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Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, Children, Cornelia de Lange syndrome, De Lange syndrome, demand denial no contact, descriptive analysis, Education & Educational Research, Environment, environmental conditions, functional-analysis, Genetics & Heredity, Hall S, INDIVIDUALS, Intervention, Journal Of Intellectual Disability Research, Neurology, Neurosciences &, Oliver C, Phenomenology, Phenotype, prader-willi syndrome, Prevalence, Psychiatry, psychological intervention, Rehabilitation, self-injurious behaviour, self-injury, Sloneem J, social reinforcement, Symptoms
Tags: 2009, Activity, being fed, Children, dyspraxia, Eliasson A C, engagement, Engerstrom I W, guided eating, hand function, hand splints, hand use, involvement, movements, Occupational Therapy, Participation, psychological intervention, Qvarfordt I, Rehabilitation, Rett syndrome, Scandinavian Journal of Occupational Therapy, skills, stereotyped hand movements, tone and motor problems
Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, characteristics, compulsive behaviors, compulsive behaviour, Cornelia de Lange syndrome, De Lange syndrome, Education & Educational Research, Genetics & Heredity, Hall S, hyperactivity, INDIVIDUALS, Intellectual disabilities, Journal Of Intellectual Disability Research, maladaptive behavior, mental-retardation, mutilative behavior, Neurology, Neurosciences &, Oliver C, People, Phenotype, prader-willi-syndrome, Psychiatry, rating-scale, Rehabilitation, repetitive behaviour, self-injurious behaviour, Sloneem J, stereotyped behaviour, stereotyped disorders, Trajectory
Tags: 2009, Adolescent, Blood Gas Analysis, Brain and Development, breathing difficulties, Child, Female, glycogen storage disease type II, Glycogen Storage Disease Type II/pp [Physiopathology], Humans, Kagitani-Shimono K, Kato-Nishimura K, Male, Mohri I, Muscle Strength, Muscle Weakness, Nabatame S, non-invasive positive pressure ventilation, Okinaga T, Ozono K, physical intervention, Polysomnography, Positive-Pressure Respiration, Quality Of Life, Respiration, Respiration Disorders/pp [Physiopathology], Respiration Disorders/th [Therapy], Respiratory Function Tests, Retrospective Studies, Sakai N, Sleep apnea, Sleep Apnea Syndromes/pp [Physiopathology], Sleep Apnea Syndromes/th [Therapy], Sleep/ph [Physiology], Tachibana N, Taniike M
Tags: 2009, Adolescent, Adult, Angelman Syndrome/epidemiology/psychology, Arron K, behavioral problems, Berg K, Burbidge C, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology/psychology, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Female, Fragile X Syndrome/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/genetics/psychology, Journal of Autism and Developmental Disorders, London, Male, Middle Aged, Moss J, Oliver C, Phenotype, Prader-Willi Syndrome/epidemiology/psychology, Prevalence, repetitive behavior, Stereotyped Behavior, Surveys And Questionnaires, Syndrome, tone and motor problems, Trajectory, Young Adult
Tags: 2009, Adolescent, Adult, Braam W, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/ep [Epidemiology], Cri-du-Chat Syndrome/ge [Genetics], Curfs L M, Didden R, Female, Genetic Testing, Humans, Infant, Infant Newborn, Journal Of Intellectual Disability Research, Korzilius H, Maas A P, Male, Middle Aged, Prevalence, Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ep [Epidemiology], Smits M G, Statistics Nonparametric, Surveys And Questionnaires, Trajectory, Young Adult
Tags: 2009, Adolescent, alertness, American Journal of Medical Genetics Part A, Attention Deficit Disorder with Hyperactivity/psychology, Bolton P F, Case-Control Studies, characteristics, Child, de Vries P J, Female, Gardiner J, Humans, Male, neuropsychological attention deficits, Neuropsychological Tests, Task Performance and Analysis, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/psychology
Tags: 2009, ataxia, Boesch S, Bürk K, characteristics, Degen I, Dimitriadis K, Dörr J M, Friedreich's ataxia, Haug V, Heck S, Hering S, Ivo A, Klockgether T, Klopstock T, Kruse B, Lindig T M, Mälzig U, Movement Disorders, Ratzka S, Schmitz-Hübsch T, Schols L, Schulz J B, Timmann D, tone and motor problems, Trajectory, Wolf S
Tags: 2009, American Journal of Medical Genetics Part A, Axelrad M E, behavioral, characteristics, cognitive, costello syndrome, Disability, features, Fehlis J E, functioning, Genetics & Heredity, Gripp K W, Hopkins E, HRAS, longitudinal assessment, MAP kinase pathway, p.G12A, p.G12S, p.G13C, p.T581, Phenotype, Schwartz D D, Sol-Church K, Stabley D L, tone and motor, Trajectory
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Tags: 2009, Backlog, Connor SR, Empathy, Family Relations, Hospices, Humans, Journal Article, Journal Of The American Medical Association, Male, Middle Aged, Neoplasms, Palliative Care/standards, Patient Care Team, Primary Health Care, Quality Of Health Care, Referral And Consultation, Social Support, Teno JM
Tags: 2009, Adaptation, Affect, Aged, Ahles TA, Backlog, Bakitas M, Balan S, Brokaw FC, Byock IR, Emergency Service, Female, Health Services/utilization, Hegel MT, Hospital/utilization, Hospitalization/statistics & numerical data, Hull JG, Humans, Intensive Care Units/utilization, Intervention, Interventions, JAMA, Journal Article, Kaplan-Meiers Estimate, Length Of Stay, Li Z, Lyons KD, Male, Middle Aged, Neoplasms/mortality/nursing/psychology/therapy, Outcomes, Palliative Care/methods, Patient Care Team, Patient Education as Topic, Patient Participation, Psychological, Quality Of Life, Seville J, Sickness Impact Profile, Social Support, Terminally Ill/psychology, Tosteson TD, Treatment Outcome
Tags: 2009, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birch PH, Child, Exploratory Behavior, Family, Female, Friedman JM, Humans, Intellectual Disability, Intellectual Disability/diagnosis/therapy, Journal Article, Makela NL, Male, Marra CA, Middle Aged, Parent caregivers, Parents, Perception, Prenatal Diagnosis, Reproducibility of Results, Social Support
Tags: 2009, Adaptation, Adolescent, Adult, Atenafu E, Backlog, Barrera M, Behavior, Cancer, Child, Cranial Irradiation, Depression, Female, Humans, Internal-External Control, Journal Article, Longitudinal Studies, Male, Mental Health, Mothers, Neoplasms, Parent-child Relations, Pinto J, Psychological, Social Adjustment, Social Behavior, Stem Cell Transplantation, Survivors, Teaching, Treatment Outcome
Tags: 2009, Acree M, Affect, Backlog, Depression/epidemiology/psychology, Depressive Disorder/epidemiology/psychology, Disease Progression, Folkman S, Humans, Journal Article, Longitudinal Studies, McElhiney M, Moran P, Neoplasms/psychology, New York City/epidemiology, Psycho-Oncology, Rabkin JG, Risk Factors, San Francisco/epidemiology, Terminally Ill/psychology
Tags: 2009, Adolescent, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Canobbio MM, Child, Congenital/therapy, Continuity Of Patient Care, Europe, Fernandes SM, Fleck D, Heart Defects, Hilderson D, Humans, Journal Article, Kovacs AH, Linstead R, Meadows A, Moons P, Patient Transfer/statistics & numerical data, Pediatric Cardiology, Questionnaires, Retrospective Studies, Saidi AS, United States, Van Deyk K, Verstappen A
Tags: 2009, Backlog, Brain Diseases, Electroencephalography, Epilepsy/cn [Congenital], Epilepsy/ge [Genetics], Epilepsy/th [Therapy], Humans, Inborn/ge [Genetics], Inborn/th [Therapy], Infant, Journal Article, Journal Of Inherited Metabolic Disease, KT Synthesis, Metabolic, Newborn, Pearl PL, Pyridoxine/ph [Physiology], Seizures/cn [Congenital], Seizures/et [Etiology], Seizures/th [Therapy], Vitamin B 6 Deficiency/ge [Genetics], Vitamin B 6 Deficiency/pp [Physiopathology]
Tags: 2009, Adolescent, Adolescent Health Services, Adolescent Transitions, Archives de Pediatrie, Backlog, Bonnemains C, Chiffoleau M, Continuity Of Patient Care, Cystic Fibrosis/therapy, Darviot E, Female, France, Ginies JL, Humans, Journal Article, Malbrunot-Wagner AC, Male, Person C, Quality Of Health Care, Troussier F, Urban T, Young Adult
Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult
Tags: 2009, Adolescent, Backlog, Brown D, Canada, Cross-sectional Studies, Female, Fleming MF, Humans, Journal Article, Male, Midwestern United States, Mundt MP, Pacific States, Plane M, Saewyc EM, Sex Factors, Student Health Services, Students/psychology, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Violence/psychology, Wiegel J, Young Adult, Zakletskaia L
Tags: 2009, Adolescent, Adolescent Transitions, Akre C, Backlog, Chronic Disease/therapy, Continuity Of Patient Care, Female, Humans, Journal Article, Logistic Models, Male, Middle Aged, Pediatrics, Physician-patient Relations, Physicians/psychology, Questionnaires, Rutishauser C, Suris JC, Switzerland, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Tags: 2009, Acute Disease, Animal, Animals, Backlog, beta-Endorphin/analysis/metabolism/secretion, Biological Markers/analysis/blood, Biomarkers of Pain, Disease Models, Farr LA, Inbred DBA, Journal Article, Journal Of Neuroscience Methods, Male, Mice, Neurochemistry/methods, Pain Measurement, Pain/blood/physiopathology, Physical Stimulation, Radioimmunoassay/methods, Rasmussen NA, Reproducibility of Results, Time Factors, Up-Regulation/physiology
Tags: 2009, Active/statistics & numerical data/trends, Administration, Analgesics, Attitude Of Health Personnel, Backlog, Borgsteede SD, Decision Making, Euthanasia, Humans, Journal Article, Journal of Pain and Symptom Management, Netherlands/epidemiology, Onwuteaka-Philipsen BD, Opioid/administration & dosage, Oral, Pain/mortality/prevention & control, Physician's Practice Patterns/statistics & numerical data/trends, Physicians/statistics & numerical data, Questionnaires, Risk Assessment, Risk Factors, Rurup ML, Survival Analysis, Survival Rate, Terminal Care/statistics & Numerical Data, van der Heide A, van der Maas PJ
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult