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Tags: van der Heide A

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Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands

OBJECTIVE: To identify barriers, as perceived by parents, to good care for children with life-threatening conditions. DESIGN: In a nationwide qualitative study, we held in-depth interviews regarding end-of-life care with parents of children (aged 1…

Tags: 2020, August 2020 List, Bmj Open, Brouwer M, Hein I, Maeckelberghe E L M, Medical Ethics, paediatric palliative care, Palliative Care, van der Heide A, Verhagen E

Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit

AIM: This study described the development, and pilot evaluation, of the Implementing Pediatric Advance Care Planning Toolkit (IMPACT). METHODS: Key elements of paediatric advance care planning (ACP) were defined using a systematic review, a survey of…

Tags: 2020, Acta Paediatrica, Advance Care Planning, care goals, Communication, Decision-making, Fahner J, July 2020 List, Kars M, Life-limiting Conditions, Milota M, Rietjens J, van Delden J, van der Heide A

Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child

Advance care planning enables parents to discuss goals and preferences for future care and treatment of their seriously ill child. Although clinicians report parental factors as common barriers for advance care planning, parental views on reflecting…

Tags: 2020, Advance Care Planning, Communication, European Journal of Pediatrics, Fahner J C, Kars M C, May 2020 List, Pediatric Palliative Care, Rietjens J A C, shared decision making, Tholking T W, van Delden J J M, van der Heide A

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