Browse Items (44 total)
- Tags: Family Health
Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Tags: 2024, Adolescent, Boyden JY, Broden EG, Child, Childhood Disease, Family, Family Health, Female, Health Equity, Human, James R, Journal of Pain and Symptom Management, Keller S, Male, Mooney-Doyle K, North America, Palliative Therapy, Review, Scoping review, September List 2024, Sibling, special situation for pharmacovigilance, Systematic Review, Western Europe
Self-reported experiences of siblings of children with life-threatening conditions: A scoping review
Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review
Melatonin for sleep problems in children with neurodevelopmental disorders: randomised double masked placebo controlled trial
Tags: 2012, Adolescent, Allport T, Appleton R, British Medical Journal, Central Nervous System Depressants/administration & dosage/adverse effects, Central Nervous System Diseases/complications, Child, Child Preschool, Child Behavior/drug effects, Choonara I, Developmental Disabilities/complications, Dose-Response Relationship Drug, Drug Monitoring, Edmond A, Family Health, Female, Gamble C, Gringras P, Humans, Jones A P, Male, melatonin, Melatonin/administration & dosage/adverse effects, Montgomery P, pharmacologic intervention, Polysomnography/methods, Q3 conditions, Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/diagnosis/drug therapy/etiology, Sleep/drug effects, Sutcliffe A, Treatment Outcome, unspecified Q3 conditions, Whitehouse W P, Wiggs L, Williamson P R
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia
Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project
Tags: 2008, Adolescent, Adult, Backlog, Caregivers, Child, Chronic Disease, Family Health, Female, Ferrer-i-Carbonell A, Grootenhuis MA, Hatzmann J, Health Care Surveys, Health Status, Heymans HS, Humans, Infant, Journal Article, Male, Middle Aged, Parents, Pediatrics, Preschool, Quality Of Life, Retrospective Studies, van Praag BM
Transition: a conceptual analysis in the context of siblings of children with cancer
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Attitude To Health, Backlog, Bereavement, Child, Child Psychology, Family Health, Female, Health Promotion, Human Development, Humans, Journal Article, Journal of Pediatric Nursing, Life Change Events, Models, Neoplasms, Nurse's Role, Nursing, Nursing Evaluation Research, Nursing Methodology Research, Oncology Nursing, Pediatric Nursing, Psychological, sibling bereavement, Sibling Relations, Siblings, Wilkins KL, Woodgate RL
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Tags: 2006, Adaptation, Backlog, Barlow JH, Child, Child: Care, Health and Development, Children W/SNI, Chronic Disease/psychology/rehabilitation, Ellard DR, Evidence-based Medicine, Family Health, Humans, Journal Article, Literature review, Longitudinal Studies, Mental Disorders/etiology, Meta-Analysis, Parents/psychology, Psychological, Siblings/psychology
Chronic illness and disability
Tags: 2005, Adolescent, Adolescent Transitions, Backlog, Bmj (clinical Research Ed.), Chronic Disease/psychology/therapy, Disabled Persons/psychology, Educational Status, Emotions, Family Health, Humans, Journal Article, Mental Health, Patient Compliance, Patient Transfer, Primary Health Care, Sawyer S, Yeo M
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home
Physical and mental health of mothers caring for a child with Rett syndrome
Tags: 2006, Adolescent, Adult, Backlog, Bone/etiology/nursing, Bower C, Caregivers/psychology, Child, de Klerk N, Disabled Children, Emotions, Employment, Family Health, Family Relations, Female, Fractures, Health Status, Humans, Journal Article, Laurvick CL, Leonard H, Male, Mental Health, Middle Aged, Mother-child Relations, Msall ME, Pediatrics, Preschool, Psychological, Rett Syndrome/complications/nursing, Silburn S, Social Support, Stress, Telemeres
Silhouette of pain
Tags: 2006, Academic Medicine, Adult, Backlog, Benzocaine, Chickenpox/complications, Child, Child welfare, Chronic Disease, Cora-Bramble D, Family Health, Female, Hepatitis/complications, Humans, Infectious, Journal Article, Mississippi, PedPal Lit, Poverty, Pregnancy, Pregnancy Complications, Relief Work, Vulnerable Populations
Early peripheral nervous system manifestations of infantile Krabbe disease
Tags: 2003, Backlog, Biopsy, Demyelinating Diseases/pathology/physiopathology, Diagnosis, Differential, Dor-Wollman T, Family Health, Female, Globoid Cell/pathology/physiopathology, Humans, Hurvitz H, Inclusion Bodies/pathology, Infant, Journal Article, Korn-Lubetzki I, Leukodystrophy, Male, Nevo Y, Pediatric Neurology, Peripheral Nervous System/pathology/physiopathology, Raas-Rothschild A, Retrospective Studies, Schwann Cells/pathology, Soffer D
Family, maternal, and child health through photovoice
Tags: 2004, Adolescent, Adult, Backlog, California, Child, Child welfare, Community Networks, Family Health, Female, Health Planning, Humans, Journal Article, Male, Maternal And Child Health Journal, Maternal Welfare, Middle Aged, Needs Assessment, Non-U.S. Gov't, Photography, Pies CA, Policy Making, Research Support, Wang CC
Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
Tags: 2002, Abbott D, Backlog, Child, Child Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Disabled Children/rehabilitation, Family Health, Great Britain, Health Policy/legislation & jurisprudence, Health Services Accessibility/organization & administration, Home Care Services/organization & administration, Humans, Interprofessional Relations, Journal Article, Journal of Clinical Nursing, Models, Needs Assessment/organization & administration, Organizational, Patient Care Team/organization & administration, Social Support, Social Work/organization & administration, Townsley R, Watson D
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Tags: 2003, Adaptation, Adolescent, Adult, Analysis of Variance, Backlog, Brain Injuries/economics/psychology, Brain Injury, Child, Comparative Study, Cost Of Illness, England, Family Characteristics, Family Health, Female, Follow-up Studies, Hawley CA, Health Education, Health Status, Humans, Journal Article, Long J, Longitudinal Studies, Magnay AR, Male, Mental Health, Non-U.S. Gov't, Parents/psychology, Poverty, Preschool, Psychological, Psychological/etiology, Questionnaires, Research Support, Stress, Ward AB
Junior versus senior physicians for informing families of intensive care unit patients
Tags: 2004, Adrie C, Adult, Aged, Alberti C, American Journal Of Respiratory And Critical Care Medicine, Annane D, Azoulay E, Backlog, Communication, Comprehension, Critical Illness, Family Health, Female, Garrouste-Orgeas M, Goldgran-Toledano D, Hospital, Humans, ICU Decision Making, Intensive Care, Intensive Care Units, Internship And Residency, Jourdain M, Journal Article, Lefrant JY, Male, Medical Staff, Middle Aged, Moreau D, Papazian L, Personal Satisfaction, Pochard F, Professional-family Relations, Prospective Studies, Quinio P
Paediatric respite care: A literature review from New Zealand
Tags: 2002, Adolescent, Backlog, Child, Family Health, Health Planning, Horsburgh M, Huckle T, Human, Journal Article, New Zealand, Palliative Care/organization & Administration, Palliative Medicine, Quality of Health Care/standards, Respite Care/organization & administration, Terminal Care/organization & Administration, Trenholme A
The 2002 Schering Lecture. Children's cancer symptom experiences: keeping the spirit alive in children and their families
Tags: 2003, Attitude, Backlog, Canadian Oncology Nursing Journal, Child, Child welfare, Emotions, Family Health, Humans, Journal Article, Motivation, Neoplasms/complications/nursing/psychology, Non-U.S. Gov't, Nurse's Role, Palliative Care, PedPal Lit, Religion, Research Support, Social Support, Woodgate RL
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Helen House--a hospice for children: analysis of the first year
Tags: 1984, Adolescent, Backlog, Baum JD, British Medical Journal (clinical Research Ed.), Burne SR, Canuck Place 15 year chart review, Cerebellar Neoplasms/therapy, Child, Dominica F, England, Family Health, Female, Hospices/organization & administration, Humans, Journal Article, Male, Medulloblastoma/therapy, Neuronal Ceroid-Lipofuscinoses/therapy, Patient Admission, Quality Of Health Care, Terminal Care/standards
Improving estimates of caregiver time cost and family impact associated with birth defects
Hildegard Peplau meets family systems nursing: Innovation in theory-based practice.
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
A Genomewide Linkage-Disequilibrium Scan Localizes the Saguenay -Lac-Saint-Jean Cytochrome Oxidase Deficiency to 2p16
Tags: 2001, American Journal Of Human Genetics, Backlog, Base Sequence, Chromosome Mapping, Chromosomes, Cytochrome-c Oxidase Deficiency, Daly MJ, Delmonte T, Disease Specific, DNA Mutational Analysis, DNA/chemistry/genetics, Electron Transport Complex IV/genetics, Family Health, Female, Gene Frequency, Genes/genetics, Genome, Haplotypes, Hudson TJ, Human, Humans, Journal Article, Lander ES, Lee N, Leigh Disease/enzymology/genetics, Linkage Disequilibrium, Male, Microsatellite Repeats, Mitchell GA, Molecular Sequence Data, Morin CC, Mutation, Pair 2/genetics, Pedigree, Polymorphism, Rioux JD, Robinson BH, Single Nucleotide, Xu F
Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples.
Tags: 1997, Analysis of Variance, Backlog, Case-Control Studies, Chi-Square Distribution, Congenital/psychology, Cystic Fibrosis/psychology, Family Health, Goldberg S, Heart Defects, Humans, Infant, Janus M, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Parents/psychology, Patient Dropouts/statistics & numerical data, Patient Participation/statistics & numerical data, Regression Analysis, Research/statistics & numerical data, Severity Of Illness Index
Behaviour in mucopolysaccharide disorders
Tags: 1995, Aggression, Archives of Disease in Childhood, Backlog, Bax MC, Child, Child Behavior Disorders/complications, Colville GA, Data Collection, Family Health, Female, Humans, Journal Article, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis II/psychology, Mucopolysaccharidosis III/psychology, Parents, Preschool, Prevalence, Q3 Scoping Review Results, Self-Help Groups, Sleep Disorders/complications
Juvenile hyaline fibromatosis: clinical heterogeneity in three patients
Tags: 1999, Backlog, Child, de Klerk JB, Dermatology (basel, Switzerland), Family Health, Female, Fibroma/genetics/metabolism/pathology, Fibromatosis, Gingival/pathology, Huijmans JG, Humans, Hyalin/metabolism, Infant, Joint Diseases/pathology, Journal Article, Kleijer WJ, Male, Mancini GM, Oranje AP, Preschool, Skin Neoplasms/genetics/metabolism/pathology, Skin/metabolism/pathology/ultrastructure, Stojanov L, van Diggelen OP, Vuzevski VD, Willemsen R
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Children with cancer talk about their own death with their families
Tags: 1993, Attitude Of Health Personnel, Attitude To Death, Backlog, Child, Child Psychology, Christie D, Communication, Family Health, Female, Goldman A, Humans, Journal Article, Male, Neoplasms/psychology, Non-U.S. Gov't, Parent-child Relations, Patient Care Team, Pediatric Hematology And Oncology, Preschool, Questionnaires, Research Support, Self Disclosure, Sibling Relations, Truth Disclosure
Unique aspects of caring for dying children and their families
Tags: 2000, American Journal of Hospice & Palliative Medicine, Backlog, Boughner A, Child, Crawford B, Davies S, Family Health, Home Care Services/organization & administration, Hospices/organization & administration, Hospitals, Human, Journal Article, Lazar L, Ohio, Pediatric/organization & Administration, Program Evaluation, Richter-Beck L, Terminal Care/organization & Administration, Tucker L, Zwerdling T
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Tags: 1999, Ablin AR, Anxiety/prevention & control, Attitude To Death, Backlog, Bereavement, Chesler MA, Child, Child Care, Counseling, D'Angio GJ, Eden T, Family Health, Fear/psychology, Female, Human, Jankovic M, Journal Article, Male, Martins AG, Masera G, Medical & Pediatric Oncology, Mulhern RK, Neoplasms/psychology/therapy, Oppenheim D, Pain/prevention & control, Palliative Care, Parent-child Relations, Preschool, Professional-family Relations, Professional-patient Relations, Quality Of Life, Social Support, Spinetta J, Terminal Care, Topf R, Van Dongen-Melman J