Browse Items · Pediatric Palliative Care Library

Shared Spiritual Beliefs between Adolescents with Cancer and Their Families

BACKGROUND: FAmily CEntered (FACE) Advance Care Planning helps family decision makers to understand and honor patients' preferences for future health care, if patients cannot communicate. Spiritual well-being is a key domain of pediatric oncology…

Application of Critical Race Theory in Palliative Care Research: A Scoping Review

Context: Structural racism negatively impacts individuals and populations. In the medical literature, including that of palliative care, structural racism's influence on interracial differences in outcomes remains poorly examined. Examining the…

Tags: 2022, Curseen KA, Hospice And Palliative Care Nursing, Hospice Care, Johnson K, Journal of Pain and Symptom Management, Kavalieratos D, Kunihiro SK, Marcewicz L, Palliative Care, Racial Groups, racism, September 2022 List, Spirituality

The fragile spirituality of parents whose children died in the pediatric intensive care unit

Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill…

Tags: 2020, End-of-life Care, Falkenburg J L, Ganzevoort R R, Journal of Health Care Chaplaincy, Pediatric Intensive Care, September 2020 List, Spirituality, Tibboel D, van Dijk M

Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning

In a society of diverse views, faiths and beliefs, what can paediatric palliative care contribute to our understanding of children's spirituality? By failing to recognise and respond to their spirituality in this work, we risk missing something of…

Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature

Children with cancer and their families experience shifts in spiritual wellness from diagnosis through treatment and survivorship or bereavement. An interdisciplinary team conducted a systematic review of quantitative and qualitative research on…

Spiritual Care: Minimizing the Vulnerability of Parents Whose Children With Cancer Face the End of Life

There is a distinct lack of literature related to the spiritual care of parents whose children with cancer are at the end of life. This has led to a dearth in evidence about how nurses may intervene with spiritual care interventions to best support…

Tags: 2019, Cancer, Journal Of Pediatric Oncology Nursing, Oncology 2019 List, Parents, Pediatric, Petersen C L, Spirituality

Spirituality among parents of children with cancer in a Middle Eastern country

PURPOSE: Family caregivers of children with cancer face emotional, psychological, and spiritual challenges coping with their child's illness. For ensuring comprehensive multidisciplinary pediatric care, there is a need to understand and define what…

Tags: 2019, Adaptation, Cancer, Caregivers, Children, Developing World 2019 List, Doumit M A A, European Journal Of Oncology Nursing, Hermeneutics, Lebanon, Majdalani M, Palliative Care, Psychological, Qualitative Study, Rahi A C, Saab R, Spirituality

Parental Use of Religion and Spirituality in Medical Decision-Making

New medical technology has extended children's lives, creating challenges for parental decision-making. Many parents utilize religion or spirituality (R/S). This study examined the semi-structured interviews of 24 parents who made significant medical…

Tags: 2019, Betz J, Chaplaincy, December 2019 List, Decision-making, Desjardins CM, Ferrara B, Grossoehme DH, Journal of Health Care Chaplaincy, Kitamura EA, Malcolm HV, Mueller M, Parents, Ragsdale JR, Spirituality

Health-Care Provider Personal Religious Preferences and Their Perspectives on Advance Care Planning With Patients

OBJECTIVE:: To understand how health-care providers' (HCPs) religious preferences influence their willingness to undertake advance care planning (ACP) with patients and their acceptance of other HCP's involvement. METHODS:: Online anonymous survey…

Cultural and religious considerations in pediatric palliative care

OBJECTIVE: A growing multicultural society presents healthcare providers with a difficult task of providing appropriate care for individuals who have different life experiences, beliefs, value systems, religions, languages, and notions of healthcare.…

Posttraumatic growth in parents and pediatric patients

BACKGROUND: Pediatric medical experiences are potentially traumatic but may lead to psychological growth. OBJECTIVE: The study objective was to synthesize the published literature regarding posttraumatic growth (PTG) in parents and patients with…

Ethnicity, race, and advance directives in an inpatient palliative care consultation service.

OBJECTIVE: Although race and ethnic background are known to be important factors in the completion of advance directives, there is a dearth of literature specifically investigating the effect of race and ethnicity on advance directive completion rate…

Tags: 2013, 80 And Over, Adult, Advance Directives/eh [Ethnology], African Americans/statistics & numerical data, Aged, Asian Continental Ancestry Group/sn [Statistics & Numerical Data], Attitude to Death/eh [Ethnology], Backlog, Cooper LB, Cross-cultural Comparison, Decision Making, DNAR, European Continental Ancestry Group/sn [Statistics & Numerical Data], Female, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Journal Article, Lesser ML, Liberman T, Male, Middle Aged, Mir Tanveer P, New York/ep [Epidemiology], Nouryan CN, Palliative & Supportive Care, Palliative Care/og [Organization & Administration], Pekmezaris R, Program Evaluation, Referral and Consultation/og [Organization & Administration], Resuscitation Orders, Sison CP, Spirituality, Terminal Care/og [organization & Administration], Wolf-Klein GP, Zaide GB

Palliative care of children with brain tumors: a parental perspective

OBJECTIVE: To explore the end-of-life experience of children with brain tumors and their families. DESIGN: Qualitative analysis of focus group interviews. SETTING: Children's Hospital, London Health Sciences Center. PARTICIPANTS: Twenty-five parents…

Psychosocial and spiritual needs of children living with a life-limiting illness

Quality end-of-life care includes the management of distressing symptoms; provisions of care, including the assessment and management of psychosocial and spiritual needs; and respite from diagnosis through death and bereavement. Meeting the…

Fatalism revisited

OBJECTIVES: To review the concept of fatalism among African Americans by discussing how religiosity/spirituality may guide them in seeking cancer care in a positive rather than a fatalistic way. DATA SOURCES: Nursing, social science, and medical…

Tags: 2008, African Continental Ancestry Group/psychology, Backlog, Fogel J, Humans, Journal Article, Morgan PD, Neoplasms/psychology/therapy, Seminars In Oncology Nursing, Spirituality, Tyler ID

International comparison study on the primary concerns of terminally ill cancer patients in short-term life review interviews among Japanese, Koreans, and Americans

OBJECTIVE: The aim of this study was to investigate the primary concerns of terminally ill cancer patients in a Short-Term Life Review among Japanese, Koreans, and Americans to develop intervention programs to be tailored to patients in other…

The role of doctors' religious faith and ethnicity in taking ethically controversial decisions during end-of-life care

BACKGROUND AND AIMS: The prevalence of religious faith among doctors and its relationship with decision-making in end-of-life care is not well documented. The impact of ethnic differences on this is also poorly understood. This study compares…

Tags: 2010, Backlog, Journal Article, Journal of Medical Ethics, Seale C, Spirituality

Provision of Spiritual Care to Patients With Advanced Cancer: Associations With Medical Care and Quality of Life Near Death

PURPOSE: To determine whether spiritual care from the medical team impacts medical care received and quality of life (QoL) at the end of life (EoL) and to examine these relationships according to patient religious coping. PATIENTS AND METHODS:…

Tags: 2009, Backlog, Balboni MJ, Balboni TA, Block SD, Journal Article, Journal Of Clinical Oncology, Lewis EF, Loggers ET, Paulk ME, Peteet JR, Phelps AC, Prigerson HG, Spirituality, Wright AA

The reflections you get': an exploration of body image and cachexia.

BACKGROUND: cachexia has a detrimental effect on quality of life and is an indicator of poor prognosis. The meanings people attach to their lived experiences of cachexia are unknown. AIMS: to explore the impact of cachexia on body image of people…

The difficulties assessing spiritual distress in palliative care patients: a qualitative study

This paper reports on a focus group study aimed at exploring the difficulties that palliative care healthcare professionals encounter while assessing the spiritual distress of their patients. Three focus groups were conducted in a hospice (n = 15).…

Tags: 2010, Abbas SQ, Backlog, Dein S, Journal Article, Mental Health, Religion & Culture, Spirituality

Quantum Nonlocality: Does Nature also Perform the Trick Via a Biological Route?

While we do not yet know how Nature is nonlocal, interdisciplinary research in the areas of physics, biophysics and neuroscience going back over 4 decades, reveals that Nature is nonlocal. Nonlocality appears to have been observed between human…

Tags: 2010, Backlog, death bed visions, deathbed coincidences, Journal Article, Neuroquantology, non-local effects, numinous reality, Spirituality, telepathy, Thaheld FH

Near Death Experiences: A New Algorithmic Approach to Verifying Consciousness Outside the Brain

Quantum mechanics arose to explain 'wobbles' in predicted effects of Newtonian physics, such as the stability of electron orbitals. Similarly, scientifically verified phenomena in the field of neuroscience which contradict known theories of brain…

Tags: 2010, Backlog, Consciousness, Journal Article, Laws V, near death experience, Neuroquantology, OBE, out of body experience, Perry E, Spirituality

Non Local Effects in The Process of Dying: Can Quantum Mechanics Help?

Studies in hospices and nursing homes have shown that a number of different phenomena are associated with the mental states of the dying. In the days or weeks before death the dying person may have premonitions, often unrecognised, of their impending…

Tags: 2010, Backlog, death bed visions, deathbed coincidences, Fenwick P, Journal Article, Neuroquantology, non-local effects, numinous reality, Spirituality, telepathy

Beacon in the storm: an exploration of the spirituality and faith of parents whose children have cancer

The purpose of this article is to describe the role of spirituality as a coping mechanism in the lives of parents of children with cancer. This exploratory study was conducted using a dominant-less dominant research design with phenomenology as the…

Tags: 2006, Adaptation, Attitude to Health Child Female Health Services Needs and Demand Humans Life Change Events Male Middle Aged, Backlog, Issues Compr Pediatr Nurs, Journal Article, Mannell RC, Neoplasms/psychology Nurse's Role Nursing Methodology Research Oncologic Nursing Ontario Parents/, PedPal Lit, Psychological Adult, psychology Pediatric Nursing Problem Solving Professional-Family Relations Qualitative Research Questionnaires Religion and Psychology Research Design Social Support, Schneider M, Spirituality

Evidence for healing interventions with perinatal bereavement

The purpose of this article is to explore the concept of perinatal grief and evidence-based healing interventions for it. The loss of a pregnancy or death of an infant causes profound grief, yet society has long minimized or ignored this grief, which…

Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback

OBJECTIVE: To develop a practical set of measures for routine monitoring, performance feedback, and improvement in the quality of palliative care in the intensive care unit (ICU). DESIGN: Use of an interdisciplinary iterative process to create a…

Building a new world: habits and practices of healing following the death of a child

The goal of this interpretive phenomenological study is to describe and understand significant habits and practices developed by families bereaved from the sudden and unexpected loss of their children. Data were primarily collected through the…

Time of Change? The Spiritual Challenges of Bereavement and Loss

Coping with grief can include, in part, trying either to assimilate the loss into the existing worldview and its spiritual and religious components, or changing those components in congruence with the new reality. This spiritual or religious…

Tags: 2006, Backlog, Calhoun LG, Journal Article, Omega, Spirituality, Tedeschi RG

Human suffering: the need for relationship-based research in pediatric end-of-life care

Children living with and dying from advanced cancer and their families experience significant suffering. The cure of disease and the relief of suffering are dual moral obligations of our professions. To relieve suffering, health care providers must…

Loss of the Assumptive World - How We Deal With Death and Loss

The assumptive world concept refers to the assumptions or beliefs that ground, secure, stabilize, and orient people. They are our core beliefs. In the face of death and trauma, these beliefs are shattered and disorientation and even panic can enter…

Tags: 2004, Backlog, Beder J, Journal Article, Omega, Spirituality

Addressing spirituality in pediatric hospice and palliative care

Hospice and palliative care principles mandate clinicIans to provide "total" care to patients and their families. Such care incorporates not only physical, emotional, and psychosocial care, but spiritual care as well. Even though considerable…

Making sense of loss and benefiting from the experience: two construals of meaning

Theoretical models of the adjustment process following loss and trauma have emphasized the critical role that finding meaning plays. Yet evidence in support of these models is meager, and definitions of meaning have been too broad to facilitate a…

Tags: 1998, Adult, Analysis of Variance, Backlog, Cognition, Davis CG, Female, Grief, Humans, Interpersonal Relations, Journal Article, Journal Of Personality And Social Psychology, Larson J, Life Change Events, Male, Middle Aged, Nolen-Hoeksema S, Social Adjustment, Spirituality

Exploring fathers' experiences of pregnancy after a prior perinatal loss

PURPOSE: To explore fathers' experiences of pregnancy after a prior perinatal loss. STUDY DESIGN AND METHODS: This phenomenological study used unstructured, in-depth interviews with four men whose wives were currently pregnant subsequent to previous…

Tags: 2001, Adult, Armstrong D, Backlog, Fathers, Female, Fetal Death, Grief, Humans, Journal Article, Male, Maternal-Child Nursing, Pregnancy/psychology, Spirituality, The American Journal Of Maternal Child Nursing

Spirituality, resilience, and narrative: coping with parental death

1998

Tags: 1998, Angell GB, Backlog, Coping, Death, Dennis BG, Dumain LE, Families In Society, Grief, Journal Article, Parental Death, Parents, Resilience, Spirituality

Assumptive World Views and the Grief Reactions of Parents of Murdered Children

The World Assumptions Scale and the Revised Grief Experience Inventory was administered to parents of murdered children and parents bereaved by sudden accidental death. Compared to parents bereaved by accidents, parents bereaved by homicide showed…

Tags: 2000, Backlog, Journal Article, Marwit SJ, Omega, Spirituality, Wickie SK

Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.

While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this…

Neonatal end-of-life spiritual support care

The death of an infant is a profound loss that may complicate, disrupt, or end relationships between parents; and lead to maladaptive grieving, long-term decreased quality of life, and symptoms related to psychological morbidity. Facing neonatal loss…

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