Challenges to participation in paediatric palliative care research: a review of the literature

Title

Challenges to participation in paediatric palliative care research: a review of the literature

Creator

Tomlinson D; Bartels U; Hendershot E; Constantin J; Wrathall G; Sung L

Publisher

Palliative Medicine

Date

2007

Subject

Child; Humans; Attitude of Health Personnel; Qualitative Research; Terminally Ill/psychology; Palliative Care/ethics; Parents/psychology; Multi-site Ethics; Research Design/standards

Description

It has been identified that there is a need for increased palliative care research within the paediatric setting. The assessment of parental views is necessary for this population. However, the conduct of research and recruitment of participants is often challenging. While conducting a study that involved parents of children receiving palliative or end-of-life care, the authors found that there were particular challenges to recruiting these parents. This comprehensive review of the literature aims to address the ethical and recruitment issues of involving parents of children that are receiving palliative or end-of-life care. Key elements, that may maximize completion of research and a more representative sample, are also discussed. These elements include obtaining the opinions on study design and interview script from experienced families and maximizing the partnership between health care professionals and the research team.
2007

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

435-440

Issue

5

Volume

21

Citation

Tomlinson D; Bartels U; Hendershot E; Constantin J; Wrathall G; Sung L, “Challenges to participation in paediatric palliative care research: a review of the literature,” Pediatric Palliative Care Library, accessed October 25, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14120.

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