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Tags: 2012, Acta Paediatrica, Adams S, Adolescent, Anderson G, Backlog, Child, Disease Progression, Family Health, Female, Forbat L, Gibson F, Hain R, Humans, Interviews As Topic, Journal Article, Malcolm C, Male, Medical Records, Mucopolysaccharidoses/diagnosis/psychology/therapy, Mucopolysaccharidosis I/diagnosis/therapy, Mucopolysaccharidosis III/diagnosis/therapy, Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy, Preschool, Prospective Studies, Psychological, Stress, Young Adult
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