Browse Items (39 total)
- Tags: England
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
What are virtual wards and how do they work?: primary care nursing roles are being reinvented as virtual ward and hospital at home services evolve
Tags: 2023, April List 2023, Community Health Nursing, Computer Literacy, COVID-19, England, Financing Government, Frailty Syndrome, Health Care Delivery Integrated, Health Services Accessibility, Holistic Nursing, Home Nursing, Hospital Units, National Health Programs, Nurse's Role, Nursing, Nursing Management, nursing role, Palliative Care, Pediatric Units, Primary Nursing, Remote Consultation, Telenursing, Trueland J, United Kingdom, utilization, virtual reality
Local Paediatric Death Data for Barnet 2015- 2021: Which Children are Potentially Eligible for Hospice Care?
Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death
Sudden Unexpected Death in Childhood in Greater Manchester (United Kingdom): A Five-Year Review (2015–2020)
Tags: 2022, Bereavement, Death, Cause Of Death, Child Pediatricians, Child welfare, childhood, Comprehensive Child & Adolescent Nursing, Coping, Dierckx E, Emergency Service, England, Evaluation, Family, family support, Infancy, January List 2023, Long T, Parents, Police Home Visits, Psychosocial Factors, Quinn S, Rowland AG, Sudden
I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Tags: 2022, Adolescent, Adult, Article, August 2022 List, biotechnology, Blake L, Bray L, Carter B, Child, Chronic Patient, Conceptual Framework, Controlled Study, Decision Making, Dickinson A, disabled person, England, Father, Female, Health And Social Care In The Community, Heat, Home Care, Human, Human Experiment, Interview, Male, Mitchell TK, Mother, Patient Care, Preschool Child, regeneration, Scotland, Thematic Analysis, thinking, Wales, Wellbeing
Polypharmacy in children and young people with life-limiting conditions from 2000-2015: a repeated cross-sectional study in England
Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult
Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care
Tags: 2021, Allocation, Bed Occupancy, Complex health needs, England, Hospice And Palliative Care Nursing, Hospice Care/organization & administration, Hospices, Humans, International Journal of Palliative Nursing, Leadership, Martin C, May 2021 List, Moore C, Needs Assessment, Nursing Models, Palliative Care/organization & Administration, Resource Allocation, Respite Care/organization & administration, Tatterton M, Technology dependence, Walker C
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
An Objective Approach to Decisions to Withdraw or Withhold Life-sustaining Medical Treatment
Juggling amidst complexity' – Hospice staff's experience of providing palliative care for infants referred from a neonatal unit
Tags: 2019, Attitude of Health Personnel -- Evaluation, England, Focus Groups, Hospice Care -- In Infancy and Childhood, Hospital Units, Human, Infant, Infant Care, Journal of Neonatal Nursing, Mendizabal-Espinosa R M, Neonatal Nursing, October 2019 List, Palliative Care -- In Infancy and Childhood, Price J E, Qualitative Studies, Referral And Consultation, Thematic Analysis, Work Experiences
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
A three pronged approach to improving advance care planning and end of life decision making for patients with life limiting conditions admitted to picu
A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
Tags: 2018, Adolescence, Advance Care Planning, Attitude Of Health Personnel, BMC Palliative Care, Child, Community -- England, Conversation, Death, Documentation, England, Family Attitudes, Hospices -- England, Hospital, Hospitals, Human, Infant, Jack BA, Knighting K, Medical Staff, Mitchell TK, Multidisciplinary Care Team, Newborn, O'Brien MR, Palliative Care, Pediatric Care -- Psychosocial Factors, Preschool, Qualitative Studies, Semi-Structured Interview, September 2018 List, Silverio SA, Terminal Care, Thematic Analysis, Time Factors
Prevalence and management of dystonia in a paediatric palliative care cohort
Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T
The reflections you get': an exploration of body image and cachexia.
Tags: 2007, 80 And Over, Adaptation, Aged, Attitude To Health, Backlog, Body Image, Cachexia/et [Etiology], Cachexia/px [Psychology], England, Female, Health Services Needs And Demand, Hinsley R, Holistic Health, Hughes R, Humans, International Journal of Palliative Nursing, Interpersonal Relations, Journal Article, Male, Middle Aged, N, Narration, Neoplasms/co [complications], Nursing Methodology Research, Palliative Care/mt [methods], Palliative Care/px [psychology], Prognosis, Psychological, Qualitative Research, Quality Of Life/px [psychology], Questionnaires, Social Behavior, Social Isolation, Social Support, Spirituality, Terminally Ill/px [Psychology]
Evaluation of transition services for young people with cystic fibrosis in Southeast London
Tags: 2005, Adolescent Transitions, Adult, Backlog, Carmel S, Child, Continuity Of Patient Care/organization & Administration, Cystic Fibrosis/therapy, England, Humans, Journal Article, Journal Of Interprofessional Care, Lowton K, Luce P, Mathes L, Patient Care Team/organization & administration, Program Evaluation, While A, Wyatt H
Socioeconomic differences in childhood hospital inpatient service utilisation and costs: prospective cohort study
Tags: 2005, Backlog, Child, England, Epidemiologic Methods, Female, Health Services Research, Hospital Costs/statistics & numerical data, Hospitalized/classification/statistics & numerical data, Hospitals/utilization, Humans, Infant, Journal Article, Journal Of Epidemiology And Community Health, Kupek E, Length Of Stay/statistics & Numerical Data, Male, Newborn, Non-U.S. Gov't, Petrou S, Preschool, Prospective Studies, Research Support, Social Class, Socioeconomic Factors
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
Developing the Liverpool Care Pathway for the dying child
Tags: 2006, Adolescent, Backlog, Barber M, Benchmarking, Brook L, Child, Critical Pathways/organization & administration, Documentation/standards, Ellershaw JE, England, Evidence-based Medicine, Gambles M, Health Services Needs And Demand, Hodgson A, Humans, Infant, Journal Article, Matthews K, Nurse's Role, Nursing Assessment, Nursing Audit, Nursing Evaluation Research, Nursing Records/standards, Outcome and Process Assessment (Health Care)/organization & administration, Paediatric Nursing, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Pediatric Nursing/organization & administration, PedPal Lit, Pilot Projects, Practice Guidelines, Preschool, Retrospective Studies, Total Quality Management/organization & administration, Williams M
CAMHS liaison: supporting care in general paediatric settings
Tags: 2006, Adolescent, Adolescent Psychiatry, Attitude Of Health Personnel, Backlog, Child, Child Psychiatry, Consultants/psychology, Continuing/organization & administration, Continuity Of Patient Care/organization & Administration, Education, England, Hospitals, Humans, Interprofessional Relations, Journal Article, Models, Nurse Clinicians/organization & administration/psychology, Nurse's Role, Nursing, Nursing Evaluation Research, Nursing Methodology Research, Nursing Staff/education/psychology, Organizational Objectives, Paediatric Nursing, Pediatric, Pediatric Nursing/education/organization & administration, PedPal Lit, Psychiatric Nursing/education/organization & administration, Questionnaires, Social Support, Total Quality Management/organization & administration, Watson E
Hospital for the children
Tags: 2006, Attitude Of Health Personnel, Backlog, Cancer Care Facilities/organization & administration, Child, England, Hospital Planning/organization & administration, Hospital/organization & administration/psychology, Hospitals, Houlston A, Humans, Journal Article, Nurse's Role, Nursing Staff, Nursing Standard, Oncologic Nursing/organization & administration, Pediatric Nursing/organization & administration, Pediatric/organization & Administration, PedPal Lit
Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service
Tags: 2003, Backlog, Catastrophic Illness/nursing, Cheater F, Child, Child Health Services/organization & administration, Communication, Community Health Nursing/education/organization & administration, Community Networks/organization & administration, Continuity Of Patient Care, Danvers L, Disabled Children, England, Freshwater D, Humans, Journal Article, Journal of Clinical Nursing, Longitudinal Studies, Nursing Evaluation Research, Staff Development, Wilson A
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Tags: 2003, Adaptation, Adolescent, Adult, Analysis of Variance, Backlog, Brain Injuries/economics/psychology, Brain Injury, Child, Comparative Study, Cost Of Illness, England, Family Characteristics, Family Health, Female, Follow-up Studies, Hawley CA, Health Education, Health Status, Humans, Journal Article, Long J, Longitudinal Studies, Magnay AR, Male, Mental Health, Non-U.S. Gov't, Parents/psychology, Poverty, Preschool, Psychological, Psychological/etiology, Questionnaires, Research Support, Stress, Ward AB
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
The development of an interdisciplinary outpatient clinic in specialist palliative care
Tags: 2004, Backlog, England, Hospital/organization & administration, Humans, International Journal of Palliative Nursing, Journal Article, Models, Needs Assessment/organization & administration, Nursing, Nursing Assessment, Nursing Audit, Nursing Evaluation Research, Oliver D, Outpatient Clinics, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Patient Satisfaction, Practice Guidelines as Topic/standards, Program Development/methods, Program Evaluation, Questionnaires
Helen House--a hospice for children: analysis of the first year
Tags: 1984, Adolescent, Backlog, Baum JD, British Medical Journal (clinical Research Ed.), Burne SR, Canuck Place 15 year chart review, Cerebellar Neoplasms/therapy, Child, Dominica F, England, Family Health, Female, Hospices/organization & administration, Humans, Journal Article, Male, Medulloblastoma/therapy, Neuronal Ceroid-Lipofuscinoses/therapy, Patient Admission, Quality Of Health Care, Terminal Care/standards
The importance of 'knowing the patient': community nurses' constructions of quality in providing palliative care
Tags: 2000, Austin L, Backlog, Caress A, Community Health Nursing, Death and Euthanasia, Empirical Approach, England, Hallett CE, Health Care Reform, Humans, Journal Article, Journal Of Advanced Nursing, Luker KA, Nurse-patient Relations, Palliative Care/standards, Quality Of Health Care, Questionnaires
Establishing a district palliative care team for children
Audit of deaths in general practice: pilot study of the critical incident technique
Tags: 1992, Backlog, Berlin A, Bhopal RS, Cause Of Death, Data Collection, England, Family Practice/standards, Health Services Research/methods, Human, Journal Article, Medical Audit/methods, Non-U.S. Gov't, Pilot Projects, Primary Health Care/standards, Quality In Health Care, Spencer JA, Support, Urban Population, van Zwanenberg TD
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Children with life-shortening conditions are denied the support they need, says charity
A Study Into The Educational Needs Of Children's Hospice Doctors: A Descriptive Quantitative And Qualitative Survey
Tags: 2004, Amery J, Child, Clinical Competence/st [standards], Communication, Education Medical Continuing/og [organization & Administration], England, Hospice Care, Hospices, Humans, Inservice Training/og [organization & Administration], Lapwood S, May 2017 List, Only Child, Palliative Care, Palliative Care/st [standards], Palliative Medicine, Patient Care Team, Pediatrics/ed [education], Surveys And Questionnaires
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
How Do Neonatal Units Support Siblings Following Loss?-a National Survey
Tags: 2017, Archives of Disease in Childhood, Bereavement Support, Counselor, Doctor Patient Relation, England, Henderson R, Hospice, Human, Human Experiment, Minchella S, Model, Neonatal Intensive Care Unit, Newborn, Newborn Death, Nurse, Psychologist, September 2017 List, Sibling, Social Welfare, Terminal Care, Vasudevan C
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
How Many Children And Young People With Life-limiting Conditions Are Clinically Unstable? A National Data Linkage Study
Design National cohort of CYP with LLCs using linked routinely…
Tags: 2016, Age, Archives of Disease in Childhood, Audits, Australian Casemix Classification, Bryony Beresford, Care And Treatment, College Admissions, Consortia, Councils, Datasets, Diseases, End-of-life Care, England, Ethnicity, Health Service, Hospice Care, Hospitals, Intensive Care Units, Life-limiting Conditions, Lorna K Fraser, Management, Medical Research, Minority & Ethnic Groups, Palliative Care, Pat Carragher, Patient Admissions, Patient Outcomes, Patterns, Pediatrics, Picanet, Prevalence, Quality, Registration, Roger C Parslow, Routine data, Scotland, September 2016 List, Stuart Jarvis, Studies
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology