Browse Items · Pediatric Palliative Care Library

Reflecting on 'Hannah's Choice': Using the Ethics of Care to Justify Child Participation in End of Life Decision-Making

It has been ten years since the case of Hannah Jones-the 12-year-old girl who was permitted to refuse a potentially life-saving heart transplant. In the past decade, there has been some progress within law and policy in respect of children's…

Addressing ethical concerns regarding pediatric palliative care research

2009

Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Backlog, Decision Making, Ethics, Humans, Journal Article, Palliative Care/ethics, Pediatrics/ethics, Rapoport A, Research, United States

Challenges to participation in paediatric palliative care research: a review of the literature

It has been identified that there is a need for increased palliative care research within the paediatric setting. The assessment of parental views is necessary for this population. However, the conduct of research and recruitment of participants is…

Tags: 2007, Attitude Of Health Personnel, Backlog, Bartels U, Child, Constantin J, Hendershot E, Humans, Journal Article, Multi-site Ethics, Palliative Care/ethics, Palliative Medicine, Parents/psychology, Qualitative Research, Research Design/standards, Sung L, Terminally Ill/psychology, Tomlinson D, Wrathall G

Ethical considerations in end-of-life care and research

The goal of good palliative care is to relieve suffering and to improve quality of life. However, it is clear that access to palliative care is inconsistent. At least in part, these deficiencies exist because of a lack of solid evidence on which to…

Maximizing benefits and minimizing risks in palliative care research that involves patients near the end of life

Research in end-of-life care is constrained more by pragmatic, social, cultural, and financial constraints than ethical issues that preclude the application of typical research methodologies. When normally accepted and ethically sound protections for…

Tags: 2003, Backlog, Biomedical and Behavioral Research, Ethics, Fine PG, Humans, Journal Article, Journal of Pain and Symptom Management, Palliative Care/ethics, Research, Risk Assessment, Terminally Ill

Ethical challenges of palliative care research

2003

Tags: 2003, Backlog, Biomedical and Behavioral Research, Casarett DJ, Death and Euthanasia, Ethics, Helmers K, Humans, Journal Article, Journal of Pain and Symptom Management, Knebel A, Palliative Care/ethics, Research

The ethics of end-of-life research

A notable and welcome increase in palliative care research has led to a multitude of ethical issues and concerns for researchers, clinicians, patients (subjects) and their family members (who also might be subjects), granting agencies, and…

Tags: 2004, Backlog, Clinical Trials/ethics, Decision Making/ethics, Ethics, Ethics Committees, Fine PG, Human Experimentation/ethics, Humans, Journal Article, Journal of Pain and Palliative Care Pharmacotherapy, National Institutes of Health (U.S.), Palliative Care/ethics, Practice Guidelines, Qualitative Research, Research, Research Design, Terminal Care/ethics, United States

Palliative care research protocols: a special case for ethical review?

Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care…

Tags: 2003, Ahmedzai SH, Attitude Of Health Personnel, Backlog, Biomedical Research/ethics, Ethics Committees, Humans, Journal Article, Multi-site Ethics, Multicenter Studies as Topic, Palliative Care/ethics, Palliative Medicine, Paz S, Rawson A, Research, Stevens T, Wilde D, Wragg D

The double effect of pain medication: separating myth from reality

The principle of double effect is used to justify the administration of medication to relieve pain even though it may lead to the unintended, although foreseen, consequence of hastening death by causing respiratory depression. Although a review of…

Tags: 1998, Analgesics, Assisted, Backlog, Death and Euthanasia, Double Effect Principle, Euthanasia, Fohr SA, Humans, Intention, Journal Article, Journal of Palliative Medicine, Opioid/adverse effects/therapeutic use, Pain/drug Therapy, Palliative Care/ethics, Refusal to Treat, Respiratory Insufficiency/chemically induced, Suicide

Why Palliative Care For Children Is Preferable To Euthanasia

Recent laws in Europe now allow for pediatric euthanasia. The author reviews some rationale for caution, and addresses why ensuring the availability of pediatric palliative care is an important step before allowing pediatric euthanasia.

Tags: 2016, Beneficence, Carter Brian S, Child, Child Welfare/ethnology, End Of Life, Ethics, Europe, Euthanasia, Euthanasia/ethics, Humans, May 2017 List, Palliative Care, Palliative Care/ethics, Pediatrics, Pediatrics/standards, Terminal Care/ethics, The American Journal of Hospice & Palliative Care

More Than Medication: Perinatal Palliative Care

Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis.

AIM:
Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice.

METHODS:
Anonymous online survey: demographics, ethical viewpoints and potential…

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