Browse Items (38 total)
- Tags: shared decision making
Parent Narratives Provide Perspectives on the Experience of Care in Trisomy 18
Tags: 2024, Adult, American Journal of Medical Genetics, Part C: Seminars in Medical Genetics, Anderson R, Article, Bierer R, Carey J, Child, Chromosome Disorder, Clinical Article, Content Analysis, Diagnosis, Down Syndrome, Edwards syndrome, Female, heart surgery, Human, Infant Mortality, Male, Mladucky J, Narrative, November List 2024, Parent, Patient Comfort, Personal Experience, Qualitative Research, Quality Of Life, rearing, shared decision making, support group, Therapy, Trisomy 13, Trisomy 18
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study
Tags: 2024, Adult, Advance Care Planning, Aris-Meijer JL, Article, Caregiver Support, Child, Children, Clinical Article, Clinical Decision Making, Cross-sectional Study, Family Centered Care, Female, Follow Up, Health Care Personnel, health care planning, Hofman SC, Hospitalization, Human, illness trajectory, Interpersonal Communication, Joren CY, Kars MC, Kremer LCM, Likert scale, Male, mobile application, Mortality, November List 2024, Palliative Therapy, Perception, person centered care, Questionnaire, Rippen-Wagner H, Schuiling-Otten MA, Semi Structured Interview, shared decision making, Slingerland-Blom R, Terminal Care, Thematic Analysis, van der Velden C, Verhagen AAE
Evaluation of a perinatal palliative care program by SWOT analysis
Tags: 2024, Adult, Article, Catapano F, Corvaglia LT, Diagnosis, Female, Human, Interpersonal Communication, Knowledge, Locatelli C, Major Clinical Study, Newborn, November List 2024, Nursing Care, Palliative Therapy, Patient Referral, Pediatric Research, Pregnancy, Prenatal Diagnosis, Quality Of Life, Ramacieri G, Retrospective Study, shared decision making, Sperti G
Scandinavian perspectives on life support at the border of viability
Tags: 2024, Clinical Practice, Consensus, Denmark, Family Centered Care, Frontiers in Pediatrics, Gestational Age, Human, July List 2024, Medical Ethics, Newborn Care, Norway, Palliative Therapy, Practice Guideline, Prematurity, Prognosis, Scandinavia, shared decision making, Short Survey, Sweden, Syltern J
The ROAR Score: Quantifying Risk of Acute Return to the Hospital in Pediatric Hospice Patients
Tags: 2024, Adult, Advance Care Planning, Caregiver, Child, conference abstract, Family Stress, Female, Hospice, Hospice Care, hospice patient, Human, Journal of Pain and Symptom Management, June List 2024, Maddox K, Male, Medicaid, Newcomer K, Nurse, Palliative Therapy, professionalism, scoring system, shared decision making, Teamwork
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Everything But: A Case Series of Strategies to Care for the Pediatric Chronically, Critically Ill Patient and Family
Tags: 2024, Adolescent, care behavior, Case Study, Child, conference abstract, Critically Ill Patient, Drug Therapy, enteric feeding, Ethical dilemma, Evans K, Family, feeding tube, Female, Human, Intensive Care, Journal of Pain and Symptom Management, Jump J, June List 2024, Kinnear F, lung clearance, Male, Medical Specialist, Nurse, Palliative Therapy, patient worry, pediatric patient, Place Of Death, professionalism, shared decision making, Teamwork, Tracheostomy
Has Pediatric Palliative Care Become Too Deferential? A Challenge To and For the Field
Tags: 2024, Advance Care Planning, Caregiver, Child, conference abstract, Controlled Study, Coping, Distress Syndrome, Drug Administration, Family Centered Care, Fatigue, Health Care Personnel, Human, Humphrey LH, Jacobowski N, Journal of Pain and Symptom Management, June List 2024, Medical Specialist, Palliative Therapy, professionalism, psychiatrist, psychological defense, Psychologist, Self Report, shared decision making, Teamwork, Truba NP, vignette
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
How to move forward in shared decision-making in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Aris-Meijer JL, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Decision Making, Human, Infant, Joren CY, Lantos J, Palliative Care, Palliative Therapy, shared decision making, special situation for pharmacovigilance, Therapy, Verhagen AAE
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Parents' experiences of palliative care decision-making in neonatal intensive care units: An interpretative phenomenological analysis
Tags: 2024, Acta Paediatrica, ambivalence, Article, Clinical Article, Decision Making, Father, Female, Human, Infant Newborn, Intensive Care Units, Interview, Lamore K, Life Sustaining Treatment, Male, March List 2024, meaning-making, Medical Ethics, Mur S, Nandrino JL, Neonatal Intensive Care Unit, Newborn Intensive Care, Palliative Therapy, Parent, Prieur C, Qualitative Research, Rethore S, SaintDenny K, shared decision making, Storme L
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Pediatric palliative care across continents: Communication and shared-decision-making
A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
Tags: 2023, Adult, Article, BMC Palliative Care, Cai S, Cheng L, Child, conceptual model, Controlled Study, Decision Making, Family Centered Care, February List 2024, Health Care Personnel, Human, Knowledge, Male, Nurse, Palliative Therapy, Peng X, pharmaceutics, Phenomenology, Physician, Qualitative Research, Semi Structured Interview, shared decision making, Social Worker, Wang R, Zhou X
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2023, Advance Care Planning, American Journal of Perinatology, Article, Child, Cummings C, Decision Making, DeCourcey DD, Expectation, Human, Infant, Infant Newborn, July List 2023, Lin M, Neonatal Intensive Care Unit, outcome assessment, rank sum test, Satisfaction, Sayeed S, shared decision making, Vitcov G, Williams D, Wolfe J
"A Good Death": Role of Shared Decision Making and Palliative Care in Children with Cardiac Disease
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
The Dutch Multidisciplinary Clinical Practice Guideline for Pediatric Palliative Care
Tags: 2022, Advance Care Planning, Bereavement Support, Borggreve B, Child, Clinical Practice, conference abstract, Controlled Study, December List 2022, Female, Human, Kremer L, Male, Michiels E, Mulder R, Netherlands, Palliative Therapy, Pediatric Blood and Cancer, Practice Guideline, Randomized Controlled Trial (topic), shared decision making, Systematic Review, Van Teunenbroek K, Verhagen AAE
Digital decision aid for prenatal counseling in imminent extreme premature labor: development and pilot testing
Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making
Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Tags: 2020, Attitude To Health, Bhamidipalli SS, Decision Making, Fadel W, fetal viability, Financial Stress, Hoffman SM, Jeffries E, Kavanaugh K, Laitano T, October 2021 List, Paediatric and Perinatal Epidemiology, Parents, periviable delivery, Pilot Projects, Pregnancy, premature birth, Qualitative Research, Quality Of Life, Religion, Resuscitation Orders, Second Trimester Pregnancy, shared decision making, Social Support, Tucker EB, values clarification
Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions
Shared decision making for children with chronic respiratory failure-It takes a village and a process
Perinatal Counseling Following a Diagnosis of Trisomy 13 or 18: Incorporating the Facts, Parental Values, and Maintaining Choices
Tags: 2020, Acharya K, Advances in Neonatal Care, Counseling/ethics/methods, Female, Humans, Infant Newborn, Leuthner SR, May 2021 List, Palliative Care/ethics/methods/psychology, Parents/psychology, Pregnancy, Prenatal Diagnosis/methods/psychology, Psychosocial Support Systems, shared decision making, Trisomy 13 Syndrome/diagnosis/psychology/therapy, Trisomy 18 Syndrome/diagnosis/psychology/therapy
Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child
Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology
Decisional burden among parents of children with cancer
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Tags: 2019, Anales de Pediatria., Article, Barbieri G, Bellavia N, Bereavement Support, Bermudez Cortes M D M, Child, Controlled Study, Death, End-of-life Care, Female, Galera Minarro A M, Garcia-Marcos B P, Human, Human Experiment, Improvements, Male, Navarro M A, Newborn, Observational Study, October 2019 List, Paediatric, Palliative Care, Palliative Therapy, Parental Perspectives, Pediatrician, Pediatrics, Plaza Fornieles M, Questionnaire, Retrospective Study, Satisfaction, shared decision making, Survey, Terminal Care
Decision-making at the limit of viability: The Austrian neonatal choice context
Tags: 2019, Article, August 2019 List, Austria, Bmc Pediatrics, Choice context, Communication strategies, Controlled Study, Decision-making, ethicist, framing bias, Hawlik K, head, high income country, Human, Limit of viability, Neonatologist, Neonatology, nervous system malformation, Newborn, Nicu, Palliative Therapy, Pregnancy, Prematurity, Semi Structured Interview, shared decision making, Stanak M, Statistics, Systematic Review
Challenges in Pediatric Advance Care Discussions Between Health Care Professionals and Parents of Children with a Life-Limiting Condition: A Qualitative Pilot Study
Tags: 2018, Advance Care Planning, Borasio GD, Child, Clinical Article, conference abstract, Conversation, Daxer M, Death, February 2019 List, Female, Fuehrer M, Germany, Hein K, Heitkamp N, Human, Journal of Pain and Symptom Management, Jox R, Knochel K, Male, Monz A, Morality, Palliative Therapy, Pilot Study, Semi Structured Interview, shared decision making
Decisions around long-term ventilation for children: Perspectives of directors of pediatric home ventilation programs
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL