
Tags: 2007, Backlog, Canoui P, Carnevale FA, Child, Communication, Consumer Participation/px [Psychology], Consumer Satisfaction, Cremer R, Critical Illness/th [therapy], Cultural Characteristics, Doussau A, Farrell C, Female, France, Hubert P, Humans, ICU Decision Making, IM, Infant, Intensive Care Units, Journal Article, Lacroix J, Leclerc F, Male, Nurse's Role/px [Psychology], Parents/px [psychology], Paternalism, Pediatric Critical Care Medicine, Pediatric/og [Organization & Administration], Physician's Role/px [Psychology], Preschool, Professional-family Relations, Qualitative Research, Quebec, Seguin MJ
Neurologically impaired children and digestive problems
Tags: 2006, Adolescent, Archives de Pediatrie, Backlog, Botulinum Toxin Type A/administration & dosage, Brain Damage, Capito C, Child, Chronic/complications/therapy, Disabled Children, Enteral Nutrition, Follow-up Studies, France, Fundoplication, Gastric Acidity Determination, Gastroesophageal Reflux/complications/therapy, Gastroscopy, Heloury Y, Humans, Infant, Injections, Intramuscular, Journal Article, Leclair MD, Podevin G, Preschool, Prospective Studies, Protein-Energy Malnutrition/etiology/therapy, Q3 Literature Search, Treatment Outcome
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Forgoing life support: how the decision is made in European pediatric intensive care units
Tags: 2011, Child Preschool, December 2017 List, Decision Making, Devictor DJ, Europe, Female, France, Health Care Surveys, Humans, Intensive Care Medicine, Intensive Care Units Pediatric, Latour JM, Life Support Care, Male, Prospective Studies, Surveys And Questionnaires, Terminal Care/td [trends], Withholding Treatment/sn [statistics & Numerical Data]
[Untitled]
Tags: 2017, Analgesia, Analgesic Agent, Archives de Pediatrie, Child, Comfort, Drug Therapy, France, Human, Medline, Neonatal Intensive Care Unit, Newborn, November 2017 List, Palliative Therapy, Pouvreau N, Practice Guideline, Renesme L, Sedation, Systematic Review, Tandonnet J, Tandonnet O, Tranquilizing Activity
End-of-life Decisions For Extremely Preterm Infants - A Matter Of Language, Gender And Education?
Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Buhrer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care