Improving estimates of caregiver time cost and family impact associated with birth defects

Title

Improving estimates of caregiver time cost and family impact associated with birth defects

Creator

Tilford JM; Robbins JM; Hobbs CA

Identifier

Publisher

Teratology

Date

2001

Subject

Humans; Parents; Quality-Adjusted Life Years; Time Factors; Cost of Illness; Family Health; Caregivers/psychology; Models; Statistical; ICU Decision Making; social support; Abnormalities/epidemiology/psychology

Description

BACKGROUND: Birth defects impose substantial costs on both families and society because of medical, developmental, and special education needs. Caring for children with birth defects also may influence caregiver time and impact the family. However, the economic cost of caregiver time and other impacts on the family has received far less attention than traditional healthcare costs. METHODS: This study reviews the literature on measuring caregiver time costs and family impact in an economic framework. The economic framework involves translating caregiver time or difficulties into appropriate units such as cost or quality adjusted life years (QALYs). RESULTS: Despite the potential important contribution of caregiver time costs to the total cost estimate of birth defects, few studies estimate caregiver time costs related specifically to birth defects. Only two studies provide estimates of these costs. Recent work has investigated the impact of chronic illness on caregivers in QALY terms, but birth defects have not been studied. Several issues need to be addressed in both the estimation of caregiver time costs and family impact to improve cost estimates. CONCLUSIONS: Improved estimates of caregiver time costs and impact on the family will assist policy makers in allocating resources for the prevention and treatment of birth defects. Future research should investigate the economic costs of caregiver time and family impact associated with caring for children with birth defects.
2001

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

S37-41

Volume

64 Suppl 1

Citation

Tilford JM; Robbins JM; Hobbs CA, “Improving estimates of caregiver time cost and family impact associated with birth defects,” Pediatric Palliative Care Library, accessed September 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/12324.

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