Parental Use of Religion and Spirituality in Medical Decision-Making

Title

Parental Use of Religion and Spirituality in Medical Decision-Making

Creator

Malcolm HV; Desjardins CM; Ferrara B; Kitamura EA; Mueller M; Betz J; Ragsdale JR; Grossoehme DH

Publisher

Journal of Health Care Chaplaincy

Date

2019

Subject

Chaplaincy; decision-making; parents; spirituality

Description

New medical technology has extended children's lives, creating challenges for parental decision-making. Many parents utilize religion or spirituality (R/S). This study examined the semi-structured interviews of 24 parents who made significant medical decisions. Major domains included drawing on guidance from an internal or personal R/S source; some described making decisions by surrendering decision-making agency to the Divine; being guided by beliefs in the afterlife, including that their child's suffering would be alleviated in death, and/or making their decision in a partnership with the Divine. Participants also describe being guided by external R/S sources. Participants spoke about receiving counsel from spiritual communities, that God worked through the medical team, and/or seeking guidance through prayer or spiritual writings. Parents use R/S to make medical decisions for their children, and many consider the chaplain to be part of the medical team. Chaplains have a role to play in helping to facilitate the use of religion/spirituality in medical decision-making for those parents who identify as religious/spiritual as well as those who are not currently utilizing their beliefs.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

December 2019 List

Collection

Citation

Malcolm HV; Desjardins CM; Ferrara B; Kitamura EA; Mueller M; Betz J; Ragsdale JR; Grossoehme DH, “Parental Use of Religion and Spirituality in Medical Decision-Making,” Pediatric Palliative Care Library, accessed May 19, 2022, https://pedpalascnetlibrary.omeka.net/items/show/16551.

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