Browse Items · Pediatric Palliative Care Library

National Survey of Sibling Support Services in Children's Hospitals

Nearly a quarter-million children are siblings to children living with serious illness. Intense physical, emotional, social and psychological concerns are introduced when a brother or sister is diagnosed with a serious illness or disease. Support…

Children's palliative care education and training: developing an education standard framework and audit

BACKGROUND: The need to align the range of guidance and competencies concerning children's palliative care and develop an education framework have been recommended by a UK All-Party Parliament Group and others. In response to these recommendations…

Tags: 2021, BMC medical education, Child, Children, Clinical Competence, Curriculum, December 2021 List, Downing J, Education, End Of Life Care, Learning, McNamara K, Neilson S, nursing education, Paediatric, Palliative Care, Randall D, Teaching, Training

Simulation and skills training for pediatric fellows: Improving confidence in high-stakes care at end of life

Background: End-of-life (EOL) care for a child is a high-stakes situation that requires careful planning and practice; there is only one chance to get it right. Additionally, distress is often high in those caring for dying children. Despite the fact…

Tags: 2019, Child, Clinical Article, conference abstract, Controlled Study, Female, Goloff N, Hematology, Human, Kamrath H, Male, March 2020 List, Norbie E, Pain, Pediatrics, Resuscitation, Simulation, Skill, Teaching, Terminal Care, Woll A

Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats

Program Goals: Appropriate use of electronic media in a pediatric palliative care setting enhances a family's experience of care given to their child over time and assists in the grieving process. Here we explore multiple uses of electronic media in…

Tags: 2018, Awareness, Brother, California, Child, conference abstract, Documentation, Face, February 2020 List, Female, Fisher J M, Grief, hearing, Heat, hot water, Human, literature, Male, Memory, motion, Palliative Therapy, Pediatrics, Photography, Physician, Pyatt S, Sound, Teacher, Teaching, touch, videorecording, Voice

Communicating death and dying through simulation: A project with pediatric residents

Program Goals Pediatric residentscare for a wide spectrum of children with acute and chronic disease processes. They are often the first to communicate with families, yet receive little formal training in conveying difficult information. In 2014,…

The chameleon project: A children's end of life care quality improvement project: Preliminary results

Background As there was no specialist paediatric palliative care team in the region, we made a successful bid to NHS England's Marginal rate Emergency Threshold (MRET) and Readmission Fund for the Chameleon Project1 in 2018. The project has been…

The use of a theatre workshop in developing effective communication in paediatric end of life care

Being able to communicate effectively is an essential skill for all nurses. Communication in paediatric end of life care can be challenging for both the student and lecturer as it is a rare experience and challenging to teach. Innovative approaches…

Neurodegenerative conditions: Exploring the role of music to enhance speech and cognitive functioning in children with batten disease

Batten disease, the most common form of the neuronal ceroid lipofuscinoses, is a genetic life-limiting neurodegenerative condition that presents as early-onset dementia in children (Mole, Williams and Goebel, 2011). Symptoms include blind-ness,…

Tags: 2017, Atkinson R, Child, Cohort Analysis, Developmental Medicine and Child Neurology, Endogenous Compound, Female, Human, Language, Male, March 2018 List, Mood, Music Therapy, neuronal ceroid lipofuscinosis, Ockelford A, Perception, singing, Speech, Teaching

Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors

BACKGROUND: The purpose of the current study was to investigate longitudinally children's behavioral and social competence outcomes up to 2 years after pediatric stem cell transplantation (SCT) and related factors. METHODS: Ninety-nine mothers and 24…

Training in difficult conversations: a national survey of pediatric hematology-oncology and pediatric critical care physicians

BACKGROUND: In pediatric oncology and critical care, physicians give difficult news, including discussions regarding palliative care and comfort measures, but there are minimal data regarding fellowship program preparation for this task. PURPOSE: We…

Impact of writing "comfort measures only" orders in a community teaching hospital.

OBJECTIVES: We compared end-of-life care for patients with and without orders for "comfort measures only" (CMO) and evaluated whether standards for palliative medicine were met., DESIGN: We retrospectively reviewed the charts of 40 patients, 20 with…

Dealing with missing data in a multi-question depression scale: a comparison of imputation methods

BACKGROUND: Missing data present a challenge to many research projects. The problem is often pronounced in studies utilizing self-report scales, and literature addressing different strategies for dealing with missing data in such circumstances is…

Nurse-led paediatric pre operative assessment: an equivalence study

AIM: to explore whether nurses can undertake the pre operative assessment of children prior to day case surgery as safely as senior house officers. DESIGN: a randomised controlled trial involving 595 children, using an equivalence methodology (a…

Decisions to forgo life-sustaining therapy in ICU patients independently predict hospital death

OBJECTIVE: More than one-half the deaths of patients admitted to intensive care units (ICUs) occur after a decision to forgo life-sustaining therapy (DFLST). Although DFLSTs typically occur in patients with severe comorbidities and intractable acute…

Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients

OBJECTIVE: The role of family interests in medical decision making is controversial. Physicians who routinely treat incompetent patients may have preferred strategies for addressing family interests as they are encountered in surrogate medical…

Transition of care: health care professionals' view

There is much anxiety regarding the transfer of adolescents with chronic illness to adult services. Transfer of patients can be haphazard if the transition has not been planned. Problems and obstacles to transition have been identified and discussed…

Evaluation of patient-care protocol use by various providers

Self-concepts, domain values, and self-esteem: relations and changes at early adolescence

We assessed how children's self-concepts of ability for mathematics, English, social, and physical skills activities, ratings of the importance of these activities, and general self-esteem change across the transition to junior high school. Three…

Pediatric pain practices: a national survey of health professionals

The purpose of this study was to examine how health-care providers in U.S. teaching hospitals assess and manage children's pain. A 59-item questionnaire was sent to institutions with pediatric residency programs listed in the 1992 National Residency…

Tags: 1996, Alexander M, Backlog, Broome ME, Child, Hospitals, Humans, Journal Article, Journal of Pain and Symptom Management, Maikler V, Pain Measurement, Pain/therapy, Physician's Practice Patterns, Questionnaires, Richtsmeier A, Teaching, United States

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