The fragile spirituality of parents whose children died in the pediatric intensive care unit

Title

The fragile spirituality of parents whose children died in the pediatric intensive care unit

Creator

Falkenburg J L; van Dijk M; Tibboel D; Ganzevoort R R

Publisher

Journal of health care chaplaincy

Date

2020

Subject

end-of-life care; pediatric intensive care; spirituality

Description

Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill child died in the pediatric intensive care unit revealed features of a spirituality that is fragmentary and full of contradictions. This type of spirituality, which we refer to as fragile, speaks of parents' connectedness with the deceased child and the hope of some kind of reuniting after one's own death. Acknowledging that fragments of spirituality can be part of parents' experiences in their child's end-of-life stage can be a meaningful contribution to compassionate care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2020 List

Collection

Citation

Falkenburg J L; van Dijk M; Tibboel D; Ganzevoort R R, “The fragile spirituality of parents whose children died in the pediatric intensive care unit,” Pediatric Palliative Care Library, accessed September 21, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17199.

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