The fragile spirituality of parents whose children died in the pediatric intensive care unit
Title
The fragile spirituality of parents whose children died in the pediatric intensive care unit
Creator
Falkenburg J L; van Dijk M; Tibboel D; Ganzevoort R R
Identifier
Publisher
Journal of health care chaplaincy
Date
2020
Subject
end-of-life care; pediatric intensive care; spirituality
Description
Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill child died in the pediatric intensive care unit revealed features of a spirituality that is fragmentary and full of contradictions. This type of spirituality, which we refer to as fragile, speaks of parents' connectedness with the deceased child and the hope of some kind of reuniting after one's own death. Acknowledging that fragments of spirituality can be part of parents' experiences in their child's end-of-life stage can be a meaningful contribution to compassionate care.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
September 2020 List
URL Address
Collection
Citation
Falkenburg J L; van Dijk M; Tibboel D; Ganzevoort R R, “The fragile spirituality of parents whose children died in the pediatric intensive care unit,” Pediatric Palliative Care Library, accessed February 7, 2025, https://pedpalascnetlibrary.omeka.net/items/show/17199.