Browse Items · Pediatric Palliative Care Library

Laying the groundwork: Building relationships for public and patient involvement in pre-clinical paediatric research

CONTEXT: Public and patient involvement is increasingly becoming an expectation of research funders and policy makers. Not all areas of health research are public-facing. Here, we outline an approach for building the skills and developing the…

Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making

In an ideal world, all of us - patients, parents, family members, nurses, physicians, social workers, therapists, pastoral care workers, and others - would always work together in a collaborative manner to provide the best care possible. This article…

Tags: 2007, Backlog, Child, Communication, Cooperative Behavior, Expressed Emotion, Feudtner C, Humans, Interprofessional Relations, Journal Article, Palliative Care, Pediatric Clinics of North America, Pediatrics, Problem Solving

Impact of an inpatient palliative care team: a randomized control trial.

BACKGROUND: Palliative care improves care and reduces costs for hospitalized patients with life-limiting illnesses. There have been no multicenter randomized trials examining impact on patient satisfaction, clinical outcomes, and subsequent health…

Tags: 2008, Advance Directives/sn [Statistics & Numerical Data], Advance Directives/statistics & Numerical Data, Aged, Backlog, Beane J, Blum M, Conner D, Cooperative Behavior, Critical Illness/ep [Epidemiology], Critical Illness/epidemiology, Critical Illness/psychology, Critical Illness/px [psychology], Critical Illness/rehabilitation, Critical Illness/rh [Rehabilitation], Della PR, DNAR, DNAR Outcomes, Gade G, Hospice Care/ut [Utilization], Hospice Care/utilization, Hospitalization, Hospitalization/statistics & numerical data, Humans, Journal Article, Journal of Palliative Medicine, Liberson M, McGrady K, Palliative Care/methods, Palliative Care/mt [methods], Patient Care Team, Patient Satisfaction, Prospective Studies, Quality Of Life/psychology, Quality Of Life/px [psychology], Richardson RH, Survival Rate, Venohr I, Williams MP

Challenges in using opioids to treat pain in persons with substance use disorders

Pain and substance abuse co-occur frequently, and each can make the other more difficult to treat. A knowledge of pain and its interrelationships with addiction enhances the addiction specialist's efficacy with many patients, both in the substance…

Home and hospital

Social workers play key roles on interdisciplinary hospice teams and in hospitals on oncology or palliative care teams. Though palliative care settings include both home hospice and hospital-based consultation services, the different environments and…

Tags: 2007, Backlog, Cooperative Behavior, Environment, Home Care Services/organization & administration, Hospice And Palliative Care: How The Environment Impacts The Social Work Role, Hospice Care/organization & administration, Hospital Administration, Humans, Interprofessional Relations, Journal Article, Lawson R, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Social Work/organization & administration

Information exchange among physicians caring for the same patient in the community

BACKGROUND: The exchange of information is an integral component of continuity of health care and may limit or prevent costly duplication of tests and treatments. This study determined the probability that patient information from previous visits…

Transition care for young people with chronic illness

Young people with a chronic illness or disability originating in childhood ultimately need transition to adult care. The process of leaving a familiar paediatric service and effectively engaging in appropriate adult health care can be challenging and…

Pediatric clinical research networks: current status, common challenges, and potential solutions

OBJECTIVES: The goals were (1) to describe and to characterize pediatric clinical research networks (PCRNs) in the United States and Canada, (2) to identify PCRN strengths and weaknesses, (3) to evaluate the potential for collaboration among PCRNs,…

Tags: 2010, Backlog, Biomedical Research/organization & administration, Bocian AB, Cooperative Behavior, Harris DL, Humans, Journal Article, Medical, Pediatrics, Research Support as Topic, Slora EJ, Societies, United States, Wasserman RC

A framework for integrated pediatric palliative care: being with dying

Recent studies highlight the need for an integrated model for palliative and end-of-life pediatric care. About 55,000 children die each year in the United States and, on any given day, about 8,600 children could benefit from care that acknowledges…

Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback

OBJECTIVE: To develop a practical set of measures for routine monitoring, performance feedback, and improvement in the quality of palliative care in the intensive care unit (ICU). DESIGN: Use of an interdisciplinary iterative process to create a…

Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in…

Tags: 2005, Backlog, Blacker S, Christ GH, Cooperative Behavior, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Leadership, Organizational Innovation, Palliative Care/organization & Administration, Social Work/organization & administration, Terminal Care/organization & Administration

Exploring multi-agency working in services to disabled children with complex healthcare needs and their families

Children with complex healthcare needs typically require technical and/or medical equipment in the home. This growing group of children and families need support that crosses agency and professional boundaries, necessitating effective multi-agency…

Process mapping as a tool for home health network analysis

Process mapping is a qualitative tool that allows service providers, policy makers, researchers, and other concerned stakeholders to get a "bird's eye view" of a home health care organizational network or a very focused, in-depth view of a component…

Evaluation of patient-care protocol use by various providers

Cudahy high school survey and focus groups: assessment of the needs of a teen population. A community-campus collaboration

Collaboration between local public health agencies and university schools of nursing can be advantageous to both parties. Students need opportunities to learn aggregate-based care; health officers need community partnerships that expand their…

Preparation for oncology settings: what hospice social workers say they need

According to recent data, 78 percent of hospice social workers' direct practice hours are spent with patients and families diagnosed with terminal cancer. A national sample of 108 hospice social workers participated in an exploratory study…

Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education

Distraction, exposure therapy, counterconditioning, and topical anesthetic for acute pain management during needle sticks in children with intellectual and developmental disabilities

A behavior therapy approach for obtaining cooperation during needle sticks was provided to 8 pediatric patients with intellectual and developmental disabilities. Therapy was provided during mock needle sticks. Hand lotion was applied to simulate…

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