Browse Items (136 total)
- Tags: Parents/psychology
Continuing bonds in parents after a loss in pregnancy, or a death at or shortly after birth: A population-based study
Camp Draws You Back Into Life Again: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness
Tags: 2024, Adaptation Psychological, Adolescent, Adult, Article, Bereavement, Camping/psychology, Child, Child Preschool, childhood, Family, Female, Guerin S, Hanlon P, Humans, Kiernan G, Male, Middle Aged, October List 2024, of interest with respect to the research authorship and/or publication of this, OMEGA - Journal of Death and Dying, Parents/psychology, Qualitative Research, Recreation Therapy, Serious Illness, therapeutic recreation
Experiences with the end-of-life decision-making process in children with cancer, their parents, and healthcare professionals: A systematic review and meta-ethnography
Tags: 2023, 2023 SE3 - Oncology, Anthropology Cultural, Cancer, Child, Death, Decision Making, Decision-making, Delivery of Health Care, end-of-life, Hirata M, Humans, Journal of Pediatric Nursing, Kobayashi K, meta-ethnography, Neoplasms/therapy, Only Child, Parents/psychology, Pediatric, Qualitative Research
Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
Tags: 2020, 2021 Special Edition - Oncology, Adaptation Psychological, Adaptation Psychological/physiology, Arthritis Impact Measurement Scales, Attitude To Death, Bereaved Parents, Bereavement, Coronavirus Infections -- Psychosocial Factors, Coronavirus Infections/psychology, COVID-19, Disease Outbreaks, Female, Grief, Helton G, Humans, Journal of Pain and Symptom Management, Male, Neoplasms, Pandemics, Parents -- Psychosocial Factors, Parents/psychology, Pediatric Cancer, Pneumonia Viral -- Psychosocial Factors, Pneumonia Viral/psychology, Snaman JM, Ways of Coping Questionnaire, Wolfe J
Longitudinal Understanding of Prognosis among Adolescents with Cancer
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Child, Communication, Compas BE, Desjardins L, Female, Fisher RS, Follow-up Studies, Fults MZ, Gerhardt CA, Humans, Kenney AE, Longitudinal Studies, Male, Manring S, Neoplasms/pathology/psychology/therapy, Oncologists/psychology, Oncology, Palliative Care, Parents/psychology, Pediatric Blood & Cancer, Prognosis, Psycho-Oncology, psychosocial, Ranalli MA, Rausch JR, Rodriguez EM, Surveys And Questionnaires, Vannatta K, Young-Saleme T
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
Achieving Child-Centred Care for Children and Young People with Life-Limiting and Life-Threatening Conditions-A Qualitative Interview Study
Tags: Adolescent, Child, Child Care, End of Life Care, Paediatrics, Palliative Care, Qualitative Research, 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Children, Coombes L, Downing J, Ellis-Smith C, European Journal of Pediatrics, Family/psychology, Farsides B, Fraser LK, Harding R, Harðardóttir D, Humans, Murtagh FEM, Normality, November 2022 List, Parents/psychology, Roach A, Scott H, Social Support, Symptom Assessment
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Tags: 2022, August 2022 List, Bereavement, BMC Palliative Care, Bokemeyer C, Bronsema A, Cancer, Child, Children, Escherich G, Fin-ped ii, Grief, Humans, Neoplasms/psychology, Oechsle K, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Rutkowski S, Support services, Supportive care needs, Theißen T, Ullrich A, Wikert J
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, difficult situation, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, paediatric patient, Parental Attitudes, Parents, Parents/psychology, Poland, Preschool, Psychological
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Metasynthesis of Factors That Influence Parents' Participation in Pain Management for Their Infants in the NICU
Tags: 2020, August 2021 List, Burry L, Chinian N, Franck LS, Journal of Obstetric, Gynecologic, & Neonatal Nursing, McAllister M, McNair C, Neonatal Intensive Care Unit Standards, Newborn Infant, Nicu, Pain Management, Pain Management/methods/standards/trends, Parenting/psychology/trends, parents’ participation, Parents/psychology, Patient Participation/methods/psychology, Patient Satisfaction, Professional-patient Relations, Qualitative Research, Quality of Health Care/standards, Shah V, Stevens B, Taddio A
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
Parent moral distress in serious pediatric illness: A dimensional analysis
Tags: 2020, Child, Child Health/standards, Critical Illness/psychology/therapy, Ethics of care/care ethics, February 2021 List, Female, Humans, Male, Mooney-Doyle K, Moral Distress, Neonatal Care, Nursing Ethics, Palliative Care, Parents/psychology, pediatric practice, Pediatrics/methods/standards, Stress Psychological/etiology/psychology, theory/philosophical perspectives, Ulrich CM
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Tags: 2020, Adaptation Psychological, Attitude To Death, Boles J, Child, Child Hospitalized/psychology, Clinical Pediatrics, Cook J, Dunbar J, February 2021 List, Female, Health Care, Humans, Jones M, legacy, Male, Parents/psychology, Pediatrics, Pediatrics/standards, perceptions, Physician's Role, Providers, Social Support, Terminal Care/psychology, Terminally Ill/psychology
Stillbirth memento photography
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Tags: 2020, Adaptation, Attitude To Death, Bereavement, BMC Palliative Care, Boelen PA, Deben LMA, December 2020 List, Fahner JC, Geleijns K, Grief, Hospice Care/methods/psychology/standards, Humans, Interventions, Jenken F, Kars MC, Kochen EM, Models Theoretical, Paediatrics, Parenting/psychology, Parents, Parents/psychology, Psychological, Psychological Theory, Social Support, Systematic Review, Teunissen SCCM, van den Hoogen A
A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team
Tags: 2019, Anthropology, Attitude To Death, Child, Communication, Davis C S, Death, Health Communication, Hicks L, Humans, Irvin L, King L, Palliative Care, Parents/psychology, Patient Care Team, pediatric hospitals, Pediatrics, September 2020 List, Shukraft A, Snider M J, Sonda J D, spatial analysis, Time Factors, Uncertainty
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
Tags: 2019, Adaptation, Adult, Attitude To Death, Child, Childhood Cancer, Depression, Depression/psychology, Fathers, Fathers/*psychology, Female, Grief, Humans, insomnia, Kreicbergs U, Male, May 2020 List, Mental Health/*statistics & numerical data, Middle Aged, Mothers, Mothers/*psychology, Parents/psychology, Pediatric Oncology, Pgd, Pohlkamp L, Posttraumatic stress, prolonged grief disorder, Psycho-Oncology, Psychological, Sveen J
Sleep disorder and epilepsy in children with tuberous sclerosis: a questionnaire-based study
Tags: 1994, Adolescent, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Epilepsy/etiology, Female, Humans, Hunt A, Learning Disorders/complications, Male, Parents/psychology, sleep disturbance, Sleep Wake Disorders/etiology/psychology, Stores G, Stress Psychological/etiology, Surveys And Questionnaires, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications/psychology
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Maintaining family life balance while facing a child's imminent death-A mixed methods study
Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
Factors influencing parental readiness to let their child with cancer die
Tags: 2010, Adolescent, Adult, Attitude To Death, Backlog, Beishuizen A, Child, Female, Grief, Grypdonck MH, Humans, Infant, Journal Article, Kars MC, Male, Meijer-van den Bergh EM, Middle Aged, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Professional-family Relations, van Delden JJ
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
Long-term effects of the death of a child on parents' adjustment in midlife
Tags: 2008, Adaptation, Adolescent, Adult, Backlog, Bereavement, Bereavement Leave Policy Paper, Death, Depressive Disorder/diagnosis/etiology/psychology, Family Conflict/psychology, Female, Floyd FJ, Follow-up Studies, Greenberg J, Grief, Health Status, Hong J, Humans, Journal Article, Journal Of Family Psychology, Longitudinal Studies, Male, Marriage/psychology, Middle Aged, Parents/psychology, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/etiology/psychology, Rogers CH, Seltzer MM, Stress, Time, Wisconsin
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Exploring parents' environmental needs at the time of a child's death in the pediatric intensive care unit
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Tags: 2009, Adaptation, Adolescent, Backlog, Child, Child Development Disorders, Child: Care, Health and Development, Chronic Disease, Developmental Disabilities/psychology, Female, Humans, Infant, Journal Article, Kao B, Lobato D, Male, Parents/psychology, Pervasive/psychology, Plante W, Preschool, Psychological, Psychometrics, Sibling Relations, Siblings/psychology, Socioeconomic Factors
Predicting death in children
Challenges to participation in paediatric palliative care research: a review of the literature
Tags: 2007, Attitude Of Health Personnel, Backlog, Bartels U, Child, Constantin J, Hendershot E, Humans, Journal Article, Multi-site Ethics, Palliative Care/ethics, Palliative Medicine, Parents/psychology, Qualitative Research, Research Design/standards, Sung L, Terminally Ill/psychology, Tomlinson D, Wrathall G
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia