Browse Items (229 total)
- Tags: conference abstract
Parental perspectives on home-based palliative care in children with advanced cancer
Tags: 2023, 2025 SE1 - Oncology, Advanced Cancer, Bereavement Support, Biji MS, cancer center, Child, Childhood Cancer, conference abstract, Drug Therapy, Father, Fatigue, Female, friend, Gopakumar KG, Home Care, Human, Jithin TK, Journal Of Pediatric Hematology/oncology, Likert scale, Male, Nimitha T, Observational Study, Only Child, oral drug administration, Pain, Palliative Care, Palliative Therapy, Questionnaire, refractory disease, relapse, Rizwana KN, social media, Therapy
A Feasibility Study Examining Storytelling Through Music with Bereaved Parents of Children with Cancer (RP212)
Tags: 2024, 2025 SE1 - Oncology, Adult, Bereavement, Bereavement Support, Caucasian, Child, Choi E, cognitive coping, conference abstract, Controlled Study, Coping, Ethnicity, Feasibility Study, Female, Grief, Hebdon M, Hispanic, Human, Jorgensen T, Journal of Pain and Symptom Management, Kesler S, Knowledge, Major Clinical Study, Male, Malignant Neoplasm, metacognition, Moorjani D, Morgan B, Morris J, Morris SE, music, Parent, Phillips C, prolonged grief, psychosocial care, Randomized Controlled Trial, Ravandi D, Rodriguez EM, Self Care, Storytelling, Therapy, Umberson D, Woods H
Assessment of knowledge, attitude, and practice and associated factors towards palliative care among health care providers to the pediatric oncology patients in southern Philippines
Tags: 2020, 2025 SE2 - LRS, Attitude, Awareness, Cambia JM, cancer center, Cancer Prevention Research, chi square distribution, Child, Childhood Cancer, conference abstract, Cross-sectional Study, Data Analysis Software, Disease Management, Female, Health Care Personnel, Hospice Care, Human, Knowledge, Male, Medical Specialist, Nurse, Oh JK, Palliative Care, Palliative Therapy, Pasaol JC, Patient Referral, Philippines, Professional Development, Quality Of Life, Rosal J, staff training, Stigma, structured questionnaire, tertiary care center, Therapy
Exploring learners' perspectives of a pediatric palliative care tele-mentoring and education program (project Echo) in a resource-limited setting
Tags: 2020, 2025 SE2 - LRS, Archibald D, Bangladesh, Child, Clinical Article, conference abstract, Controlled Study, Doherty M, E-learning, Education Program, Evans E, Female, genetic transcription, Health Care Personnel, Human, Human Experiment, India, Language, Male, mentoring, Modanloo S, Newhook D, Paediatrics And Child Health, Palliative Therapy, Rowe J, Skill
Coping with paediatric end-of-life care: Insights from South African paediatric registrars
Tags: 2023, 2025 SE2 - LRS, Child, conference abstract, Coping Behavior, Coping Strategy Questionnaire, Cross-sectional Study, Female, high income country, Human, Kimmie-Dhansay F, Kling S, Kruger M, Male, Psychological Well-being, Religion, School Child, South African, South African Journal of Child Health, Sullivan A, Terminal Care
Decision-Making Factors in Advanced or Incurable Childhood Cancer Diagnosis in Low- and Middle- Income Countries
Tags: 2024, 2025 SE2 - LRS, access to treatment, Advanced Cancer, Cancer Diagnosis, catalyst, Child, Childhood Cancer, Clinical Article, conference abstract, Content Analysis, Decision Making, Diagnosis, Drug Therapy, Female, Human, Interview, Journal of Pain and Symptom Management, Male, middle income country, Rule A, Salek M, Self Report, Semi Structured Interview, special situation for pharmacovigilance, World Health Organization
DMD-YOUNG: paediatric palliative care for children with a slowly progressive neuromuscular disorder in transition to adulthood
Tags: 2024, Adolescent, ADULTHOOD, Annexstad E, Child, conference abstract, Controlled Study, Coping, Coping Strategy Questionnaire, Duchenne Muscular Dystrophy, Employment, empowerment, February List 2025, housing, Human, Knowledge, Life Expectancy, Male, Medical Information, muscle function, Neuromuscular Disease, Neuromuscular Disorders, Nordstrom M, Norway, Palliative Therapy, Quality Of Life, Ramberg C, Rosenberger A, Social Behavior, social life, social network
Utilization of a prenatal palliative care consultation pathway for congenital heart disease
Tags: 2024, Cardiology In The Young, conference abstract, congenital disorder, Congenital Heart Disease, Consultation, Diagnosis, Distress Syndrome, Emotional Stress, February List 2025, Fetus, Gandhi R, heart disease, Human, Infant, Mikal M, Newborn, Palliative Therapy, Patient Referral, Retrospective Study, Spiritual Care, Walsh S
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Tags: 2024, Adolescent, Adult, Advance Care Planning, anxiety, Bodhanwala M, Cardiology In The Young, Child, Clinical Article, Cognition, conference abstract, Congenital Heart Disease, Consultation, Controlled Study, Dinand V, Dixit P, February List 2025, Human, intervention study, Jain S, Khanna S, Male, Medical Decision Making, Mishra J, oxygen concentrator, Palliative Therapy, Panda B, Patient Referral, Pediatric Quality of Life Inventory, Prabhu SS, Prognosis, Quality Of Life, Reoperation, Sumitra V, Surgery, Terminal Care
Effect of timing of palliative care consultation on end-of-life care for children with advanced cardiac disease
Tags: 2024, Artificial Ventilation, Brain Death, Cardiology In The Young, chi square distribution, Child, Cohort Analysis, conference abstract, Consultation, Controlled Study, coronary care unit, Delgado-Corcoran C, Drug Therapy, escalation of care, extracorporeal oxygenation, February List 2025, Female, Fitzgerald L, Harousseau M, heart disease, Human, Major Clinical Study, Male, Meeks H, mode of death, Moresco B, Olson L, Palliative Therapy, Patient Comfort, pediatric patient, Resuscitation, Retrospective Study, Songer K, Terminal Care, Therapy, time of death, Wawrzynski SE
CHILDREN WITH LIFE-LIMITING CONDITIONS USING NONINVASIVE VENTILATION: PARENT PERSPECTIVES
Tags: 2024, Adolescent, Adult, Anticipatory Guidance, care behavior, Castro-Codesal M, Chest, Child, Clinical Article, conference abstract, Decision Making, Dyspnea, Female, Health Care Personnel, Human, Interview, Kingsley B, Male, Noninvasive Ventilation, November List 2024, Olmstead D, Parent, Personal Experience, Qualitative Research, special situation for pharmacovigilance, Therapy, Turnbull H
CARING FOR DYING CHILDREN: EXPERIENCES OF FAMILY CAREGIVERS OF CHILDREN RECEIVING PEDIATRIC PALLIATIVE TREATMENT
Tags: 2024, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Child, Clinical Article, conference abstract, Content Analysis, Correlation Analysis, Dying, Family, Fear, Human, Mental Health, Neuro-oncology, October List 2024, Palliative Therapy, Quality Of Life, Questionnaire, School Child, Semi Structured Interview, Tanriverdi M, Yilmaz GG
DIVERSITY IN ETHNICITY AND MAIN SPOKEN LANGUAGE OF CHILDREN REFERRED TO A SPECIALIST PAEDIATRIC PALLIATIVE CARE SERVICE
Tags: 2024, Aidoo E, Archives of Disease in Childhood, Caribbean, Caucasian, Central Asian, Child, conference abstract, Controlled Study, drug comparison, electronic patient record, England, Epidemiology, ethnic background, Ethnicity, Female, Human, Major Clinical Study, Male, Medical Specialist, national health service, October List 2024, Pakistani, Palliative Therapy, Patient Referral, South Asian, Therapy, Wright L
THE DEVELOPMENT OF A CHILDREN'S HOSPICE PERINATAL SERVICE TO IMPROVE PERINATAL PALLIATIVE CARE - 10 YEARS ON
Tags: 2024, Aged, Archives of Disease in Childhood, Awareness, Bereavement, catchment area, Child, conference abstract, Diagnosis, extended family, Hospice, Hospice Care, Human, Multidisciplinary team, newborn period, October List 2024, Palliative Therapy, Patient Referral, positive feedback, Trisomy 18, Williams K
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death
HELPING THE HELPERS - SUPPORT IN CHILD BEREAVEMENT FOR PAEDIATRIC HEALTH CARE STAFF
Tags: 2024, Archives of Disease in Childhood, Bereavement, Callow E, Child, Child Death, Child Health Care, conference abstract, Controlled Study, Conversation, Emergency Ward, Grief, Health Care Personnel, Human, Nurse, Nursing Staff, October List 2024, pediatric intensive care nursing, pediatric nurse, Pediatrician, Questionnaire, Self Care, Shefler A, Sibling, Smith N
INTRODUCTION OF A PERINATAL PALLIATIVE CLINICAL NURSE SPECIALIST ROLE ENHANCING PARTNERSHIP WORKING BETWEEN PALLIATIVE CARE AND PERINATAL SERVICES-ONE YEAR ON
Tags: 2024, Anderson AK, Archives of Disease in Childhood, Awareness, Child, Clinical Nurse Specialist, conference abstract, evidence based practice, Female, Health Care Personnel, Human, Lewin-Taylor T, Linford H, midwife, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, October List 2024, Palliative Therapy, Patient Referral, positive feedback, Prevention, Pringle A, Summers S, Surgery
PAEDIATRIC TO ADULT PALLIATIVE CARE - IS THERE A PRESCRIPTION FOR TRANSITION?
Tags: 2024, Adult, Archives of Disease in Childhood, Brown K, Child, conference abstract, Degenerative Disease, Drug Therapy, Health Care Personnel, Human, Life Expectancy, McCusker K, muscarinic receptor blocking agent, October List 2024, Palliative Therapy, prescription, Prevalence, Scotland, Seizure, Spasticity, Therapy, Young Adult
PERINATAL PALLIATIVE CARE REQUIREMENTS IN THE WEST MIDLANDS: A SERVICE EVALUATION PROJECT
Tags: 2024, Archives of Disease in Childhood, Battersby C, brain malformation, Brown S, conference abstract, Diagnosis, Female, Fetus, Foster E, Harnden F, heart disease, Human, Infant, long term survival, Mackie F, Major Clinical Study, Maternal care, Mott C, multiple malformation syndrome, Neonatal Intensive Care Unit, nervous system malformation, Newborn, Newborn Care, Newborn Intensive Care, October List 2024, Palliative Therapy, Patient Referral, pharmaceutical care, Prenatal Care, Prognosis, Rajaraman N, routinely collected health data, Therapy, Van Hasselt TJ
A PROSPECTIVE REVIEW OF PAEDIATRIC TRAINEES EXPOSURE TO PALLIATIVE CARE IN IRISH HOSPITALS
Tags: 2024, Allen J, BMJ Paediatrics Open, Capra M, Child, conference abstract, Constipation, Data Analysis Software, Devins M, Diagnosis, Dyspnea, Emotional Stress, Flinn K, Health Care Personnel, Human, McElligott F, Normal Human, October List 2024, Palliative Therapy, Questionnaire, symptomatology, Thematic Analysis
A RETROSPECTIVE AUDIT FOR PRE-HOSPITAL RESPECT DOCUMENTATION FOR CHILDREN WITH COMPLEX LIFE LIMITING NEURO-DISABILITY ADMITTED TO PAEDIATRIC INTENSIVE CARE UNIT
Tags: 2024, Adolescent, Archives of Disease in Childhood, Caregiver, Child, Clinical Audit, conference abstract, Controlled Study, Female, Hospice Care, Human, Infant, Intensive Care, Kayani R, Major Clinical Study, Male, Mohamed M, Neurodisability, October List 2024, Palliative Therapy, Pediatric Intensive Care Unit, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Varma R
SCOPING REVIEW OF THE BARRIERS AND FACILITATORS TO PAEDIATRIC PALLIATIVE CARE REFERRAL, AND INTERVENTIONS TO IMPROVE ACCESS
Tags: 2024, access to medication, Archives of Disease in Childhood, Child, Chudleigh J, Cochrane Library, community resource, conference abstract, Coombes L, drug bioavailability, family support, Fraser L, Harding R, Holder P, Human, Interpersonal Communication, Mass Screening, October List 2024, Palliative Therapy, Parental Attitude, Patient Referral, Psycinfo, Scoping review, Telehealth, Therapy
THE WEST MIDLANDS PERINATAL PALLIATIVE CARE SERVICE AUDIT ON REFERRALS, DIAGNOSES AND PROGNOSES OF BABIES WITH SEVERE CONDITIONS
Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18
WORKLOAD AND PATIENT EXPERIENCE DATA ON THE COMPLEX HEALTHCARE TRANSITION SUPPORT PATHWAY: A TERTIARY CHILDREN'S HOSPITAL EXPERIENCE
Tags: 2024, access to medication, Archives of Disease in Childhood, Cash H, Child, Cochrane Library, community resource, conference abstract, drug bioavailability, family support, Human, Mass Screening, Narula P, October List 2024, Palliative Therapy, Parental Attitude, Patient Referral, Psycinfo, Scoping review, Telehealth, Therapy, workload
Parental quality of life as an outcome of specialised paediatric palliative care: results of the SPhAERA study
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort Study
Tags: 2024, Aczon M, Adult, Aged, Avesar M, Child, Clinical Feature, Cohort Analysis, Cohort Studies, conference abstract, Critical Care Medicine, Death, Drug Therapy, extubation, Fainberg N, family counseling, Female, Hsu S, Human, Intensive Care Unit, July List 2024, Laksana E, Ledbetter D, machine learning, Major Clinical Study, Male, McCrory M, Morrow K, O'Brien C, operating room, organ donor, Pediatric Intensive Care Unit, predictive value, Pringle C, Randomized Controlled Trial, Retrospective Study, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, vital sign, Wetzel R, Winter M, Zhou A
Parent and Provider Perspectives of Clinical Outcomes of Critically Ill Children
Tags: 2024, Adult, Artificial Ventilation, Child, Clinical Outcome, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critical Illness, Critically Ill Patient, Female, Human, July List 2024, Krippendorff's alpha coefficient, Length Of Stay, Major Clinical Study, Male, Mortality, Noninvasive Ventilation, Only Child, oxygen, Parent, Pediatric Intensive Care Unit, Pennsylvania, Shannon M, Short Survey, ventilated patient, ventilator, Yehya N
Paediatric Palliative Care and Anticipatory Prescribing: Just Wasteful Are We?
Tags: 2024, access to medication, Adult, Best Practice, BMJ Paediatrics Open, carbon dioxide equivalent, Child, conference abstract, Controlled Study, cost benefit analysis, Drug Therapy, Female, Human, July List 2024, Ketamine, levomepromazine, macrogol 3350, Major Clinical Study, Medical Record Review, Midazolam, national health service, Opiate, Palliative Care, Palliative Therapy, Patel B, Pharmacoeconomics, reassurance, Retrospective Study, Terminal Care, time of death
Understanding PICU Mortality and Family Bereavement: A Singlr- Canter Qualitative Study
Tags: 2024, Adolescent, Bereavement, Caucasian, Cause Of Death, Child, conference abstract, Critical Care Medicine, date of death, do not resuscitate order, Family, Family Structure, Female, fetus death, household, Human, Infant, Intensive Care, July List 2024, Major Clinical Study, Male, Morbidity, Mortality, Palliative Therapy, Parrillo M, Pediatric Intensive Care Unit, pediatric patient, poverty level, Qualitative Research, Remy AM, Remy K, Retrospective Study, Social Class, University Hospital
A Review of pediatric Palliative Care Program in a Regional Hospital in ong Kong
Tags: 2021, Adolescent, Aged, Bereavement Support, BMJ Paediatrics Open, Child, Chromosome Aberration, Clinical Article, community support, conference abstract, congenital disorder, Congenital Malformation, do not resuscitate order, Drug Therapy, Emergency Ward, endocrinologist, Female, Follow Up, Gastrostomy, Hong Kong, Human, Intensive Care Unit, Intensivist, July List 2024, Kwong CH, Lee TYH, Li CH, limited mobility, Male, Man SS, Medical Record Review, Metabolic Disorder, Morbidity, Neonatal Intensive Care Unit, Neonatologist, Neurologic Disease, neurologist, Noninvasive Ventilation, nose feeding, Oncologist, Pain, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, pediatric ward, Pediatrician, perinatal morbidity, Quality Of Life, Therapy, Tracheostomy
Bereavement, Palliative, and End-of-Life Education Needs Assessment
Tags: 2024, Balakumar N, Bereavement, Child, conference abstract, Conversation, Critical Care Medicine, Curriculum, Education, Educational Measurement, Enteropathogenic Escherichia coli, Henley K, Hospital Mortality, Human, Intensive Care, Jaisankar B, July List 2024, learning style, Male, Needs Assessment, Palliative Therapy, Pediatric Intensive Care Unit, Ponton O, Prognosis, Simulation, Surgery, Terminal Care
Racial and Ethnic Disparities in End-of-Life Care of Children Undergoing Terminal Extubation in ICU
Tags: 2024, Adult, Age Distribution, Aged, airway pressure, Benzodiazepine, Burkiewicz K, Caucasian, Child, conference abstract, Critical Care Medicine, electronic medical record, ethnic difference, Ethnic Group, Ethnicity, extubation, Female, Hispanic, Human, hypertensive factor, Intensive Care, Intensive Care Unit, July List 2024, Major Clinical Study, Male, Morphine, Only Child, Pediatric Intensive Care Unit, positive end expiratory pressure ventilation, positive pressure ventilation, racial disparity, Secondary Analysis, Terminal Care, Tripathi S, ventilator, Winter M
Can We Adopt Pediatric Palliative Care that is Indivisible with Equity for all?
"Somebody Hug the Interpreter": Enhancing Pediatric Palliative Care Partnership with Medical Interpreters
Tags: 2024, Child, Clinical Practice, Clinician, collaborative care team, conference abstract, Distress Syndrome, diversity equity and inclusion, Frechette EM, health disparity, health literacy, hospital planning, Human, Journal of Pain and Symptom Management, June List 2024, medical interpreter, Palliative Therapy, Patient Care, Personal Experience, Porter AS, professionalism, Snaman JM, Speech, structural racism, Teamwork, video interview, videorecording, Wise AF
Perinatal Palliative Care Fellowship: Development of a Novel Subspeciality Track in Palliative Medicine
Improving Pediatric Residency End-Of-Life Education: A Quality Improvement Approach
Tags: 2024, Child, Cirotski DS, conference abstract, Coping, Curriculum, Education, Human, Infant, Journal of Pain and Symptom Management, June List 2024, Medical Education, Mehta A, Palliative Therapy, pathophysiology, pediatric patient, Personal Experience, respiratory gas humidifier, Spratt K, Teaching, Terminal Care, tertiary health care, Total Quality Management, Vallely J
Meaningful Display of Legacy Items Among Families Experiencing a Perinatal, Neonatal, or Infant Death
Tags: 2024, Bereavement, Cause Of Death, Child, Child Death, conference abstract, Controlled Study, Conversation, Family, Family Interaction, Female, fetus death, Gestational Age, Grief, Human, Infant, Interview, Journal of Pain and Symptom Management, June List 2024, Kaushik R, Mental Health, Newborn, Palliative Therapy, palmar dermatoglyphics, Pregnancy, Rodriguez M, Second Trimester Pregnancy, Smith V, third trimester pregnancy, University Hospital, Vandermeer R
Deepening Clinician Understanding of Family Caregivers' Lived Experiences Caring for Medically Complex Children
Tags: 2024, Adult, Bogetz J, care behavior, Caregiver, Caregiver Support, Child, Child Death, Clinician, conference abstract, ethnography, Female, Grief, Human, Human Experiment, Interpersonal Communication, Journal of Pain and Symptom Management, June List 2024, Male, McCarthy S, Palliative Therapy, Participant Observation, Personal Experience, Porter AS, rejuvenation, Self Report, Snaman JM
Reimagining Respite: An Interactive Session Aimed at Improving Pediatric Respite Care Through Idea Exchange
Understanding and Optimizing Rest and Rejuvenation for Family Caregivers of Children with Medical Complexity
Tags: 2024, Adult, Caregiver, Caregiver Support, Child, Clinician, conceptual model, conference abstract, Content Analysis, Controlled Study, coronavirus disease 2019, Family, Fatigue, Female, Follow Up, household, Human, Interview, Journal of Pain and Symptom Management, June List 2024, Palliative Therapy, Participant Observation, Porter AS, Qualitative Analysis, rejuvenation, Respite Care, rest, Semi Structured Interview, task shifting, ubiquinol cytochrome c reductase