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Tags: 2024, Adolescent, Adult, Article, Barton KS, Bogetz J, brain ventricle peritoneum shunt, Child, Child Parent Relation, Clinical Article, Cohort Analysis, confusion (uncertainty), Controlled Study, Disease Severity, ethnic background, Father, feeding tube, Female, Health Survey, Home Care, Hospital Admission, hospital discharge, Human, implanted vagus nerve stimulator, intrathecal baclofen pump, Journal of Palliative Medicine, legal guardian, Length Of Stay, Life Expectancy, Male, mortality risk, Neurodisability, noninvasive positive pressure ventilation, October List 2024, Oslin E, Palliative Therapy, Parental Stress, Patient Advocacy, Pediatric Hospital, Pediatric Intensive Care Unit, Personal Experience, Prospective Study, Qualitative Research, Quantitative Study, Rosenberg AR, Semi Structured Interview, Tracheostomy, Trowbridge A, United States, VULNERABILITY, Watson RS, Yi-Frazier J
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Tags: 2010, 80 And Over, Access To Information, Adolescence, Aged, Backlog, Bosma H, Cadell S, Canada, Collaboration, Commitment, Communities, Decision Making, Education, Evaluation, Female, Goals and Objectives, Health Care Delivery, Hospices, Johnston M, Journal Article, Knowledge, Male, Multidisciplinary Care Team, Palliative Care, Patient Advocacy, Patient Care Plans, PPC Book Chapter 2011 (Kim Widger), Progress In Palliative Care, psychosocial, Reflection, Research, Role, Social Values, Social Work, Support, Wainright W
Tags: 2006, Backlog, Clinical Trials as Topic, Fadeel B, Hemophagocytic/drug therapy, Henter JI, Humans, Journal Article, Journal Of Internal Medicine, Lymphohistiocytosis, Orphan Drug Production/legislation & jurisprudence, Patient Advocacy, Rare Diseases/drug therapy, Severe Combined Immunodeficiency/drug therapy, Tyrosinemias/drug therapy, Wastfelt M
Tags: 2004, Backlog, Berry SR, Biomedical and Behavioral Research, Biomedical Research/ethics, Clinical Oncology, Death and Euthanasia, Ethics, Guidelines As Topic, Humans, Journal Article, Medical, Multi-site Ethics, Neoplasms/therapy, Palliative Care/ethics/trends, Patient Advocacy, Prejudice, Terminology as Topic, Vulnerable Populations
Tags: 2004, Analysis of Variance, Backlog, Biomedical and Behavioral Research, Bratts T, Conflict of Interest, Documentation/methods/standards, Empirical Approach, Ethics Committees, Guideline Adherence/standards, Guidelines As Topic, Hospital Bed Capacity/statistics & numerical data, Human Experimentation, Humans, Journal Article, Journal Of Nursing Scholarship, Larson E, Multi-site Ethics, Organizational Affiliation, Outcome and Process Assessment (Health Care)/organization & administration, Patient Advocacy, Professional Competence/standards, Questionnaires, Research/organization & administration, Stone P, Time Factors, United States, Zwanziger J
Tags: 2003, Attitude Of Health Personnel, Attitude To Health, Backlog, Ethics, Ethics Committees, Human Experimentation, Humans, International Journal of Palliative Nursing, Journal Article, Kristjanson LJ, Lee S, Multi-site Ethics, Nurse's Role, Nursing, Nursing Research/ethics, Palliative Care/ethics/psychology, Patient Advocacy, Research Design, Research Personnel/psychology, Research/organization & administration, Terminally Ill/psychology