Browse Items · Pediatric Palliative Care Library

Psychosocial and spiritual needs of children living with a life-limiting illness

Quality end-of-life care includes the management of distressing symptoms; provisions of care, including the assessment and management of psychosocial and spiritual needs; and respite from diagnosis through death and bereavement. Meeting the…

Sibling death and death fear in relation to depressive symptomatology in older adults

Previously overlooked factors in elders' depressive symptomatology were examined, including death fear, sibling death, and sibling closeness. Participants were 150 elders (61 men, 89 women) aged 65-97 years with at least one sibling. Measures were…

The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability

OBJECTIVE: This study evaluated the Impact on Sibling scale, a six-item measure of parents' perception of the effects of a child's illness on healthy siblings. METHODS: Participants were 122 parents of a child with chronic illness, developmental…

Transition: a conceptual analysis in the context of siblings of children with cancer

Transition has been described by many disciplines. However, the concept of transition has yet to be applied to the sibling experience of childhood cancer. Understanding the transitions that siblings encounter is important because it will offer nurses…

Adolescent development in interpersonal and societal contexts

In this chapter we review theoretical and empirical advances in research on adolescent development in interpersonal and societal contexts. First, we identify several trends in current research, including the current emphasis on ecological models and…

Sibling involvement at the end of life

When a child is diagnosed with a life-threatening illness, such as cancer, there is much disruption to the family. It is a struggle for parents to divide their time between the hospital, home, and other healthy siblings. Nurses strive to provide…

Tags: 2005, Attitude To Death, Attitude to DeathBereavement Child Emotions HumansNeoplasms/nursing/psychology Oncologic NursingSibling Relations Siblings/psychology Terminal Care/psychology, Backlog, Bereavement, Child, Emotions, Giovanola J, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms, Oncology Nursing, PedPal Lit, sibling bereavement, Sibling Relations, Siblings, Terminal Care

Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life

This study used both quantitative and qualitative methodologies to assess the pediatric health-related quality of life (HRQOL) in siblings (n = 77) of cancer patients attending summer camp. On quantitative measures (Pediatric Quality of Life…

Siblings' needs and issues when a brother or sister dies of cancer.

To explore siblings'needs and issues when a brother or sister dies of cancer, interviews were conducted with 10 surviving children and young adults. The siblings expressed dissatisfaction with the information they had received and said that they had…

Preventing psychosocial impairment in siblings of terminally ill children

A review of the literature provides the basis for a discussion of the impact of sibling death on healthy children whose emotional needs may be unattended both by parents and professionals. Factors which may deter hospice practitioners from delivering…

Tags: 1989, Adaptation, Adolescent, Backlog, Bendor SJ, Child, Death, Family/psychology, Grief, Humans, Journal Article, Parent caregivers, Preschool, Psychological, Psychological/prevention & control, Sibling Relations, Stress, The Hospice Journal

Effects of sibling death on teenagers

This study reports the effects of sibling death on 33 adolescents from white, middle- to upper-middle income families. Contact was made through mutual support groups for bereaved parents. A focused interview was used to gather data on bereavement…

Sibling grief: a case report

The intensity of sibling grief and the significance of sibling mourning are described in research studies. Yet, nurses caring for dying children may be unaware of these findings and may not offer adequate support to assist siblings in working through…

Tags: 1991, Adaptation, Archives Of Psychiatric Nursing, Art, Attitude To Death, Backlog, Bereavement, Child, Family Therapy, Grief, Heiney SP, Humans, Journal Article, Male, Psychological, sibling bereavement, Sibling Relations

Bereavement and mourning in pediatric rehabilitation settings

Developmental changes in children's acquisition of death concepts and in their emotional reactions are reviewed. Moderating variables that may affect the nature of grieving processes after parental or sibling death are discussed, including…

Tags: 1993, Attitude To Death, Backlog, Bereavement, Brain Injuries, Child, Death studies, Donders J, Hospitalized, Humans, Journal Article, Male, Parents, Preschool, Rehabilitation Centers, sibling bereavement, Sibling Relations, United States

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

Effects of sudden infant death on bereaved siblings: a comparative study

This study investigated behavioural problems (as rated by mothers) in 38 children who had been suddenly bereaved of an infant sibling between 3 and 27 months previously. These children were compared with 40 children matched on age, gender, family…

Things that help and hinder adolescent sibling bereavement

A taxonomy of the things that help and hinder adolescents' sibling bereavement was developed from the responses of 140 bereaved adolescents to the questions What helped you cope with your sibling's death? and What made it harder to cope with your…

Treasure Weekend: supporting bereaved siblings

The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope…

Impact of a chronic illness in childhood: siblings' perceptions

This project investigated siblings' perceptions of family disruption when a brother or sister had cystic fibrosis (CF) or asthma. Data were gathered by phone interviews and questionnaires. Phone interviews were conducted with siblings of chronically…

Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations

Children with cancer talk about their own death with their families

In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the…

Childhood bereavement after the death of a sibling.

The article describes a study designed to explore the processes of sibling bereavement and to compare children's impressions with those of their parents. The Institute of Medicine model was used as a sensitizing framework for the study. Constant…

Sibling bereavement: a concept analysis.

Investigators of sibling bereavement contend that the death of a sibling represents a unique and intense loss experience. The empirical literature, however, lacks conceptual clarity about the characteristics of sibling bereavement. Metaphors of…

Tags: 1997, Adult, Backlog, Bereavement, Concept Formation, Death, Death studies, Humans, Journal Article, Mahon MM, Models, Psychological, Research Design, Robinson L, Self Concept, sibling bereavement, Sibling Relations, T, United States

Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.

While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this…

Risk factors in the adjustment of siblings of children with cancer

The study investigated the psychological adjustment of 99 siblings of children with cancer. At 6 months post-diagnosis, 24 siblings had scores in the borderline or clinical range on parent- and teacher-completed measures of behavioural adjustment and…

Browse Items (23 total)