Browse Items · Pediatric Palliative Care Library

What Would You Do if It Were Your Kid?

I know we're not supposed to have favorites, but Lizzy was one of mine. She was 8 years old. Her eyes still sparkled, even though her curly brown hair had long since fallen out because of radiation and chemotherapy for a malignant brain tumor. When…

Tags: 2013, Backlog, Journal Article, Korones DN, New England Journal Of Medicine

Early Specialty Palliative Care — Translating Data in Oncology into Practice

Palliative care suffers from an identity problem. Seventy percent of Americans describe themselves as “not at all knowledgeable” about palliative care, and most health care professionals believe it is synonymous with end-of-life care.1 This…

Tags: 2013, Backlog, Journal Article, Kirch RA, New England Journal Of Medicine, Parikh RB, Smith TJ, Temel JS

Talking about death with children who have severe malignant disease

BACKGROUND: One of the questions faced by the parents of a child who is terminally ill with a malignant disease is whether or not they should talk about death with their child. METHODS: In 2001, we attempted to contact all parents in Sweden who had…

Pediatric Palliative Care

Each year in the United States, approximately 50,000 children die and 500,000 children cope with life-threatening conditions. Worldwide these numbers are in the millions.1,2 Such children and their families require comprehensive, compassionate, and…

Tags: 2004, Backlog, Boldt AM, Child, Death and Euthanasia, Grief, Hilden JM, Himelstein BP, Hospice Care, Humans, Journal Article, New England Journal Of Medicine, Palliative Care/ethics/methods/psychology, Pediatrics/methods, Religion, Terminally Ill/psychology, Weissman DE

Oral opioid therapy for chronic peripheral and central neuropathic pain

BACKGROUND: Although opioids are commonly used to treat chronic neuropathic pain, there are limited data to guide their use. Few controlled trials have been performed, and many types of neuropathic pain remain unstudied. METHODS: Adults with…

Starvation in man

Evaluation of patient-care protocol use by various providers

Cardiopulmonary resuscitation on television: miracles and misinformation

BACKGROUND: Responsible, shared decision making on the part of physicians and patients about the potential use of cardiopulmonary resuscitation (CPR) requires patients who are educated about the procedure's risks and benefits. Television is an…

Tags: 1996, Backlog, Cardiopulmonary Resuscitation, Communication, Diem S, Journal Article, Lantos J, New England Journal Of Medicine, Resuscitation, Television, Tulsky J

Symptoms and Suffering at the End of Life in Children with Cancer

Cancer is the leading cause of nonaccidental death in childhood.1 There has, however, been little evaluation of the overall experience at the end of life of children who are dying of cancer or of their symptoms other than pain.2,3 A number of studies…

Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J

Tags: 1996, Backlog, Blumenthal D, Cost Control, Health Care Costs, Health Services Research, Journal Article, New England Journal Of Medicine, Outcome Assessment (health Care), Professional Practice/trends, Quality of Health Care/economics, United States

Browse Items (12 total)