Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research

Title

Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research

Creator

Coombes L; Roach A; Leyden D; Scott H; Braybrook D; Harardottir D; Ellis-Smith C; Bristowe K; Harding R

Publisher

Palliative Medicine

Date

2022

Subject

Child; Adolescent; Female; Male; Clinical; Palliative therapy; Conference abstract; Outcome assessment

Description

Background/aims: Patient and public involvement (PPI) is essential to design and deliver meaningful research, but evidence on how to involve children and young people (CYP) in palliative care studies is limited. We aim to develop strategies to engage CYP PPI in paediatric palliative care (PPC) research.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2022 List

Collection

Citation

Coombes L; Roach A; Leyden D; Scott H; Braybrook D; Harardottir D; Ellis-Smith C; Bristowe K; Harding R, “Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research,” Pediatric Palliative Care Library, accessed April 26, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18257.