Browse Items (162 total)
- Tags: conference abstract
My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own Condition
Tags: 2023, ambivalence, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Controlled Study, Coombes L, discourse analysis, Downing J, Ellis-Smith C, Emotion, Female, Fraser L, Harardottir D, Harding R, Health Status, Human, Human Experiment, Human Tissue, Interview, Language, literature, Male, Malignant Neoplasm, Murtagh FE, Only Child, Palliative Medicine, Preschool Child, Roach A, Scott HM, September List 2027, Thematic Analysis
Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Tags: 2023, Adolescent, Adult, ADULTHOOD, Aspey H, August List 2031, Bereavement Support, BMJ Supportive and Palliative Care, Bond E, Case Study, Child, Clinical Article, Community Health Nursing, conference abstract, Deterioration, Elverson J, family support, Female, groups by age, health hazard, Hoskins R, Hospital Admission, hospital discharge, Human, Learning, Mackerness C, Male, Neurodisability, Palliative Therapy, Patient Care, Shiell A, Terminal Care, Young Adult
How do children’s nurses working in hospices manage emotional labour and professional integrity in long-term relationships with parents?
Tags: 2023, August List 2026, BMJ Supportive and Palliative Care, Brimble MJ, Child, Clinical Article, conference abstract, Coping Behavior, Emotion, Emotional Intelligence, Ethics, Female, Hospice, Hospices, Human, Human Experiment, Human Tissue, Male, mobile phone, Nurse, Nursing Practice, Parents, professionalism, Purposive Sample, social media, telephone interview, Thematic Analysis, theoretical study
Siblings and End-Of-Life Decision Making in the NICU
Tags: 2023, care behavior, Child, Clinical Article, conference abstract, Content Analysis, Critically Ill Patient, Decision Making, electronic medical record, Female, Gillam L, Human, Infant, Journal of Paediatrics and Child Health, July List 2023, Male, Neonatal Intensive Care Unit, Perception, Power J, Prentice TM, Semi Structured Interview, Sibling, Wellbeing
Impact of Palliative Care Integration on End-of-Life Outcomes in Pediatric Hematopoietic Cell Transplant
Tags: 2023, anxiety, Appetite, Baker JN, bleeding, bodily secretions, Child, conference abstract, Controlled Study, coughing, Cuviello A, Data Analysis, Demographics, Diarrhea, Distress Syndrome, do not resuscitate order, Documentation, Dyspnea, edema, Fatigue, Female, fever, hematopoietic cell, Hospice, Human, human cell, Intubation, Irritability, July List 2023, Levine DR, Lifespan, Major Clinical Study, Male, Medical Record Review, Nausea And Vomiting, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Retrospective Study, Surgery, Survival, Terminal Care, Transplantation, Transplantation and Cellular Therapy
Early Integration of Pediatric Palliative Care in Pediatric Hematopoietic Stem Cell Transplant Patients
Tags: 2023, Callard E, Child, conference abstract, Consultation, Controlled Study, Distress Syndrome, evidence based practice center, Female, Fisher J, Hematopoietic Stem Cell, Hematopoietic Stem Cells, Human, human cell, July List 2023, Kent L, Learning, Major Clinical Study, Male, Medical Record Review, Morbidity, Mortality, Palliative Care, Palliative Therapy, Pinner LA, Pyke-Grimm K, Retrospective Study, Risk Assessment, Satisfaction, staff training, Stem Cell Transplantation, Transplantation, Transplantation and Cellular Therapy, Williams M
Patient-centred outcome measure design: the perspectives and preferences of children and young people with life-limiting or life-threatening conditions
Tags: 2023, Adolescent, Bluebond-Langner M, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Coombes L, Downing J, Ellis-Smith C, Feasibility Study, Female, Fraser LK, genetic transcription, Harding R, Haroardottir D, Hills M, Human, Interview, July List 2023, Laddie J, Male, Malignant Neoplasm, Murtagh FEM, Nervous System, outcome assessment, Pain, Preschool Child, Quality of Life Research, Ramsenthaler C, Recall, Roach A, Scott H, Self Report, Voice
Local Paediatric Death Data for Barnet 2015- 2021: Which Children are Potentially Eligible for Hospice Care?
Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death
Use of Mobile Cold Sheets in Paediatric Hospice Care
Tags: 2022, Australia, BMJ Supportive and Palliative Care, Child, Child Parent Relation, cold stress, Cold Temperature, conference abstract, cooling, Emergency Care, funeral home, Hospice, Hospice Care, Human, Learning, March List 2023, Memory, Mott C, nut, Oldham K, Posthumous Care, Practice Guideline, Privacy, Twins, unlicensed drug use
Learning Disability Nurses in Palliative Care - A Narrative on Diversifying the Workforce and the Caseload
Tags: 2022, Adult, ADULTHOOD, Attention, Autism, BMJ Supportive and Palliative Care, Child, Cognitive Defect, Cohort Analysis, conference abstract, Distress Syndrome, Employment, Epilepsy, Female, geriatric disorder, Hospice, Human, Learning, learning disorder, Learning Disorders, malignant cardiac tumor, March List 2023, Marsden S, Narrative, Neurodisability, Nurse, Palliative Care, Palliative Therapy, Skill, Terminal Care, Treatment Failure, workforce
Teetering On a Cliff Edge: Transitioning Between Paediatric and Adult Hospice Services
Tags: 2022, Adult, BMJ Supportive and Palliative Care, Child, Clinical Article, conference abstract, Controlled Study, Conversation, Female, Hospice, Hospice Care, Human, Human Experiment, Laidlaw S, Male, March List 2023, O'Connor J, Pediatric, Psychological Well-being, Rahman F, Scotland, Social Care, Trust, Wales, Wellbeing, Wylie F, Young Adult
Transforming Care for Young Adults with Complex and Life-Limiting Conditions
“It’s brilliant! It’s working! It’s needed!” A Hospice Short Break Innovation for Young Adults
Tags: 2022, Adult, BMJ Supportive and Palliative Care, Child, Clinical Article, conference abstract, Drug Withdrawal, Female, Finlinson H, Health Care Delivery, Hospice, Human, Human Experiment, Interview, Learning, Male, March List 2023, outcome assessment, Palliative Therapy, positive feedback, Questionnaire, Sibling, Spathis A, Trust, Young Adult
Young People and Transition at a Hospice for Adults
Taking Memory Making to the Next Level with the Use of Resin
Bereaved Parents' Perspective on Communication of Transition to Palliative Care in Pediatric Oncology - Hungarian Experience
Tags: 2022, Bereavement, Child, Childhood Cancer, Clinical Article, communication protocol, conference abstract, Consultation, Female, Foldesi E, genetic transcription, Hauser P, Hegedus K, Human, Hungary, Male, March List 2023, Nonverbal Communication, Nyiro J, Palliative Therapy, Pediatric Blood and Cancer, Semi Structured Interview, Terminal Care, Zorgo S
Dying child and nurses' mourning
Tags: 2021, Child, Death, Human, Nurse, Anger, CARE, Child, conference abstract, Curriculum, Death, Demography, Dying, Education, European Psychiatry, Evangelou E, Guilt, Hospitalized Child, January List 2023, Koutelekos I, Kyritsi E, Lekas C, mourning, Nurse Care, Pediatric Hospital, pediatric nurse, Questionnaire, Sadness, theoretical study, Zartaloudi A
At the End of Life: Pediatric Palliative Care Can Make a Difference in Caring for the Child and Family
Tags: 2022, Agitation, Alvarez T, anxiety, Bolanos J, Cancer Patient, care behavior, Child, Claros A, Cleves D, conference abstract, Controlled Study, Cuervo M, December List 2022, Demography, Dyspnea, Fear, Female, Garcia X, Hospital Mortality, Human, Intensive Care Unit, Irritability, Leukemia, Major Clinical Study, Male, middle income country, Molina K, Pain, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, quasi experimental study, Retrospective Study, School Child, Seizure, Skill, social needs, Terminal Care, ward
Cultivating Gratitude in Bereaved Families: Description of the Impact of the Bereavement Workshop on Families of Deceased Patients in the Pediatric Palliative Care Program
Tags: 2022, active listening, Alvarez T, Bereavement, Bolanos J, butterfly, Child, conference abstract, Coping Behavior, Correa I, Cuervo M, December List 2022, Devia A, Garcia X, genetic transcription, Grief, Group Therapy, Human, Learning, Molina K, Music Therapy, Nonhuman, Palliative Therapy, Pediatric Blood and Cancer, Perception, Pereira L, Qualitative Research, quantitative analysis, ritual, writing
Development of a Global Palliative Care Program
The Dutch Multidisciplinary Clinical Practice Guideline for Pediatric Palliative Care
Tags: 2022, Advance Care Planning, Bereavement Support, Borggreve B, Child, Clinical Practice, conference abstract, Controlled Study, December List 2022, Female, Human, Kremer L, Male, Michiels E, Mulder R, Netherlands, Palliative Therapy, Pediatric Blood and Cancer, Practice Guideline, Randomized Controlled Trial (topic), shared decision making, Systematic Review, Van Teunenbroek K, Verhagen AAE
Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives
Tags: 2022, Bluebond-Langner M, Braybrook D, Bristowe K, care behavior, Chambers L, Child, conference abstract, Coombes L, Ellis-Smith C, Farsides B, genetic transcription, Harardottir D, Harding R, Murtagh F, outcome assessment, Palliative Medicine, Palliative Therapy, Roach A, Scott H, Semi-Structured Interview, September 2022 List, Social Care
Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research
From Pediatric to Adult Palliative Care Service: The Continuity of Care
The DIGNITAL Study
The Impact of COVID-19 on Palliative Care for Children Within the UK
Tags: 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Child, conference abstract, Controlled Study, Coombes L, COVID-19, Ellis-Smith C, Farsides B, Fraser L, Harardottir D, Harding R, Murtagh F, Palliative Care, Palliative Medicine, Roach A, Scott H, Semi-Structured Interview, September 2022 List, United Kingdom, VULNERABILITY, workload
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Tags: 2020, 78415-72-2 (milrinone), Adams V L, Body Weight, Burnette A L, Child, Clergy, conference abstract, Controlled Study, dietitian, Emergency Ward, Feeding, Follow Up, Heart Failure, heart graft, Henderson H T, Home Visit, Hospice, Hospital Admission, hospital discharge, hospital readmission, Human, inotropism, Journal of Heart and Lung Transplantation, May 2020 List, milrinone, money, Mortality, Outpatient, Palliative Therapy, Satisfaction, Savage A J, Social Worker, travel
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Improving the frequency of symptom assessment in pediatric palliative care patients
Tags: 2018, April 2020 List, Awareness, Child, clinical evaluation, Comfort, conference abstract, E-mail, electronic medical record, Hospital Patient, Human, human cell, information technology, Mark M S, McKenna L, Outpatient, Palliative Therapy, Pediatrics, Quality Of Life, root cause analysis, stem cell, Symptom Assessment, Thienprayoon R, Total Quality Management
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Family attitudes toward genomic sequencing in children with cardiac disease
Tags: 2020, April 2020 List, Char D, Child, conference abstract, Confidentiality, consumer, Controlled Study, Deuitch N, Family Attitudes, family planning, Gal D, genetic discrimination, Grounded Theory, Health Care System, heart center, Heart Diseases -- Mortality, Human, Human Tissue, Insurance, interrater reliability, Journal Of Investigative Medicine, Magnus D, Perception, Privacy, Prognosis, Resource Allocation, Semi Structured Interview, sequence analysis, Surgery, Tang R, Transplantation, Trust, Uncertainty
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Palliative care in an underserved community: Striving and thriving
Tags: 2018, Alladin A R, April 2020 List, Awareness, Bereavement Support, bone marrow, Cancer Patient, Cantwell G P, Caribbean, Child, Childhood Cancer, conference abstract, Congenital Malformation, coordination compound, Ethnic Group, Europe, Female, Heart, Hispanic, Hospice, Hospital Patient, Human, Japan, Juanico K, kidney, liver, Major Clinical Study, Male, Medicaid, Memory, Middle East, Music Therapy, Nares M, Neonatal Intensive Care Unit, Newborn, nursing education, Pain, Palliative Therapy, Pastoral Care, Pediatrics, Perception, Posthumous Care, Resident, Sibling, Social Work, Terminal Care, terminally Ill Patient, Webster-Carrion A
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Preparing for Good Grief: Grief and Loss in the Hospice and Palliative Context (P07)
Tags: 2020, Bereavement Support, Child, Complicated Grief, conference abstract, Exercise, Hospice, Human, Journal of Pain and Symptom Management, Learning, March 2020 List, Palliative Therapy, Professional Practice, Program Development, Remke S S, risk factor, Shukraft A E, Supiano K P, survivor, videorecording, Wladkowski S P
Increasing joy for pediatric palliative care providers: #pactimpact a quality improvement initiative for resiliency in the workplace
Pediatric palliative podcasting as a tool to reach families
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult